Stand Up For Epilepsy San Diego photo-shoot: a personal odyssey

Kaufman, Kenneth R.; Kaufman, Nathaniel D.

doi:10.1684/epd.2013.0585

Cited by 4 publications

(6 citation statements)

References 23 publications

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“…A key psychological motivation consistent with the literature is 'not letting epilepsy stop me.' This confirms a common sentiment for PWE in relation to exercise as well as in everyday life [4,5,10,19,20]. This motivational strategy is important to note as it shows that PWE feel that through exercising, despite having uncontrolled seizures, they are gaining some control of their health.…”

Section: Discussionsupporting

confidence: 70%

“…Although both qualitative and quantitative research have presented the positive impact of sports and exercise for a person with epilepsy [1-3, 5, 6], the prevalence of regular exercise for a person with epilepsy is lower compared to the general public [7], as there are still common barriers (both physical and psychosocial) that prevent many PWE from feeling the benefits of exercise [4,5,8]. The main barriers to sports and exercise reported are fear of the seizure occurring [4,8], fear of seizure-related injuries [9], stigma [5,10] and incorrect advice from medical professionals [4,5,11,12,13]. As a result, this inactivity has shown to cause social isolation, low self-esteem, weight gain, and depression [5,9,11].…”

Section: Introductionmentioning

confidence: 99%

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How do you exercise with epilepsy? Insights into the barriers and adaptations to successfully exercise with epilepsy

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Ellis‐Hill

2017

Epilepsy & Behavior

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Exercise has been shown to be a physiological and psychological benefit for people with epilepsy (PWE). However, barriers prevent many PWE from exercising safely and confidently. This research explored current perceived barriers to exercise and adaptation techniques used by PWE in order to maintain physical activity levels. Three focus groups (2-3 participants per group) and three semi-structured interviews were conducted (11 participants total). Constructive grounded theory was used to frame the study and analyse the findings, presenting new insight into the motivation, perceived barriers, and adaptation techniques used to exercise. The main motivator to maintain physical activity levels was the benefit of exercise on physical and mental health. This was shown in an increase in mood, higher social interaction, and perceived improvement in overall physical health as a result of exercise. Current barriers to exercise included a fear of injury, lack of social support, and exercise-induced seizures (e.g., through overheating and/or high exercise intensity level). Adaptation techniques used were self-monitoring through the use of technology, reducing exercise frequency and intensity level, and exercising at certain times of the day. The importance of social support was shown to provide increased confidence and positive encouragement to exercise, contrasting with family and friends worrying for his/her safety and medical professionals requesting termination of some physical activities. These findings provide new insight into current adaptation techniques that are used and developed by PWE to overcome common barriers to exercise. These new additions to the literature can lead to further development of such techniques as well as examine current medical professionals' knowledge of the benefits of exercise for PWE.

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Section: Discussionsupporting

confidence: 70%

Section: Introductionmentioning

confidence: 99%

How do you exercise with epilepsy? Insights into the barriers and adaptations to successfully exercise with epilepsy

Collard

Ellis‐Hill

2017

Epilepsy & Behavior

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“…Epilepsy exists in the context of society and culture with global concerns [4,5]. Specifically, to live a life with epilepsy requires consideration of educational, recreational, vocational, economic, marital, and parental factors, as well as quality-of-life, and health-care delivery systems in westernized and developing countries, including barriers to health care with associated treatment gap, compliance, cultural competence, and stigma themes [1,4,6,7].…”

mentioning

confidence: 99%

“…As a professor of psychiatry and neurology who, in addition to biological psychiatry, focuses on neuropsychiatry, psychiatric aspects of , I understand all too well the family, educational, psychosocial, vocational, marital, parental, and stigma themes that must be addressed to improve the quality of life of a person with epilepsy [6,7,21]. That Epilepsy & Behavior has taken on the challenge of addressing these topics and has been the leading epilepsy subspecialty journal in multiple areas (Table 1) is very important to me both professionally and personally.…”

mentioning

confidence: 99%

“…And within the Epilepsy & Behavior family, I am finally understood personally and professionally. Where once I wrote regarding completing a personal odyssey, here at Epilepsy & Behavior, I have completed another [7]. As an author, reviewer, and member of the Epilepsy & Behavior and Epilepsy & Behavior Case Report editorial boards, I have created many lasting friendships that have made my life so much richer and meaningful.…”

mentioning

confidence: 99%

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