Spousal adjustment to a postmarital disability in one partner.

Feigin, Rena

doi:10.1037/h0089243

Cited by 15 publications

(12 citation statements)

References 42 publications

(49 reference statements)

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“…Spouses have also reported that they have a stronger fear of separation and a higher sense of dependency as a result of SCI. 1,26,27 The spouses of SCI patients who in most cases are also the carers were reported to have much stress related to the injury in aspects of ®nancial, psychological, marital and social relationships. 9,11,13 Kreuter 28 reported that care giving often changes the balance of power in the marriage.…”

Section: Discussionmentioning

confidence: 99%

Quality of life of primary caregivers of spinal cord injury survivors living in the community: controlled study with short form-36 questionnaire

Ünalan

Gençosmanoğlu²,

Akgün

et al. 2001

Spinal Cord

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Objective:To compare the quality of life scores of primary caregivers of spinal cord injury survivors living in the community with healthy age matched-population based controls and to determine the relationship between some severity parameters related with spinal cord injury and the quality of life scores of primary caregivers. Setting: University hospital, rehabilitation centre. Methods: Fifty primary caregivers of spinal cord injured patients living in the community and 40 healthy age-matched controls completed SF-36 (short form-36) questionnaire forms. Questionnaires were administered by interviewers who were physiatrists and the authors of the present study. All the patients were rehabilitated by the authors and data about the duration of injury, lesion levels, ASIA scores, degree of spasticity, presence of bladder and bowel incontinence and pressure sores were gathered from the hospital recordings and/or by physical examinations during control visits when the primary caregivers were administered the questionnaires. Results: Quality of life scores measured by SF-36 were signi®cantly low in the primary caregivers group compared to age-matched healthy population based controls. No signi®cant relation was demonstrated between the quality of life scores of primary caregivers and parameters such as the duration of injury, lesion levels, ASIA scores, degree of spasticity, bladder and/or bowel incontinence and pressure sores respectively. Conclusion: According to the results of the present study, being a primary caregiver of a spinal cord injured victim signi®cantly interferes with quality of life; some severity parameters related to the injury however do not seem to have an additional impact on the primary caregiver's life quality. Spinal Cord (2001) 39, 318 ± 322

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Section: Discussionmentioning

confidence: 99%

Quality of life of primary caregivers of spinal cord injury survivors living in the community: controlled study with short form-36 questionnaire

Ünalan

Gençosmanoğlu²,

Akgün

et al. 2001

Spinal Cord

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“…An illness at this stage of family lifecycle is often associated with feelings of failure, guilt towards children, fatigue and emotional burnout. The sixth stage in the family lifecycle involves focusing on health problems. The spouse may lack the emotional and physical strength to fight an illness at this stage of the couple's life [9,10]. If one of the children with chronic disease is still living with his/her parents, another solution may be warranted in order to take further care of the sick person.…”

Section: The Impact Of Illness Upon the Family's Lifecyclementioning

confidence: 99%

The impact of chronic disease on the family

Goldstein

Kenet

2002

Haemophilia

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resUMen Se describen las alteraciones estructurales y emocionales de las familias con uno o más miembros enfermos de Huntington, en función de los diferentes síntomas, del afectado (descendientes, progenitores) y de las diferentes etapas. Consideramos que los servi-cios de ayuda a la familia deben estar compuestos por profesionales expertos en las necesidades específicas de esta enfermedad y que deben ayudar a planificar y diseñar las ayudas de manera individual, adecuada y flexible. Esta ayuda debe centrarse en superar el im-pacto de la enfermedad, en proporcionar información relevante, en buscar soluciones prácticas, en dar apoyo emocional, en diseñar los cuidados necesarios en cada caso y etapa, y en disminuir el miedo al futuro. Palabras clave. Sistema familiar. Reacciones psicológi-cas. Terapia Familiar. Enfermedad de Huntington. Tras-tornos cognitivos. Trastornos del movimiento. ABsTrACT This article describes the structural and emotional disturbances in families with one or more members affected by Huntington's disease, according to the different symptoms, the affected member (offspring, parent) and the different stages of the disease. We consider that support services to the family should be made up of professionals who are specialists in the specific needs of the disease and who should help to plan and design individual, suitable and flexible support. This support should focus on overcoming the impact of the disease, providing relevant information, seeking practical solutions, giving emotional support, designing specific care in each case and each stage, and reducing fear of the future.

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“…sex, job, or travelling), and how well the couple is able to balance the limitations of the illness and come to terms with it Strauss 1988, 1993). Studies indicate that spouses of persons with chronic illness tended to report higher rates of depression, greater use of psychotropic drugs, poorer self-reported health, more relinquished social activities, and an increased number of new roles and responsibilities (Gilliss 1991, Pruchno and Potashnik 1989, Manne and Zautra 1990, Feigin 1994.…”

Section: Introductionmentioning

confidence: 98%

Experience of hypoglycemia among insulin dependent diabetics and its impact on the family

Rajaram

1997

Sociology Health & Illness

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This study explores the biographical disruption that occurs as a result of a hypoglycemic episode (or insulin reaction) among people with insulin dependent diabetes. It focuses on the process of biographical reconstruction that sufferers and their spouses go through, while striving to maintain a positive selfworth in the 'world of health'. This paper is a qualitative study of twenty-three people with diabetes in the stable phase of the illness and their spouses. The findings indicate that hypoglycemia has profound effects on the lives of people with diabetes and their families. It calls forth a renegotiation of the personal and social identities of the sufferer. The intensity, unpredictability, and risk of physical harm of an insulin reaction, all contribute to the complexity of the illness experience. Management of an insulin reaction involves an ongoing discourse between patients and their physical states, their partners, the medical professionals, and the social and ideological constraints, within a social and cultural context. The need for health professionals to adopt a more holistic approach giving due considerations to the everyday behavioural and emotional demands of hypoglyoemia is underscored.

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Spousal adjustment to a postmarital disability in one partner.

Cited by 15 publications

References 42 publications

Quality of life of primary caregivers of spinal cord injury survivors living in the community: controlled study with short form-36 questionnaire

Quality of life of primary caregivers of spinal cord injury survivors living in the community: controlled study with short form-36 questionnaire

The impact of chronic disease on the family

Experience of hypoglycemia among insulin dependent diabetics and its impact on the family

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