Stigma, self-blame, and satisfaction with care among patients with lung cancer

Weiss, Jared; Yang, Hojin; Weiss, Sara; Rigney, Maureen; Copeland, Amy L.; King, Jennifer C.; Deal, Allison M.

doi:10.1080/07347332.2016.1228095

Cited by 39 publications

(40 citation statements)

References 15 publications

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“…In this study, we, as well as other research groups, have demonstrated that perceived LCS can originate from various sources and take various forms . Perceived stigma from health care professionals can be detrimental, as patients can feel discomfort communicating their symptoms to health professionals, which in turn can lead to delay in presentation, in diagnosis, and in treatment, or even low uptake of treatment .…”

Section: Discussionmentioning

confidence: 82%

Lung cancer stigma: A concept with consequences for patients

et al. 2019

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Background: Patients with lung cancer (LC) report lower quality of life (QoL) and higher levels of psychological distress compared with other cancer populations. Lung cancer stigma (LCS) may in part explain these findings. Aim:We investigated the prevalence of patient-perceived lung cancer stigma (LCS) and its relationships to symptom burden/severity, depression, and deficits in healthrelated quality of life (HR-QoL). Methods:In this descriptive, observational, and cross-sectional study, 201 participants were sent questionnaires. These included the Cataldo Lung Cancer Stigma Scale (CLCSS), the Lung Cancer Symptom Scale, the Centre for Epidemiologic Studies-Depression Scale, and the Quality of Life Inventory.Results: Participants were on average 69 years old, 52% women, 95% ever smokers, and 18.5% current smokers. The mean total CLCSS score was 53.

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Section: Discussionmentioning

confidence: 82%

Lung cancer stigma: A concept with consequences for patients

et al. 2019

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“…quality of life and seeking medical and social support. [19][20][21][22][23][24][25][26][27] Years of antitobacco campaigns and tobacco industry public comments have led many individuals to internalize blame for the connection between smoking and a lung cancer diagnosis. 22,25,28 These messages overlook both mechanistic factors regarding the harmful constituents found in addictive cigarettes and the environmental context that encouraged smoking FIGURE 3 Lung cancer dyads at 5 and 12 months post-diagnosis.…”

Section: Resultsmentioning

confidence: 99%

“…b 12-month models controlled for patient stage at diagnosis and sum of treatment modalities on patient self-reported health and caregiver Charlson Comorbidities and education on caregiver self-reported health initiation, often leading to addiction. 19,21,25 At the interpersonal level, many believe those with tobacco-related lung cancer are responsible for their disease, 22,23,25,27,29 and this belief is largely attributable to the decades of "smoker-shaming" messaging. Studies comparing social perceptions of lung to various other cancers have found that because of this perception, most people are less likely to endorse funding for lung cancer research in favor of funding for other cancer research.…”

Section: Resultsmentioning

confidence: 99%

“…Patients with lung cancer are often diagnosed at later stages, experience greater symptom burden and high mortality rates, relative to other cancers, such as CRC. At the individual level, self‐stigma and shame have been negatively associated with patient quality of life and seeking medical and social support . Years of anti‐tobacco campaigns and tobacco industry public comments have led many individuals to internalize blame for the connection between smoking and a lung cancer diagnosis .…”

Section: Discussionmentioning

confidence: 99%

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Dyadic associations between perceived social support and cancer patient and caregiver health: An actor‐partner interdependence modeling approach

et al. 2019

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Objective: Social support may have a positive impact on health outcomes for patients and caregivers, but the extent to which social support and health outcomes are interrelated for both is unknown. We examine the dyadic interrelationships between social support and health among cancer patients and their caregivers. Methods: Lung and colorectal cancer (CRC) patient and caregiver dyadic data were obtained from the Cancer Care Outcomes Research and Surveillance Consortium. Patients and caregivers self-reported sociodemographic, social support, and caregiving characteristics at 5-(n=218 lung; n=222 CRC) or 12-months post-diagnosis (n=198 lung; n=290 CRC). Structural equation modeling was used to examine actor-partner interdependence models (APIM) of lung and CRC dyads at 5- and 12-months post-diagnosis. Results: At 5-months post-diagnosis, no interdependence between patient and caregiver social support was detected for CRC or lung dyads (all p>0.05). At 12-months post-diagnosis, no interdependence was detected for CRC dyads (all p>0.70); lung dyads showed complete interdependence, indicating patient social support is associated with better caregiver self-reported health (β=0.15, p<0.001), and caregiver social support is associated with better patient self-reported health (β=0.18, p<0.001). Conclusion: Social support has positive impact on patient and caregiver perceived health across the cancer trajectory, and these effects may differ by cancer site and time. Future research and translational efforts are needed to identify effective ways to bolster both patient and caregiver social support and to determine critical moments for intervention.

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“…The stigma can threat the identity of the person, and it may be internalized in such a way that results in negative feelings and diminished self-esteem (Goffman, 1963;Corrigan and Watson, 2002). The cancer stigma, particularly, has drawn the attention to the detrimental burden of social views on the lives of some patients with cancer (Carter-Harris and Hall, 2014;Weiss et al, 2017;Bamidele et al, 2019;Dodd et al, 2019). The research so far consistently indicated that in spite of relatively low prevalence, the negative influence of any stigmatization is a part of sufferings imposed by the condition on the patients' lives.…”

Section: Translation and Factor Analysis Of The Stigma Scale For Chromentioning

confidence: 99%

Translation and Factor Analysis of the Stigma Scale for Chronic Illnesses 8-Item Version Among Iranian Women With Breast Cancer

Daryaafzoon

Amini-Tehrani

Zohrevandi

et al. 2020

Asian Pac J Cancer Prev

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Background: Cancer stigma is rarely addressed among Iranian population and patients. The current study aimed at translating and examining the construct validity of the stigma scale for chronic illnesses 8-item (SSCI-8) among Iranian women with breast cancer. Methods: In the current study, a total of 223 patients aged 19-75 years were recruited from three cancer centers in Tehran, Iran, from 2014 to 2015. Forward-backward translation method was used. The itemtotal correlation was evaluated. Exploratory factor analysis employing maximum likelihood method and direct Oblimin rotation was conducted. Reliability was assessed using composite reliability (CR). Average variance explained (AVE) was used for convergent/divergent validity. Results: The items mean was 1.47 (0.19), the scale mean 11.75 (5.57); the inter-item correlations were positive and significant (P <0.0001). A two-factor solution with seven eligible items (five for enacted and two for internalized stigma) showed the model fitness. The CR for the total scale, as well as enacted and internalized facets was 0.78, 0.89, and 0.79, respectively; the AVE was 0.66 for each latent variable. Conclusion: The Persian version of SSCI-7 was found as a reliable and valid abbreviated instrument to assess experiences of enacted and internalized stigma among Iranian women with breast cancer.

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Stigma, self-blame, and satisfaction with care among patients with lung cancer

Abstract: Despite satisfaction with their treatment and care, lung cancer patients feel that society stigmatizes them as a general population. Patients who smoke are more likely to report that they have personally experienced stigma.

Cited by 39 publications

References 15 publications

Lung cancer stigma: A concept with consequences for patients

Lung cancer stigma: A concept with consequences for patients

Dyadic associations between perceived social support and cancer patient and caregiver health: An actor‐partner interdependence modeling approach

Translation and Factor Analysis of the Stigma Scale for Chronic Illnesses 8-Item Version Among Iranian Women With Breast Cancer

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