State of the Science on Perinatal Palliative Care

Perinatal palliative care: Parent perceptions of caring in interactions surrounding counseling for risk of delivering an extremely premature infant

“…Perinatal palliative care is an approach to care that aims to provide family-centered care to alleviate all types of suffering, including physical, emotional, and spiritual (Sumner et al, 2006). The limited research that does exist on perinatal palliative care shows the value of this approach to care for families (Wool, 2013). An important component of perinatal palliative care is assisting families with decision making regarding treatment choices (Hoeldtke & Calhoun, 2001;Munson & Leuthner, 2007).…”

La vie forcée ou corrigée en médecine périnatale : le point de vue du clinicien en néonatalogie

“…Avouer cette incertitude n'est donc pas délétère pour les parents mais au contraire bienfaisante car elle leur permet de vivre. Cela fait partie des demandes de parents interrogés dans une étude récente rapportée par Wool [20][21][22]. À ce titre, dans le discours, il peut être intéressant pour le soignant de parler à la première personne en employant le « je d'incertitude » (Paul Veyne), moins péremptoire que le « nous » ou le « on », qui, en généralisant le sujet, laisse présumer une certitude scientifique.…”

Work Environment Facilitators to the Availability of Complementary and Alternative Therapies in Perinatal Hospices

“…2 Increasingly, patients and clinicians are considering palliative care interventions during pregnancy for the maternal-fetal dyad, when a life-limiting diagnosis is confirmed. 3, 4 …”

“…4, 5 Services often include medical and skilled nursing care, provision of equipment and medication, personal care, psychosocial care, and counseling. 6 In the past decade, hospices have increasingly embraced the provision of complementary and alternative medicine (CAM) therapies.…”