Speaking Up: How Family Members Advocate for Relatives Living with a Mental Illness

Schaffer, Marjorie A.

doi:10.1007/s10597-021-00775-z

Cited by 3 publications

(1 citation statement)

References 22 publications

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“…pRFAs positioned themselves as mutual aid workers 42 whilst connecting with caregivers, in groups or individual meetings, by respecting the expertise and lived experience of all parties in their interactions. Additionally, pRFA participants were also engaged in advocacy efforts 43 as they normalized mental illness, engaged in social and political action by supporting others in a similar situation, and sharing their personal stories. This finding suggests that engaging caregiver peers in supporting other caregivers is an important step toward replacing stigmatizing beliefs about psychosis with self-affirming beliefs, which is considered a central feature of effective stigma reduction campaigns.…”

Section: Discussionmentioning

confidence: 99%

A Thematic Analysis Investigating the Inaugural Psychosis REACH Family Ambassador Peer Training Program

Vaswani-Bye,

McCain,

Blank

et al. 2024

NDT

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Purpose Caregivers of loved ones with psychosis are tasked with navigating a barren care landscape for their loved ones and for themselves. The dearth of resources they face has a negative impact on outcomes for caregivers and their loved ones. The Psychosis REACH program, based on principles from Cognitive Behavioral Therapy for psychosis was developed as a community-based resource for families to address this care gap. A role for family peers called the Psychosis REACH Family Ambassadors (pRFAs) was developed to reinforce skill learning for caregivers by utilizing a task-sharing approach. This qualitative study sought to better understand pRFAs’ experiences in the inaugural training cohort of this program. Patients and Methods Eleven pRFAs participated in semi-structured interviews with research coordinators via teleconference. Questions assessed the quality of the training, challenges and facilitators experienced in their role, and ways in which the program could be improved and expanded. Using thematic analysis, members of the research team coded interviews individually, discussed codes until consensus was reached, and iteratively developed themes based on codes that clustered based on meaning or content. Results This process identified 5 key themes: The development of hope and recovery, the development of solidarity networks, the challenges of navigating boundaries, preferred pedagogical strategies, and the need for more support. Conclusion Overall, the themes developed from this qualitative analysis demonstrate the value and feasibility of developing a caregiver peer network of pRFAs trained in recovery-oriented care and CBTp-informed skills to support other caregivers. Additionally, they highlight the challenges associated with being in the role of a pRFA and further efforts needed to align training content and learning management systems to the needs of pRFA trainees. These findings highlight the importance of expanding access to family peer training programs for the wellbeing of caregivers and loved ones with psychosis alike.

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Section: Discussionmentioning

confidence: 99%

A Thematic Analysis Investigating the Inaugural Psychosis REACH Family Ambassador Peer Training Program

Vaswani-Bye,

McCain,

Blank

et al. 2024

NDT

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The Sacrificed Children: Listening to the Voices of Former Young Carers Supporting Parents with Mental Illness

Yuan,

2024

The British Journal of Social Work

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Numerous studies have indicated that parents who are affected by mental illness experience emotional/behavioural difficulties which can have major impacts on parenting and the child–parent relationship. However, research on the experiences of young carers living with a mentally ill parent and the adversity they face remains comparatively limited. This article reports findings from a qualitative and retrospective study undertaken with nineteen Taiwanese adults who were young carers of parents with mental illness to capture their entire childhood experiences. The study was guided by social constructionism with the aim to listen to the voices of former young carers and explore their sense of responsibility, their response to family and societal expectations and how these affected their lives. The study finds the young carers’ sense of responsibility was grounded on the principle of filial piety, which greatly influenced young carers not only actively in response to the parent’s needs but also in prioritising the parent’s demands. Participants felt responsibility and sacrifice interwoven in the context of their lives. Implications for social services and policy makers are suggested in order to meet the needs of young carers and their families.

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Coping style as a predictor of anxiety in relatives of patients with mental illness-a single-center study

Gao,

Zhao,

et al. 2024

BMC Psychiatry

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Speaking Up: How Family Members Advocate for Relatives Living with a Mental Illness

Cited by 3 publications

References 22 publications

A Thematic Analysis Investigating the Inaugural Psychosis REACH Family Ambassador Peer Training Program

A Thematic Analysis Investigating the Inaugural Psychosis REACH Family Ambassador Peer Training Program

The Sacrificed Children: Listening to the Voices of Former Young Carers Supporting Parents with Mental Illness

Coping style as a predictor of anxiety in relatives of patients with mental illness-a single-center study

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