Special issue: Quality of life and family quality of life: Recent developments in research and application

Brown, Roy I.; Schippers, A.

doi:10.3109/13668250.2016.1234958

Cited by 9 publications

(2 citation statements)

References 2 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…For most families, to achieve good family good quality of life all family members have to be "healthy, have a safe place to live, have a stable income, enjoy their lives together, have opportunities to learn and improve, benefit from their community supports and resources, and experience fulfilling social relationships with others" [37]. Family relations play an important role in the perceptions of individuals, and drives their behaviour, which is important for all families [38], including those with members affected by leprosy, podoconiosis and lymphatic filariasis.…”

Section: Study Objectivesmentioning

confidence: 99%

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

Noordende

Aycheh

Schippers³

2020

PLoS Negl Trop Dis

Self Cite

View full text Add to dashboard Cite

Background Several studies have shown that leprosy, podoconiosis and lymphatic filariasis impact individual quality of life. In contrast, family quality of life has not received as much attention despite evidence that families are also affected. This is especially relevant given the crucial role of the family in most societies around the world. This study looks at the impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life. Methodology The study used a cross-sectional design with a qualitative approach. Both semi-structured interviews and focus group discussions were conducted. Participants, persons affected and their family members, were selected by purposive sampling. Data were collected between August and November 2017 in Awi zone, Northwest Ethiopia and analysed by three independent researchers using open, inductive coding and content analysis. Results A total of 86 participants were included in this study: 56 participants in the in-depth interviews and 30 participants in the focus group discussions. We found that participation restrictions, reduced productivity and marginalisation were common. In addition, discrimination in the communities occurred often, often extending to family members of persons affected. Divorce and difficulties in finding a spouse were common for persons affected and their family members. Many persons affected reported mental health problems. While most people got social and physical support from their families, there were a few exceptions. In particular, persons with younger children seemed to lack social support. Having to provide for their affected family member sometimes caused stress, school dropouts and an additional workload. Financial problems and loss of livelihood were reported by almost all participants.

show abstract

Section: Study Objectivesmentioning

confidence: 99%

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

Noordende

Aycheh

Schippers³

2020

PLoS Negl Trop Dis

Self Cite

View full text Add to dashboard Cite

show abstract

“…There are many definitions of Quality of Life (Brown & Faragher, 2018). A life of quality involves having a life of meaning and purpose—however, an individual defines that for themselves.…”

Section: Introductionmentioning

confidence: 99%

Continuing conceptualising QOL through application to lives of young adults with Down syndrome

Faragher,

Lloyd

2023

Policy Practice Intel Disabi

View full text Add to dashboard Cite

Quality of Life (QOL) has been used as a sensitising concept for decades, inviting all to consider the potential for individuals with intellectual and developmental disabilities to live a life full of meaning and purpose. This article presents the outcomes of our deliberations on domains of QOL undertaken for a study investigating lives of young adults with Down syndrome. Various groups have published domains and from these we distilled a list of six: Physical well‐being, Emotional well‐being; Self‐determination; Material well‐being; Personal beliefs and development; and Social inclusion. Our synthesis of domains raised two issues for further deliberation in the community of QOL scholars in the field of intellectual and developmental disability: the place of Information and Communication Technology (ICT) and Rights. ICT has not been considered as a domain but we argue it could be. Rights have been included as a domain by some researchers in previous conceptualisations but we do not. Instead we suggest they may be better placed as an underpinning principle, with fundamental impact on all aspects of QOL. A conclusion we are left with is that domains, while helpful for research, can never be a fixed list. What matters to individuals and society in general in framing lives of meaning and purpose will change over time. Even so, there is still value and need for setting domains for specific research studies.

show abstract

Family Quality of Life, Intellectual and Developmental Disabilities

Brown,

Brown

2023

Encyclopedia of Quality of Life and Well-Being Research

View full text Add to dashboard Cite

Special issue: Quality of life and family quality of life: Recent developments in research and application

Cited by 9 publications

References 2 publications

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

Continuing conceptualising QOL through application to lives of young adults with Down syndrome

Family Quality of Life, Intellectual and Developmental Disabilities

Contact Info

Product

Resources

About