Stakeholder perceptions of components of a Parkinson disease care management intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS)

Connor, Karen I.; Siebens, Hilary; Mittman, Brian; McNeese-Smith, Donna; Ganz, David A.; Barry, Frances; Edwards, Lisa K.; McGowan, Michael; Cheng, Eric M.; Vickrey, Barbara G.

doi:10.1186/s12883-020-02011-9

Cited by 4 publications

(24 citation statements)

References 59 publications

(94 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…First, concerning participant responsiveness, survey results at study end indicated engagement by all three stakeholder groups (i.e., patient/participants, CHAPS nurse care managers, and Parkinson’s disease specialists). Their feedback was overall positive [ 20 ]. CHAPS nurse care manager usability responses included facilitators for both the Siebens Domain Management Model and the Notebook and the three attributes: user-friendly, person/patient-centered, and organized.…”

Section: Resultsmentioning

confidence: 99%

“…1 ) [ 21 ] were entered into another table (Table 2 ). Examples for these six types were identified from published CHAPS data [ 14 , 17 , 20 ], quantified where feasible, and added to the table. An additional data source was the Principal Investigator (nurse researcher, KIC) performing on site observation of care delivery and having discussions with CHAPS nurse care managers.…”

Section: Methodsmentioning

confidence: 99%

“…These groups were given names and all data (themes and associated items) were entered into a table (Table 3 ). Then these researchers examined CHAPS nurse care manager activities [ 14 ] and stakeholder perception survey responses [ 20 ] for examples addressing each challenge item and these were added to Table 3 .…”

Section: Methodsmentioning

confidence: 99%

“…Then these researchers examined CHAPS nurse care manager activities [ 14 ] and stakeholder perception survey responses [ 20 ] for examples addressing each challenge item and these were added to Table 3 .…”

Section: Methodsmentioning

confidence: 99%

“…The CHAPS intervention improved care quality through increased adherence to the 18 PD quality of care indicators [ 17 ] relative to usual care. We subsequently published details of the CHAPS implementation [ 14 ] and the overall positive feedback provided by stakeholders (CHAPS nurse care managers, Parkinson’s disease specialists, and patients/participants) [ 20 ].…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Implementation fidelity of a nurse-led RCT-tested complex intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS) in meeting challenges in care management

et al. 2022

Self Cite

View full text Add to dashboard Cite

Background Parkinson’s disease (PD) complexity poses challenges for individuals with Parkinson’s, providers, and researchers. A recent multisite randomized trial of a proactive, telephone-based, nurse-led care management intervention - Care Coordination for Health Promotion and Activities in Parkinson’s Disease (CHAPS) - demonstrated improved PD care quality. Implementation details and supportive stakeholder feedback were subsequently published. To inform decisions on dissemination, CHAPS Model components require evaluations of their fidelity to the Chronic Care Model and to their implementation. Additionally, assessment is needed on whether CHAPS addresses care challenges cited in recent literature. Methods These analyses are based on data from a subset of 140 intervention arm participants and other CHAPS data. To examine CHAPS Model fidelity, we identified CHAPS components corresponding to the Chronic Care Model’s six essential elements. To assess implementation fidelity of these components, we examined data corresponding to Hasson’s modified implementation fidelity framework. Finally, we identified challenges cited in current Parkinson’s care management literature, grouped these into themes using open card sorting techniques, and examined CHAPS data for evidence that CHAPS met these challenges. Results All Chronic Care Model essential elements were addressed by 17 CHAPS components, thus achieving CHAPS Model fidelity. CHAPS implementation fidelity was demonstrated by adherence to content, frequency, and duration with partial fidelity to telephone encounter frequency. We identified potential fidelity moderators for all six of Hasson’s moderator types. Through card sorting, four Parkinson’s care management challenge themes emerged: unmet needs and suggestions for providers (by patient and/or care partner), patient characteristics needing consideration, and standardizing models for Parkinson’s care management. CHAPS activities and stakeholder perceptions addressed all these themes. Conclusions CHAPS, a supportive nurse-led proactive Parkinson’s care management program, improved care quality and is designed to be reproducible and supportive to clinicians. Findings indicated CHAPS Model fidelity occurred to the Chronic Care Model and fidelity to implementation of the CHAPS components was demonstrated. Current Parkinson’s care management challenges were met through CHAPS activities. Thus, dissemination of CHAPS merits consideration by those responsible for implementing changes in clinical practice and reaching people in need. Trial registration ClinicalTrials.gov as NCT01532986, registered on January 13, 2012.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Implementation fidelity of a nurse-led RCT-tested complex intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS) in meeting challenges in care management

et al. 2022

Self Cite

View full text Add to dashboard Cite

show abstract

Depression and Anxiety Management in Parkinson Disease

José

Cheesman

et al. 2021

Journal of Neuroscience Nursing

View full text Add to dashboard Cite

BACKGROUND: Depression and anxiety are common but underrecognized and undertreated nonmotor symptoms of Parkinson disease (PD) due to their diagnostic criteria overlapping with other PD symptoms, limited randomized controlled studies in this specific population, and the need for multidisciplinary expertise. The purpose of this article is to offer evidence-based solutions for managing comorbid depression and anxiety in patients with PD through a case study analysis. CASE STUDY: A case study is used to illustrate the somatic manifestations of anxiety in PD that leads to diagnostic challenge and multidisciplinary management. MANAGEMENT CONSIDERATIONS: The appropriate use of screening tools, pharmacological and nonpharmacological management, and education are important interventions to consider when treating depression and anxiety in PD. CONCLUSION: Effective management requires accurate assessments, individualized treatment modalities, and patient education. Nurses who are knowledgeable about the effects and management of mood disorders in PD can play an integral role in the multidisciplinary team approach for assessment, patient and caregiver education, and treatment plan implementation.

show abstract

Self-management Interventions for People With Parkinson Disease: Scoping Review

Milne‐Ives¹,

Carroll²,

Meinert³

2022

J Med Internet Res

View full text Add to dashboard Cite

Background Parkinson disease can impose substantial distress and costs on patients, their families and caregivers, and health care systems. To address these burdens for families and health care systems, there is a need to better support patient self-management. To achieve this, an overview of the current state of the literature on self-management is needed to identify what is being done, how well it is working, and what might be missing. Objective The aim of this scoping review was to provide an overview of the current body of research on self-management interventions for people with Parkinson disease and identify any knowledge gaps. Methods The PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) and Population, Intervention, Comparator, Outcome, and Study type frameworks were used to structure the methodology of the review. Due to time and resource constraints, 1 reviewer systematically searched 4 databases (PubMed, Ovid, Scopus, and Web of Science) for the evaluations of self-management interventions for Parkinson disease published in English. The references were screened using the EndNote X9 citation management software, titles and abstracts were manually reviewed, and studies were selected for inclusion based on the eligibility criteria. Data were extracted into a pre-established form and synthesized in a descriptive analysis. Results There was variation among the studies on study design, sample size, intervention type, and outcomes measured. The randomized controlled trials had the strongest evidence of effectiveness: 5 out of 8 randomized controlled trials found a significant difference between groups favoring the intervention on their primary outcome, and the remaining 3 had significant effects on at least some of the secondary outcomes. The 2 interventions included in the review that targeted mental health outcomes both found significant changes over time, and the 3 algorithms evaluated performed well. The remaining studies examined patient perceptions, acceptability, and cost-effectiveness and found generally positive results. Conclusions This scoping review identified a wide variety of interventions designed to support various aspects of self-management for people with Parkinson disease. The studies all generally reported positive results, and although the strength of the evidence varied, it suggests that self-management interventions are promising for improving the care and outcomes of people with Parkinson disease. However, the research tended to focus on the motor aspects of Parkinson disease, with few nonmotor or holistic interventions, and there was a lack of evaluation of cost-effectiveness. This research will be important to providing self-management interventions that meet the varied and diverse needs of people with Parkinson disease and determining which interventions are worth promoting for widespread adoption.

show abstract

Stakeholder perceptions of components of a Parkinson disease care management intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS)

Cited by 4 publications

References 59 publications

Implementation fidelity of a nurse-led RCT-tested complex intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS) in meeting challenges in care management

Implementation fidelity of a nurse-led RCT-tested complex intervention, care coordination for health promotion and activities in Parkinson’s disease (CHAPS) in meeting challenges in care management

Depression and Anxiety Management in Parkinson Disease

Self-management Interventions for People With Parkinson Disease: Scoping Review

Contact Info

Product

Resources

About