Spirituality in palliative home care: a framework for the clinician

Vermandere, Mieke; Lepeleire, Jan De; Mechelen, Wouter Van; Warmenhoven, Franca; Thoonsen, Bregje; Aertgeerts, Bert

doi:10.1007/s00520-012-1626-1

Cited by 17 publications

(15 citation statements)

References 34 publications

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“…The identified variations in the level of detail in reporting make it difficult for the reader to appraise to quality of the study design, its conduct, and the resulting outcomes. For example, across the assessed studies, it was not always clear how the synthesis of responses in one in this review illustrate how a sound and substantial reporting of essential parameters of the applied Delphi technique is even possible with limited space (e.g., 35,36,39,42,44,[47][48][49][51][52][53]59,60,[62][63][64] );…”

Section: The Quality Of Reportingmentioning

confidence: 99%

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

et al. 2017

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Substantial variation was found concerning the quality of the study conduct and the transparency of reporting of Delphi studies used for the development of best practice guidance in palliative care. Since credibility of the resulting recommendations depends on the rigorous use of the Delphi technique, there is a need for consistency and quality both in the conduct and reporting of studies. To allow a critical appraisal of the methodology and the resulting guidance, a reporting standard for Conducting and REporting of DElphi Studies (CREDES) is proposed.

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Section: The Quality Of Reportingmentioning

confidence: 99%

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

et al. 2017

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“…With the above in mind, we have chosen to adopt the construct of spirituality/religiosity to include spiritual/religious needs identified and defined by the patients themselves, no matter how they understand it [ 7 ]. It is held by many authors that while physical assistance is given to HIV/AIDS patients, their spiritual needs should be addressed in order to provide holistic care in all stages of their illnesses [ 56 , 120 , 121 ].…”

Section: Introductionmentioning

confidence: 99%

Spirituality/Religiosity: A Cultural and Psychological Resource among Sub-Saharan African Migrant Women with HIV/AIDS in Belgium

et al. 2016

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Spirituality/religion serves important roles in coping, survival and maintaining overall wellbeing within African cultures and communities, especially when diagnosed with a chronic disease like HIV/AIDS that can have a profound effect on physical and mental health. However, spirituality/religion can be problematic to some patients and cause caregiving difficulties. The objective of this paper was to examine the role of spirituality/religion as a source of strength, resilience and wellbeing among sub-Saharan African (SSA) migrant women with HIV/AIDS. A qualitative study of SSA migrant women was conducted between April 2013 and December 2014. Participants were recruited through purposive sampling and snowball techniques from AIDS Reference Centres and AIDS workshops in Belgium, if they were 18 years and older, French or English speaking, and diagnosed HIV positive more than 3 months beforehand. We conducted semi-structured interviews with patients and did observations during consultations and support groups attendances. Thematic analysis was used to analyse the data. 44 women were interviewed, of whom 42 were Christians and 2 Muslims. None reported religious/spiritual alienation, though at some point in time many had felt the need to question their relationship with God by asking “why me?” A majority reported being more spiritual/religious since being diagnosed HIV positive. Participants believed that prayer, meditation, regular church services and religious activities were the main spiritual/religious resources for achieving connectedness with God. They strongly believed in the power of God in their HIV/AIDS treatment and wellbeing. Spiritual/religious resources including prayer, meditation, church services, religious activities and believing in the power of God helped them cope with HIV/AIDS. These findings highlight the importance of spirituality in physical and mental health and wellbeing among SSA women with HIV/AIDS that should be taken into consideration in providing a caring and healthy environment.

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“…This has been especially true in the field of palliative care. [7][8][9] Data indicate that a focus on spirituality improves patients' health outcomes, including quality of life. [10][11][12][13][14][15][16][17][18][19][20][21][22] Conversely, negative spiritual and religious beliefs can cause distress and increase the burdens of illness.…”

Section: Introductionmentioning

confidence: 99%

Improving the Spiritual Dimension of Whole Person Care: Reaching National and International Consensus

Puchalski

Vitillo²,

Hull

et al. 2014

Journal of Palliative Medicine

672

444

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conference built on the 2012 conference to produce a set of standards and recommended strategies for integrating spiritual care across the entire health care continuum, not just palliative care. Deliberations were based on evidence that spiritual care is a fundamental component of high-quality compassionate health care and it is most effective when it is recognized and reflected in the attitudes and actions of both patients and health care providers.

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Spirituality in palliative home care: a framework for the clinician

Abstract: The experts agreed to the 14 main elements of spiritual care in palliative home care. There were no differences in this regard between the stakeholder groups. This study provides a first step towards the development of an interdisciplinary spiritual care model in palliative home care.

Cited by 17 publications

References 34 publications

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Spirituality/Religiosity: A Cultural and Psychological Resource among Sub-Saharan African Migrant Women with HIV/AIDS in Belgium

Improving the Spiritual Dimension of Whole Person Care: Reaching National and International Consensus

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