Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study

Abstract

Background Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy. Methods A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2. Results Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained. Conclusion This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy.

The psychosocial impact of eye-gaze assistive technology on everyday life of children and adults

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“From All, To All”: Implementing a collaborative online conference to reflect on the daily living of individuals with cerebral palsy

“…There has also been a recent culture shift in health services research, with individuals with disabilities and their families being engaged as partners in research and in clinical practice (Badawi et al, 2020; Jackman et al, 2022; Karlsson et al, 2021; Morris et al, 2011; Nguyen et al, 2019; Pozniak et al, 2021; Schiariti et al, 2015). Developing a community of engagement may increase the likelihood that the knowledge creation is tailored by the people about whom the research is being done.…”

A trained communication partner’s use of responsive strategies in aided communication with three adults with Rett syndrome: A case report

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