Standardization of Reporting Obstructive Airway Disease in Children: A National Delphi Process

Jong, Carmen C.M. de; Ardura‐Garcia, Cristina; Pedersen, Eva SL; Mallet, Maria Christina; Mueller-Suter, Dominik; Jochmann, Anja; Singer, Florian; Casaulta, Carmen; Regamey, Nicolas; Moeller, Alexander; Goutaki, Myrofora; Kuehni, Claudia E.

doi:10.1016/j.jaip.2022.08.050

Cited by 1 publication

(1 citation statement)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…We used data from the Swiss Paediatric Airway Cohort (SPAC), a national multicentre longitudinal study of children evaluated in outpatient paediatric pulmonology clinics throughout Switzerland (clinicaltrials.gov: nr. NCT03505216) (19)(20)(21)(22). The SPAC study aims to enrol all children referred to the pulmonology clinics for respiratory problems such as wheeze, cough, dyspnoea, and exercise-related symptoms.…”

Section: Methodsmentioning

confidence: 99%

Reporting of paediatric exercise-induced respiratory symptoms by physicians and parents

Pedersen,

Glick,

de Jong

et al. 2024

Preprint

Self Cite

View full text Add to dashboard Cite

Aims of the study: Routinely collected health data are increasingly used for research, however important history items may be incomplete in medical records. We assessed clinical documentation of exercise-induced respiratory symptoms (EIS) by treating physicians and compared with parent-reported EIS for the same children. Methods: We analysed data from the Swiss Paediatric Airway Cohort (SPAC), a multicentre observational study of children treated in Swiss outpatient pulmonology clinics. We included children 6 to 17 years of age who were referred to a paediatric pulmonologist for evaluation of EIS. Features of EIS recorded by physicians were extracted from outpatient clinical letters transmitted to the referring physician, while parent-reported EIS data were collected from a standardized questionnaire completed at SPAC enrolment. We calculated agreement between physician-documented and parent-reported EIS characteristics using Cohens and Fleisss kappa. Results: Of 1669 children participating in SPAC (2017-2019), 193 (12%) met the inclusion criteria, of whom 48% were girls. Physicians provided detailed information on EIS in 186 (96%) outpatient clinical letters. Documented characteristics included: type of physical activity triggering EIS (69%), localisation of EIS in chest or throat (48%), respiratory phase of EIS (45%), and timing of EIS during or after exercise (37%). Previous bronchodilator use (94%) and its effect on EIS (88%) were consistently documented by physicians. The clinical letters of children diagnosed with dysfunctional breathing more often contained detailed EIS characteristics than for children diagnosed with asthma. The agreement between physician-documented and parent-reported EIS was moderate for use of bronchodilators (k=0.53) and poor to fair for all other features (k=0.01-0.36). Conclusion: This study highlights that outpatient clinical letters may lack some details on EIS characteristics, information which parents could provide. A standardized and detailed method for documenting paediatric respiratory symptoms in the coordinated data infrastructure may enhance future analyses of routinely collected health data.

show abstract

Section: Methodsmentioning

confidence: 99%