Spinal cord injuries in children and adolescents

Betz, Randall; Mulcahey, M. J.

doi:10.1016/b978-0-444-52137-8.00008-5

Cited by 39 publications

(20 citation statements)

References 140 publications

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“…63,64 When the SCI occurs in adolescence, 78% of children injured at 14 years, 57% of children injured at 15 years, and 50% of children injured at 16 years develop scoliosis that requires either conservative treatment (modifications to wheelchair, bracing) or surgical intervention (spinal fusion). 63,68 Other musculoskeletal problems This variable documents the presence of any other specified musculoskeletal problems not described above. This variable requires the assessor to specify any other type of musculoskeletal problem not captured in the other variables.…”

Section: Sci-related Neuromuscular Scoliosismentioning

confidence: 99%

“…This variable captures the individual's perceptions about the deleterious implications of any of the musculoskeletal challenges above on daily life. The perspective of the individual is important and this variable enables individuals to focus on the impact of musculoskeletal changes on activities relevant to them, whether it is due to spasticity, 76 heterotopic ossification, contracture(s), neuromuscular or skeletal overuse, scoliosis 68,69 or other musculoskeletal problems.…”

Section: Sci-related Neuromuscular Scoliosismentioning

confidence: 99%

“…62 Scoliosis is a known musculoskeletal complication of SCI, particularly when SCI occurs at a younger age. [63][64][65][66][67][68][69] Method of assessment, when a scoliosis is present This variable indicates the method(s) used to determine the presence of neuromuscular scoliosis, for example, observation in sitting; observation in standing; plain radiographs in sitting; or plain radiographs in standing.…”

Section: Sci-related Neuromuscular Scoliosismentioning

confidence: 99%

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International spinal cord injury musculoskeletal basic data set

et al. 2012

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Objectives: To develop an International Spinal Cord Injury (SCI) Musculoskeletal Basic Data Set as part of the International SCI Data Sets to facilitate consistent collection and reporting of basic musculoskeletal findings in the SCI population. Setting: International. Methods: A first draft of an SCI Musculoskeletal Basic Data Set was developed by an international working group. This was reviewed by many different organizations, societies and individuals over 9 months. Revised versions were created successively. Results: The final version of the International SCI Musculoskeletal Basic Data Set contains questions on neuro-musculoskeletal history before spinal cord lesion; presence of spasticity/spasms; treatment for spasticity within the last 4 weeks; fracture(s) since the spinal cord lesion; heterotopic ossification; contracture; the location of degenerative neuromuscular and skeletal changes due to overuse after SCI; SCI-related neuromuscular scoliosis; the method(s) used to determine the presence of neuromuscular scoliosis; surgical treatment of the scoliosis; other musculoskeletal problems; if any of the musculoskeletal challenges above interfere with activities of daily living. Instructions for data collection and the data collection form are freely available on the International Spinal Cord Society (ISCoS) website (www.iscos.org.uk). Conclusion: The International SCI Musculoskeletal Basic Data Set will facilitate consistent collection and reporting of basic musculoskeletal findings in the SCI population.

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Section: Sci-related Neuromuscular Scoliosismentioning

confidence: 99%

Section: Sci-related Neuromuscular Scoliosismentioning

confidence: 99%

Section: Sci-related Neuromuscular Scoliosismentioning

confidence: 99%

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International spinal cord injury musculoskeletal basic data set

et al. 2012

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“…9 Children as young as 6 years of age learn to manage their bladder and begin to participate in their bowel program. 10 Children with SCI are taught skills for independent dressing, body transfers and upright and wheeled mobility.…”

Section: Introductionmentioning

confidence: 99%

“…10 Children with SCI are taught skills for independent dressing, body transfers and upright and wheeled mobility. 9 Current instruments to evaluate treatment outcomes on self-care and mobility have ceiling and floor effects and gaps in content when used with children with SCI. 11 Although one way to address the limitations of outcomes instruments in pediatrics is to develop new instruments, the preferred way, where appropriate, is to establish the lower age limit for existing instruments that are robust and already in the field.…”

Section: Introductionmentioning

confidence: 99%

The spinal cord independence measure (SCIM)-III self report for youth

et al. 2015

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Study design: The items and response scales of the Spinal Cord Independence Measure (SCIM-III) self report (SR) were exposed to formal cognitive testing with children with SCI, and in parallel a survey using the modified Delphi Technique was conducted to engage content experts in an iterative critical review of the SCIM-III SR. Objectives: To evaluate the validity of the SCIM-III SR for pediatric utilization. Setting: United States of America. Methods: Formal cognitive testing was conducted with 17 youths with SCI and required them to read and answer each SCIM-III SR item aloud. Think aloud methodology was used to record details about how youths understood and interpreted items and why they selected a given response. The interviews were audiotaped and transcribed verbatim. Content analysis focused on identifying words that children could not read or understand. In parallel, the Modified Delphi Technique engaged expert therapists to critically review the SCIM-III SR for pediatric utilization. Results: Every SCIM-III SR item and response scale required modification before children were able to read, understand and respond to them. Youth encountered difficulties because of vague terms, medical jargon and complex words and phrases. Three iterative Delphi rounds were required before achieving 80% agreement that items and response scales were written well for children. Conclusion: Our findings informed modifications to every SCIM-III SR item and response scale, producing a pediatric version of the tool that we formally refer to as the SCIM-III SR-Youth (SCIM-III SR-Y).

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Pediatric non‐Hodgkin lymphoma as a rare cause of spinal cord injury: When lymphoma hides in the canal

Zama,

Candela,

Pagano

et al. 2024

Clinical Case Reports

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Key Clinical MessageSpinal cord compression from non‐Hodgkin lymphoma (NHL) should be considered as a potential diagnosis in cases of acute signs of myelopathy in pediatric patients.AbstractSpinal cord compression in pediatric non‐Hodgkin lymphoma (NHL) is a rare presentation with potential diagnostic challenges. We report on two pediatric patients with NHL who exhibited myelopathy signs as initial presentation. Considering NHL as a differential diagnosis in pediatric patients presenting with spinal cord compression is crucial for optimizing the outcome of these patients.

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Spinal cord injuries in children and adolescents

Cited by 39 publications

References 140 publications

International spinal cord injury musculoskeletal basic data set

International spinal cord injury musculoskeletal basic data set

The spinal cord independence measure (SCIM)-III self report for youth

Pediatric non‐Hodgkin lymphoma as a rare cause of spinal cord injury: When lymphoma hides in the canal

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