Stigma, fatigue and social breakdown: Exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia

Thomas, Felicity

doi:10.1016/j.socscimed.2006.08.016

Cited by 103 publications

(109 citation statements)

References 27 publications

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“…Frustration was expressed regarding patient complaints specifically regarding poor appetite 7,8 and mental illness, 9 in common with other studies. Poor mobility and deterioration of the physical condition was distressing to carers.…”

Section: Discussionmentioning

confidence: 64%

“…1,7,22 In Botswana, 1 it was found that elderly caregivers did not use the care package they were provided with because they felt that using gloves would imply that they do not love the person in their care. In contrast, caregivers in a Namibian study 7 expressed anger at the risk they were exposed to. The lack of gloves was also related to specific conditions of patients (e.g.…”

Section: Discussionmentioning

confidence: 99%

“…Care dyad conflict has been reported in several studies and causes tensions arising from the mood changes of both partners. 6,7,21 Despite the challenges that were described by the caregivers some of them still reported that they were coping with the caregiving role. Counselling has helped some of them.…”

Section: Discussionmentioning

confidence: 99%

“…Additional factors in this group were their fear of contracting the illness through the caring process and a sense of futility. In rural Namibia, 7 diaries were kept by participants. These revealed, amongst others, that over time tensions arose between the caregiver and patient as well as in the household in general.…”

Section: Introductionmentioning

confidence: 99%

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The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe

Deventer¹,

Wright²

2017

South. Afr. j. HIV med.

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Background: The family caregiver has a pivotal role to play in the management of the chronically ill HIV and/or AIDS patients. The wellbeing of caregivers is therefore crucial because impairment of their physical or mental health could impact negatively on the management of their HIV-positive family member. The purpose of this qualitative study was to explore the psychosocial impact of caregiving on the family caregiver of the chronically ill HIV and/or AIDS patients in home-based care.Method: Unstructured interviews were conducted with 11 caregivers recruited at an adult HIV clinic at United Bulawayo Hospitals, Bulawayo, Zimbabwe. Relevant demographic information was collected from each participant. The interviews were then transcribed and analysed.Results: Caregivers’ biggest challenge was meeting care costs such as food, transport and medical costs. Certain conditions relating to the care-recipient’s health and family issues, such as abandonment of the ill patient as well as that of orphans, added to the burden of care. Carers also had to deal with their own health and physical problems. All the above resulted in a spectrum of emotions such as helplessness, sadness, anxiety and anger. Despite this, caregivers also reported on the positive aspects regarding their caregiving role.Conclusion: There were both negative and positive psychosocial experiences by caregivers of HIV and/or AIDS patients. The study highlighted practical areas where support could be provided.

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Section: Discussionmentioning

confidence: 64%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe

Deventer¹,

Wright²

2017

South. Afr. j. HIV med.

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“…Data gathered from both recruitment strategies were combined in the final data for analysis since preliminary analysis found them similar on key variables. Each participating child completed a survey questionnaire that followed the steps described by Thomas [38]. The entire assessment inventory took about 30 to 45 minutes to complete.…”

Section: Participants and Proceduresmentioning

confidence: 99%

Social Support Disparities among Children affected by HIV/AIDS in Ghana

Doku

Dotse²,

Mensah³

2015

J Psychiatry

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Social Support Disparities for Caregivers of Aids‐orphaned Children in South Africa

Kuo

Fitzgerald

Operario

et al. 2012

Journal Community Psychology

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Drawing upon a sample of 1,599 adults caring for children in HIV-endemic Umlazi Township in South Africa, this cross-sectional survey investigated whether perceived social support varied among caregivers of AIDS-orphaned children (n=359) as compared to caregivers of children orphaned by other causes (n=171) and caregivers of non-orphaned children (n=1,069). Results of multivariate linear regressions indicate that caregivers of AIDS-orphaned children reported significantly lower levels of social support compared to caregivers of other-orphaned children and non-orphaned children independent of socio-demographic covariates. Caregivers of other-orphaned and non-orphaned children reported similar levels of social support. In terms of sources of support, all caregivers were more likely to draw support from family and significant others rather than friends. These findings indicate a need to develop interventions that can increase levels of social support for caregivers of AIDS-orphaned children, particularly networks that include friends and significant others.

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Stigma, fatigue and social breakdown: Exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia

Cited by 103 publications

References 27 publications

The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe

The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe

Social Support Disparities among Children affected by HIV/AIDS in Ghana

Social Support Disparities for Caregivers of Aids‐orphaned Children in South Africa

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