Stakeholders in Outcome Measures: Review From a Clinical Perspective

Brinker, Mark R.; O’Connor, Daniel P.

doi:10.1007/s11999-013-3265-3

Cited by 20 publications

(10 citation statements)

References 72 publications

(87 reference statements)

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“…Therapy aims to improve quality of life and reduce disability in children with GJH and associated symptoms (38). It is unknown if generic outcome measures alone would enable reporting with adequate validity and sensitivity (39,40). In this present review, the majority of studies administered multiple instruments, combining both PRO and CRO scales.…”

Section: Discussionmentioning

confidence: 99%

Outcome measures for assessing change over time in studies of symptomatic children with hypermobility: a systematic review

Maarj

Coda

Tofts

et al. 2020

Preprint

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Background This study aimed to synthesise outcome measure type and use in interventional or prospective longitudinal studies of children with generalised joint hypermobility (GJH) and associated symptoms. Method Electronic searches of Medline, CINAHL and Embase databases from inception to 16th March 2020 were performed for studies of children with GJH and symptoms between 5-18 years reporting repeated outcome measures collected at least 4 weeks apart. Methodological quality of eligible studies were described using the Downs and Black checklist.Results Six studies comprising of five interventional, and one prospective observational study (total of 388 children) met the inclusion criteria. Interventional study durations were between 2 to 3 months, with up to 10 months post-intervention follow-up, while the observational study spanned 3 years. Three main constructs of pain, function and quality of life were reported as primary outcome measures using 20 different instruments. All but one measure was validated in paediatric populations, but not specifically for children with GJH and symptoms. One study assessed fatigue, reporting disabling fatigue to be associated with higher pain intensity. Conclusions There were no agreed sets of outcome measures for children with GJH and symptoms found. The standardisation of assessment tools across paediatric clinical trials is needed. Four constructs of pain, function, quality of life and fatigue are recommended to be included with agreed upon, validated, objective tools

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Section: Discussionmentioning

confidence: 99%

Outcome measures for assessing change over time in studies of symptomatic children with hypermobility: a systematic review

Maarj

Coda

Tofts

et al. 2020

Preprint

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“…Over the past two decades, collecting clinical outcome data has been promoted by various medical societies, including the American Academy of Orthopedic Surgeons. [33] In 1994, the Academy established the Musculoskeletal Outcomes Data Evaluation and Management System (MODEMS), one of the first CDRs collecting functional patient information. Unfortunately, the program was terminated in 1999 due to limited funding and enrollment.…”

Section: Clinical Registriesmentioning

confidence: 99%

Quality improvement through public reporting: The surgeon scorecard – are we there yet?

Anoushiravani

Sayeed²,

Padela³

et al. 2018

JHA

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As national healthcare reform continues to place greater emphasis on providing high value care, measures designed to track clinical performance remain relatively overlooked. To that extent, several organizations have attempted to create objective grading systems to evaluate orthopaedic surgeon quality and performance. While attempting to address these issues, ProPublica’s Surgeon Scorecard has provoked national debate among patient advocates and healthcare providers. The methodology behind the Scorecard was developed at the Harvard School of Public Health with an aim to provide a more robust means of comparing surgical performance and outcomes for patients and healthcare organizations. Currently, the Scorecard assesses eight elective surgical procedures, including total knee and hip arthroplasty, through the use of the Medicare Claims Dataset. The impact of the Scorecard on orthopaedic practice has yet to be established. In this discussion, we analyze the Scorecard from the perspective of various stakeholders to identify its benefits and shortcomings, as well as offer direction for further improvement.

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“…National initiatives, such as the Patient-Centered Outcomes Research Institute (PCORI), will be important in facilitating the development of systems and methods to improve data collection on a large scale 37 . Professional medical societies can also serve a role in developing and coordinating patient-centered outcomes collection, but participation from individual clinicians remains the foundation of clinical registries.…”

Section: Improving Value In Your Practicementioning

confidence: 99%

Improving Value in Musculoskeletal Care Delivery

Wei

Hawker

Jevsevar

et al. 2015

The Journal of Bone and Joint Surgery-American Volume

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Improving value in musculoskeletal health care has emerged as an important objective in both the United States and Canada. In order to achieve this objective, providers need to have a clear definition of value and an infrastructure for measuring outcomes of interest to patients and costs over the episode of care. Although national patient registries have been established in the United States and Canada, they nevertheless lag behind other registries worldwide in terms of collecting patient-reported outcomes and capturing data from a wide cross-section of hospitals and physicians. With the help of professional medical societies and the creation of national initiatives, patient-reported outcomes data collection on a large scale may be possible, but many challenges remain regarding implementation. Alternatives to the fee-for-service payment model, including pay-for-reporting and pay-for-performance, may help incentivize physicians and health-care providers to obtain and improve on patient-reported outcomes data collection. Other payment reforms, such as bundled payments, have been piloted in certain regions, but their sustainability and long-term success are unclear at this time. Novel health-care delivery strategies aimed at improving quality, coordinating multispecialty care, and enhancing patient participation in shared decision-making have shown promise in improving patient-centered outcomes, but delivery models continue to vary greatly throughout the United States and Canada. The current status of musculoskeletal health-care delivery requires substantial change before the goal of improving patient outcomes and lowering health-care costs can be achieved.

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Stakeholders in Outcome Measures: Review From a Clinical Perspective

Cited by 20 publications

References 72 publications

Outcome measures for assessing change over time in studies of symptomatic children with hypermobility: a systematic review

Outcome measures for assessing change over time in studies of symptomatic children with hypermobility: a systematic review

Quality improvement through public reporting: The surgeon scorecard – are we there yet?

Improving Value in Musculoskeletal Care Delivery

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