Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture

Sale, Joanna; Cameron, Cathy; Hawker, Gillian; Jaglal, Susan; Funnell, Larry; Jain, Ravi; Bogoch, Earl R.

doi:10.1007/s00402-013-1889-0

Cited by 12 publications

(37 citation statements)

References 29 publications

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“…In qualitative freelist exercises, Black participants identified different concerns than White participants. Importantly, distrust of physicians, particularly in primary care physicians' knowledge and engagement in bone health, and medications has been found in numerous populations [41, 44, 47, 48]. …”

Section: Resultsmentioning

confidence: 99%

“…The health-consumer behaviours of members of a national Canadian osteoporosis group have been explored by Sale and colleagues [47]. While individuals were recruited under the assumption that they would be effective health consumers, the authors detected that most participants could be categorized as at the extreme ends, either exhibiting many or few health consumer behaviours.…”

Section: Resultsmentioning

confidence: 99%

“…Patients with more fractures reported more effective behaviours. The authors note that while the focus was on categorizing patients as “more” or “less” effective consumers, placing the onus of care on patients may exacerbate stigma [47]. …”

Section: Resultsmentioning

confidence: 99%

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Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Bombak

Hanson

2016

Journal of Osteoporosis

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Purpose. Much of the research on osteoporosis has been generated quantitatively. However, the qualitative osteoporosis literature provides valuable information on patient and clinician experiences and perspectives, informing the design and implementation of health research and healthcare services. To identify knowledge gaps and inform the design of future qualitative research, a narrative review was conducted to consolidate and synthesize the existing insights available within the qualitative osteoporosis research. Methods. Search terms reflecting the domains of osteoporosis and qualitative research were entered into the Scopus database to generate a comprehensive survey of qualitative research in the area of osteoporosis. Articles were thematically analysed and the results are presented in the form of a narrative review. Results. Forty-four articles were included in the narrative review. Qualitative research in the field of osteoporosis research can be summarized by 3 thematic areas: the meaning of osteoporosis for patients and the public, the lived experience of an osteoporosis diagnosis, and the programmatic approach to osteoporosis prevention and treatment. Conclusions. Qualitative studies provide clinically valuable insights in how osteoporosis is conceptualized and managed and programmatic aspects of osteoporosis treatment. The findings of this narrative review suggest the need for balance between presenting osteoporosis as a serious health condition and producing unwarranted anxiety and inactivity so as to ensure the best possible outcomes for individuals with osteoporosis.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Bombak

Hanson

2016

Journal of Osteoporosis

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“…As treatment guidelines and cost effectiveness data differ from country to country, some treatment proposals could be added to the FRAX® assessment tool (22,23).…”

Section: Resultsmentioning

confidence: 99%

Capture the fracture by SMS

Freystätter¹,

Platz²,

Meier³

et al. 2016

Osteologie

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SummaryIn this observational study a SMS reminder system was tested to improve patient adher- ence to osteoporosis drug therapy. 399 of 1323 osteoporosis fracture patients could be documented. 66 % of patients who received a SMS recommendation arranged an ap- pointment with their primary care physician. A large proportion of the physicians followed these recommendations. As more elderly patients declined to participate, the SMS tool seems to be useful in younger seniors (< 70 years).

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“…A total of 16975 patients were included; the sample size of the quantitative studies ranged from 21 to 3438, with a median of 765 and the sample size of the qualitative studies ranged from 14 to 164, with a median of 25. Across the studies, 95% of the participants were female: 22 studies examined only female participants 34,36,38,40,41,[44][45][46][47][48][49][50]52,53,58,60,61,[63][64][65][66][67] and the remaining 11 studies evaluated mainly women 35,37,39,42,43,51,[54][55][56][57]59 . The mean age of participants was 68 years.…”

Section: Overview Of Studiesmentioning

confidence: 99%

Systematic scoping review of patients’ perceived needs of health services for osteoporosis

et al. 2017

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Health service planners, administrators and providers need to understand the patients' perspective of health services related to osteoporosis to optimise health outcomes. The aims of this study were to systematically identify and review the literature regarding patients' perceived health service needs relating to osteoporosis and osteopenia. A systematic scoping review was performed of publications in MEDLINE, EMBASE, CINAHL and PsycINFO (1990-2016). Descriptive data regarding study design and methodology were extracted and risk of bias assessed. Aggregates of patients' perceived needs of osteoporosis health services were categorised. Thirty-three studies (19 quantitative and 14 qualitative) from 1027 were relevant. The following areas of perceived need emerged: (1) patients sought healthcare from doctors to obtain information and initiate management. They were dissatisfied with poor communication, lack of time and poor continuity of care. (2) Patients perceived a role for osteoporosis pharmacotherapy but were concerned about medication administration and adverse effects. (3) Patients believed that exercise and vitamin supplementation were important, but there is a lack of data examining the needs for other non-pharmacological measures such as smoking cessation and alcohol. (4) Patients wanted diagnostic evaluation and ongoing surveillance of their bone health. This review identified patients' needs for better communication with their healthcare providers. It also showed that a number of important cornerstones of therapy for osteoporosis, such as pharmacotherapy and exercise, are identified as important by patients, as well as ongoing surveillance of bone health. Understanding patients' perceived needs and aligning them with responsive and evidence-informed service models are likely to optimise patient outcomes.

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Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture

Abstract: Members of an OP patient group described effective consumer behaviours that could be incorporated as skill sets in post-fracture interventions to improve bone health.

Cited by 12 publications

References 29 publications

Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Capture the fracture by SMS

Systematic scoping review of patients’ perceived needs of health services for osteoporosis

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