Spiritual Needs of Families With Bereavement and Loss of an Infant in the Neonatal Intensive Care Unit: A Qualitative Study

Sadeghi, Narges; Hasanpour, Marzieh; Heidarzadeh, Mohamad; Alamolhoda, A. A.; Waldman, Elisha

doi:10.1016/j.jpainsymman.2015.12.344

Cited by 30 publications

(25 citation statements)

References 24 publications

(47 reference statements)

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“…Along with these parenting activities, parents experienced closeness or guilt and felt deeply responsible for protecting their deceased baby from exposure or damage and for safeguarding his or her dignity (cf. Sadeghi, Hasanpour, Heidarzadeh, Alamolhoda, & Waldman, 2016). Thus, for the parents, the baby's vulnerability and the duty of "caring" for and protecting him or her continued postmortem.…”

Section: End-of-lifementioning

confidence: 99%

“You Can Only Give Warmth to Your Baby When It’s Too Late”: Parents’ Bonding With Their Extremely Preterm and Dying Child

Ábrahám

Hendriks

2017

Qual Health Res

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This study on end-of-life decisions in extremely preterm babies shows that the parents under study experience a multitude of stressors due to the immediate separation after birth, the alienating setting of the neonatal intensive care unit (NICU), the physical distance to the child, medical uncertainties, and upcoming decisions. Even though they are considered to be parents (assigned parenthood), they cannot act as primary caregivers. Instead, they depend on professional instructions for access and care. Embodied parenthood can be experienced only at the end-of-life, that is, during the dying trajectory and after the child's death. Professionally supporting parents during this compressed process (from assigned and distant to embodied parenthood) contributes fundamentally to their perception of being a family and supports their mourning. This calls for the further establishment of palliative and bereavement care concepts in neonatology.

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Section: End-of-lifementioning

confidence: 99%

“You Can Only Give Warmth to Your Baby When It’s Too Late”: Parents’ Bonding With Their Extremely Preterm and Dying Child

Ábrahám

Hendriks

2017

Qual Health Res

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“…Exploring the impact of PPC not only at the end of life but as a continuum and as a standard practice from diagnosis, time of birth, or admission to the NICU regardless of expected outcomes and prognosis might help meet the goal of SPPC to enhance the care for patients and their families by meeting their physical, psychological, social, and spiritual needs. [41][42][43] More research is needed to determine the full impact of SPPC in neonates with life-limiting conditions. Future studies should focus on comparing models of care that will help identify the best way to deliver SPPC.…”

Section: Discussionmentioning

confidence: 99%

Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review

et al. 2020

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Objective The aim of this study is to assess the impact of specialized pediatric palliative care (PPC) on neonates with life-limiting conditions compared to standard care. Study design MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase databases were searched from January 2000 to September 2018. Randomized clinical trials, experimental or observational studies, and secondary administrative database analyses published in English, Spanish, French, and German were included. Two independent reviewers extracted data, and used the Newcastle-Ottawa Scale and the Cochrane Risk of Bias Tool for quality analysis. Discrepancies were resolved as a team. Results From the 37,788 records obtained, only eight articles met the inclusion criteria. A meta-analysis was not possible due to the heterogeneity in how the outcomes were defined; however, a qualitative synthesis of the results was possible; organizing outcomes into eight different categories: psychological, social and spiritual support; communication; location of care; symptom management; bereavement care; predicted versus actual neonatal outcomes; and parental coping, stress, and satisfaction. Conclusion Specialized versus may have an impact on neonates with life-limiting conditions and their families. More studies that evaluate the impact of specialized versus in neonates with sound statistical analysis is warranted.

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“…On the other hand, the diversity of cultural and religious conditions prevailing in different cities of Iran requires regional studies. This study was conducted in Isfahan, a strongly religious city; the term "religion" is more commonly used by residents than "spirituality" (Sadeghi, Hasanpour, Heidarzadeh, Alamolhoda, & Waldman, 2016). Isfahan is comprised of a 99 percent Muslim majority and minority communities of Christians, Jews, and Zoroastrians.…”

Section: Introductionmentioning

confidence: 99%

Dimensions of the Spiritual Needs of Muslim Chronic Patients: A Qualitative Study

Irajpur¹,

Maryam²

2018

Journal of Muslim Mental Health

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Spiritual Needs of Families With Bereavement and Loss of an Infant in the Neonatal Intensive Care Unit: A Qualitative Study

Abstract: The results of this study created a new vision in addressing spiritual needs of Iranian families who experience the death of a newborn.

Cited by 30 publications

References 24 publications

“You Can Only Give Warmth to Your Baby When It’s Too Late”: Parents’ Bonding With Their Extremely Preterm and Dying Child

“You Can Only Give Warmth to Your Baby When It’s Too Late”: Parents’ Bonding With Their Extremely Preterm and Dying Child

Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review

Dimensions of the Spiritual Needs of Muslim Chronic Patients: A Qualitative Study

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