Strain Among Caregivers: A Study of Experience in the United States

Cantor, Marjorie H.

doi:10.1093/geront/23.6.597

Cited by 745 publications

(429 citation statements)

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“…Emotional care tasks, such as providing social support, assistance with decisionmaking, and providing and seeking information, are seldom defined as a specific type of care task. 'Caregiver burden', 'strain', or 'role strain' are generally used to refer to the physical, psychological, social and/or financial reactions that can be experienced in giving care (Zarit et al, 1980;Cantor, 1983;Robinson, 1983;Poulshock and Deimling, 1984;Given et al, 1992). A multi-dimensional construct measuring this perceived impact of caregiving is most frequently used.…”

Section: Impact Of Caregiving: Care Tasks and Caregiver Burdenmentioning

confidence: 99%

“…These caregivers often feel ultimately responsible for coordinating the care and make minimal use of professional services (Oberst et al, 1989). Partners, as compared to other caregivers, are likely to experience more strain (Cantor, 1983), they may become ill themselves (Schulz et al, 1987) and they may experience higher levels of psychiatric symptoms (George and Gwyther, 1986). …”

Section: Contextual Factors In the Caregiving Processmentioning

confidence: 99%

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Cancer and caregiving: the impact on the caregiver's health

Sanderman²,

et al. 1998

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Section: Impact Of Caregiving: Care Tasks and Caregiver Burdenmentioning

confidence: 99%

Section: Contextual Factors In the Caregiving Processmentioning

confidence: 99%

Cancer and caregiving: the impact on the caregiver's health

Sanderman²,

et al. 1998

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“…Dans un article sur les problèmes rencontrés par les familles dont les enfants sont atteints du VIH, St-Jacques (1988) a déjà observé ce phénomène. Les tensions émotionnelles seraient l'une des consé-quences les plus importantes et les plus perverses de l'assistance en soins et services d'une personne âgée (entre autres, Cantor, 1983;Gilhooly, 1984;Gwyther et George, 1986;Horowitz, 1985;Horowitz et Dobroff, 1982;Montgomery et al, 1985;Noelker et Wallace, 1985;Robinson et Thurner, 1979;Zarit et al, 1980). Ainsi les aidants souffriraient fréquemment de dépression, d'anxiété, de frustration, d'impuissance, de perte de sommeil et autres.…”

Section: O Le Vécu Et L'implication D'aidants Naturels De Personnes Vunclassified

Le vécu et l’implication d’aidants naturels de personnes vivant avec le VIH

Perreault

Savard

2008

smq

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Une recherche à devis qualitatif effectuée à Montréal de mars à juillet 1990 visait à connaître l’expérience et les besoins d'aidants naturels de personnes vivant avec le VIH afin de mieux orienter les services du Centre Pierre-Hénault créé par des aidants naturels. Dix-huit personnes se sont portées volontaires pour des entrevues en profondeur, dont neuf s'occupant de personnes ayant un sida déclaré, quatre, de personnes séropositives et cinq, de personnes maintenant décédées des suites du VIH. Il s'avère que les risques d'isolement qui menacent les aidants naturels en général sont plus élevés dans le cas des aidants de personnes vivant avec le VIH. Même si la recherche retrouve des traits fondamentaux que partagent d'autres types d'aidants, ceux de personnes vivant avec le VIH présentent des spécificités liées au caractère tabou et stigmatisant du sida et à la perte rapide et imprévue d'êtres jeunes.This article focuses on a qualitative study, conducted in Montréal between March and July of 1990, whose aim was to understand the life experiences and the needs of close and supportive individuals that care for seropositive persons. The objective of the study is to help provide more direction to the scope of services dispensed by the Centre Pierre-Hénault, an organization created by a group of close supporters of HIV-infected persons. Eighteen individuals volunteered for the in-depth interviews: nine of these were caring for persons who had developed AIDS, four were providing support for persons who were HIV-positive, and the remaining five had assisted persons who passed away following AIDS-related diseases. The study shows that the risk of isolation is greater among those close supporters who provide care for HIV-positive persons. Although research does point to a number of fundamental traits that are shared among all types of supportive individuals, certain traits are specifically related to people caring for HIV-positive persons, including the taboo and the stigma that are linked to AIDS, as well as the rapid and unforeseen loss of people in their prime

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“…Gerontology specialists (Barnes et al, 1981;Brody, 1985;Cantor, 1983;Clark & Rakowski, 1983;Zarit, Reever, & Bach-Peterson, 1980) have documented the stress of providing constant care to an elderly, chronically ill family member. A variety of stressful caregiving tasks can contribute to a subjective sense of burden for caregivers.…”

Section: Burdens Of Primary Caregiversmentioning

confidence: 99%

“…For example, preliminary data in one study indicate that participants thought they benefited from the group, but no significant differences were found on an observer-rated scale of depression (p. 57). As with participation in a support group, many AD specialists (Aronson, 1982;Cantor, 1983;Ory et al, 1984;) As with many other psychosocial intervention approaches for AD primary caregivers, the effectiveness of using self-help materials and of participating in self-help organizations has not been evaluated. Liebennan (1985) suggests that self-help materials and groups are useful, on pragmatic grounds.…”

Section: Education and Counseling Groupsmentioning

confidence: 99%

Serving primary caregivers of persons with Alzheimer's disease : an integrated service delivery model

Stapleton¹

2000

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IAlzheimer's disease (AD) is the most COllIIlon form of nontreatable dementia, a syndrome which reflects a progressive and global impairment of memory, intellect, and other cognitive abilities. This devastating condition directly touches the lives of as many as 10 million Americans, including not only persons suffering from the 2 disease but their primary caregivers and other family members as well. At present the course of AD cannot be halted or reversed, and no cure is known. 'Ihe problem, then, is how to most effectively respond to the psychosocial needs of primary caregivers in order to help them provide the best possible care for a loved one with AD.Research into the pathology of AD suggests that three types of brain tissue lesions are related to develoµnent of the disease. and (e) self-help organizations and materials. Conmen elements of these approaches reflect the need for caregiver education, training, counseling, and support services. However, current services are generally reactive in that they focus on crisis intervention rather than on primary prevention. 1he proposed Integrated Service Delivery Model responds to the need for an interdisciplinary approach to AD by offering a new conceptual framework for providing comprehensive services to primary caregivers. 1he medical care, psychoeducational, and social support service elements of the model reflect the assertion that AD is a biological, psychological and social phenomenon. They suggest a holistic approach to a complex problem, and take into consideration the many interdependent needs of primary caregivers and care receivers. 1he overall goals of the Integrated Service Delivery (ISD) Model are (a) integration of a variety of services for clients and (b) enhanced ability of clients to provide in-home care in an effort to delay or prevent institutionalization of persons with AD. 1he first goal is achieved through the coordination of interventions designed to meet the needs of AD caregivers and care receivers. 1he second goal is achieved as a result of coordination and integration, and results in the outcomes of reduced stress and burden and improved care management skills for primary caregivers.Implementation of the Integrated Service Delivery Model is recommended. However, several factors must be considered including (a) an appropriate setting for such a system; (b) the costs involved to provide daily care, the responsibility usually shifts to an adult child. In some families an adult sibling of the person with AD, a grandchild, or some. other family menber becomes the primary caregiver (Cantor, 1983;Ory et al., 1984).The burdens of caregiving are often overwhelming. Zarit et al. Powell & Reifler, 1983;Woods et al., 1985;Zarit et al., 1985; Zinmer & Mellor, 1982) have discussed the needs of AD primary caregivers. They can be sumnarized as follows:1. Information about the nature and prognosis of Alzheimer's disease.2. Permission to acknowledge and express intense emotions such as grief, anger, fear, guilt, helplessness, and loneliness. Zarit et ...

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Strain Among Caregivers: A Study of Experience in the United States

Cited by 745 publications

References 0 publications

Cancer and caregiving: the impact on the caregiver's health

Cancer and caregiving: the impact on the caregiver's health

Le vécu et l’implication d’aidants naturels de personnes vivant avec le VIH

Serving primary caregivers of persons with Alzheimer's disease : an integrated service delivery model

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