Stability of Initial Autism Spectrum Disorder Diagnoses in Community Settings

Daniels, Amy; Rosenberg, Rebecca E.; Law, J. Kiely; Lord, Catherine; Kaufmann, Walter E.; Law, Paul A.

doi:10.1007/s10803-010-1031-x

Cited by 59 publications

(33 citation statements)

References 32 publications

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“…Daniels et al [20] analyzed parent questionnaire data from the American Interactive Autism Network (IAN) Research data base for 7,600 children with ASD. Parents were asked if their child’s current diagnosis (at mean age 7.6 years [SD = 3.9]) was different to their child’s first diagnosis.…”

Section: Discussionmentioning

confidence: 99%

International Survey of Speech-Language Pathologists’ Practices in Working with Children with Autism Spectrum Disorder

Gillon

Hyter

Fernandes

et al. 2017

Folia Phoniatr Logop

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Objective: Autism spectrum disorder (ASD) is a complex neurodevelopmental impairment. To better understand the role of speech-language pathologists (SLPs) in different countries in supporting children with ASD, the International Association of Logopedics and Phoniatrics (IALP) Child Language Committee developed a survey for SLPs working with children or adolescents with ASD. Method and Participants: The survey comprised 58 questions about background information of respondents, characteristics of children with ASD, and the role of SLPs in diagnosis, assessment, and intervention practices. The survey was available in English, French, Russian, and Portuguese, and distributed online. Results: This paper provides a descriptive summary of the main findings from the quantitative data from the 1,114 SLPs (representing 35 countries) who were supporting children with ASD. Most of the respondents (91%) were experienced in working with children with ASD, and the majority (75%) worked in schools or early childhood settings. SLPs reported that the children’s typical age at diagnosis of ASD on their caseload was 3–4 years, completed mostly by a professional team. Conclusions: The results support positive global trends for SLPs using effective practices in assessment and intervention for children with ASD. Two areas where SLPs may need further support are involving parents in assessment practices, and supporting literacy development in children with ASD.

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Section: Discussionmentioning

confidence: 99%

International Survey of Speech-Language Pathologists’ Practices in Working with Children with Autism Spectrum Disorder

Gillon

Hyter

Fernandes

et al. 2017

Folia Phoniatr Logop

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“…13,15 Factors associated with a change in diagnosis from ASD to non-ASD included earlier age of ASD diagnosis, diagnosis of PDD-NOS instead of autism, less developmental deficit at 2 years, fewer repetitive behaviors at 2 years, absence of developmental regression (or loss of previously acquired skills), and total hours of therapy between 2 and 3 years of age. 10,11,16 Children diagnosed with an ASD at 30 months or younger are especially likely to have a change in diagnosis from ASD to non-ASD. 15 Although past studies have enhanced our understanding of the course of ASDs in clinical settings, conflicting reports reveal the need to better assess population-level changes in ASD diagnoses and whether shifts in diagnoses of ASD to non-ASD are changing over time.…”

Section: Index Termsmentioning

confidence: 99%

“…This finding contradicts other studies that suggest ASD diagnoses are less stable over time if the child was first diagnosed with pervasive developmental disorder-not otherwise specified (PDD-NOS) rather than autistic disorder. 12,16 Our subtype data could only be categorized into autism, other ASD, and ASD subtype not stated because some children had a 299.8 billing code, which applies to both PDD-NOS and Asperger's disorder. Nonetheless, this particular finding suggests that autism spectrum diagnoses are more stable than subtype diagnoses, possibly because the subtype of PDD-NOS includes a broad range of symptoms and functional impairments.…”

mentioning

confidence: 99%

Retention of Autism Spectrum Diagnoses by Community Professionals

Wiggins¹,

Baio²,

Schieve³

et al. 2012

Journal of Developmental &Amp; Behavioral Pediatrics

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Objective-Past research is inconsistent in the stability of autism spectrum disorder (ASD) diagnoses. The authors therefore sought to examine the proportion of children identified from a population-based surveillance system that had a change in classification from ASD to non-ASD and factors associated with such changes.Methods-Children with a documented age of first ASD diagnosis noted in surveillance records by a community professional (n = 1392) were identified from the Autism and Developmental Disabilities Monitoring Network. Children were considered to have a change in classification if an ASD was excluded after the age of first recorded ASD diagnosis. Child and surveillance factors were entered into a multivariable regression model to determine factors associated with diagnostic change.Results-Only 4% of our sample had a change in classification from ASD to non-ASD noted in evaluation records. Factors associated with change in classification from ASD to non-ASD were timing of first ASD diagnosis at 30 months or younger, onset other than developmental regression, presence of specific developmental delays, and participation in a special needs classroom other than autism at 8 years of age.Conclusions-Our results found that children with ASDs are likely to retain an ASD diagnosis, which underscores the need for continued services. Children diagnosed at 30 months or younger are more likely to experience a change in classification from ASD to non-ASD than children diagnosed at 31 months or older, suggesting earlier identification of ASD symptoms may be associated with response to intervention efforts or increased likelihood for overdiagnosis.Address for reprints: Lisa D. Wiggins, PhD, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, NCB-DDD/CDC, 1600 Clifton Road, Mail Stop E-86, Atlanta, GA 30033; lwiggins@cdc.gov. Disclosure: C.E.R. receives payments for a limited number of trainings on autism assessment. The other authors declare no conflict of interest.The findings and conclusions in this report are those of the authors and do not necessarily represent the views of the Centers for Disease Control and Prevention. Autism spectrum disorders (ASDs) are developmental disabilities that affect social, communication, and behavioral development and include the diagnoses of autistic disorder, pervasive developmental disorder-not otherwise specified (PDD-NOS), and Asperger's disorder. 1 According to the Centers for Disease Control and Prevention (CDC), an average of 1 in 88 children in the United States currently have an ASD, which is higher than estimates previously reported but still a conservative estimate. 2,3 ASD symptoms typically emerge in the first 3 years of life, and earlier identification and intervention are often associated with improved developmental outcomes. [4][5][6][7] Yet the pattern of improvement in ASD symptoms is highly variable and can differ across domains of development. 8 Despite the possibility of symptom improvement, most st...

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“…In assessments conducted by properly trained clinicians using standardised instruments, autistic disorder (AD) and Asperger's disorder (AsD) are reliable diagnoses that can be consistently distinguished from each other and from non-PDD (Mahoney et al 1998). By contrast pervasive developmental disorder-not otherwise specified (PDD-NOS) appears to be an unreliable diagnosis in research (Mahoney et al 1998) and community settings (Daniels et al 2010).…”

Section: Introductionmentioning

confidence: 99%

High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families

Calzada

Pistrang

Mandy

2011

J Autism Dev Disord

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We used framework analysis to investigate the utility of pervasive developmental disorder diagnoses, interviewing young people (aged 9-16 years) with high-functioning autistic disorder (AD) and Asperger's disorder (AsD), and their parents. Twenty two participants from ten families described both gains and costs resulting from diagnosis. Perceived advantages of AD and AsD diagnosis were increased understanding and practical support, and parental empowerment. Disadvantages included the effects of stigma and concerns about validity. Participants tended to consider AsD and AD as interchangeable terms. Findings suggest that the utility of AD and AsD depends upon both their validity and how these diagnoses are received in their cultural, economic and legislative context. Improvement of post-diagnostic services will improve the utility of AD and AsD.

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Stability of Initial Autism Spectrum Disorder Diagnoses in Community Settings

Cited by 59 publications

References 32 publications

International Survey of Speech-Language Pathologists’ Practices in Working with Children with Autism Spectrum Disorder

International Survey of Speech-Language Pathologists’ Practices in Working with Children with Autism Spectrum Disorder

Retention of Autism Spectrum Diagnoses by Community Professionals

High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families

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