Strategies in identifying people with chronic fatigue syndrome

Jason, Leonard A.; Fitzgibbon, Genevieve; Taylor, Stephanie L.; Johnson, Sharon; Salina, Doreen

doi:10.1002/1520-6629(199310)21:4<339::aid-jcop2290210410>3.0.co;2-1

Cited by 9 publications

(9 citation statements)

References 16 publications

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“…(Ware & Kleinman, 1992). This finding suggests that health care professionals could have an important role to play in developing treatment programs that include a broader array of environmental support systems for individuals with CFS (Jason, 1993;Jason, Fitzgibbon et al, 1993).…”

Section: Discussion and Recommendationsmentioning

confidence: 99%

“…Hence, it will not be possible to estimate the prevalence of CFS because of the absence of medical and psychiatric examinations. Jason, Fitzgibbon, Taylor, et al (1993) interviewed a random sample of 1,031 people by telephone. Five percent of the sample indicated that they had unexplained, severe fatigue for 6 months or more.…”

Section: -93)mentioning

confidence: 99%

“…There is a need to evaluate the effectiveness of recruitment procedures in contacting CFS subjects. Jason, Fitzgibbon, Taylor, Johnson, and Salina (1993) conducted one study that validated recruitment procedures. They found it possible to reach the majority of a sample of individuals with CFS through the use of telephone calls.…”

Section: Recommendations For Future Cfs Epidemiological Studiesmentioning

confidence: 99%

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Chronic fatigue syndrome: A new challenge for health care professionals

Jason

Wagner

Taylor

et al. 1995

J. Community Psychol.

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Chronic Fatigue Syndrome (CFS) is a new challenge to health care professionals. During the last decade, scientists have (a) created diagnostic criteria for CFS, (b) devised CFS assessment approaches, (c) collected CFS epidemiological data, and (d) formulated CFS treatment approaches. The CFS diagnostic criteria identify a subpopulation of individuals with this disorder, and those individuals might have a greater tendency to have psychiatric comorbidity. In addition, the initial CFS epidemiological data collected might have underestimated the prevalence of this disorder. If current estimated prevalence rates of CFS are inaccurate, these estimates could have detrimental public policy implications. Health care professionals need to assume a larger role in defining this syndrome, in developing more sensitive research strategies for collecting data with CFS samples, in conceptualizing more complex theories for understanding this disease, in conducting more rigorous CFS epidemiological research, and in devising more comprehensive treatment approaches for CFS.

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Section: Discussion and Recommendationsmentioning

confidence: 99%

Section: -93)mentioning

confidence: 99%

Section: Recommendations For Future Cfs Epidemiological Studiesmentioning

confidence: 99%

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Chronic fatigue syndrome: A new challenge for health care professionals

Jason

Wagner

Taylor

et al. 1995

J. Community Psychol.

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“…The team was provided the phone numbers of a group of patients with this illness, and then tried the use of phone calls to contact and interview them. Callers were able to successfully reach about 90% of a sample of people with ME and CFS by using telephones, and respondents mentioned that they thought telephone calling was an excellent way of reaching them (Jason, Fitzgibbon, Taylor, Johnson, & Salina, 1993). Our team now had a strategy to successfully reach people from the community with this illness, without needing the biased physician case ascertainment method.…”

Section: Introductionmentioning

confidence: 99%

“…The CFIDS Association helped fund this pilot study, and our pilot study’s findings suggested much higher prevalence rates than the prior estimates (Jason et al, 1995). In addition, we also assessed the prevalence of this illness among a national sample of nurses (Jason et al, 1993), and the data from this study suggested even higher prevalence rates. This study also encouraged a nurse with the illness to form the organization called Medical Professionals/Persons with CFS (Dahlen, personal communication, March 31, 1998).…”

Section: Introductionmentioning

confidence: 99%

The use of mixed methods in studying a chronic illness

Jason

Reed

2015

Health Psychology and Behavioral Medicine

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This article explores mixed methods approaches with an illness called Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Qualitative and Quantitative data were used to investigate the epidemiology of this illness, as well as explore attributions based on the name of the illness, and finally treatment approaches. In each of the domains within the ME and CFS research reviewed, our analyses were richer and our findings ultimately more impactful when we integrated qualitative and quantitative research methods. The use of a multiphase mixed methods research program provided our team unique vantage points for better understanding social and community issues involving this controversial chronic illness. Further, this approach allowed us to implement the insights gained through an advocacy lens to change policy, recommend and evaluate treatments, and amplify voices within the patient population. In this way, we believe that the practice of methodological pluralism is especially applicable and effective to the study of chronic illness, and believe other investigators will benefit from the use of these approaches with similar disenfranchised and unfairly treated populations.

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