Spanish LupusPRO: cross-cultural validation study for lupus

Abstract

The Spanish LupusPRO has fair psychometric properties and is now available to be included in clinical trials and in longitudinal studies for testing of responsiveness to change.

Validation of the LupusPRO in Chinese Patients From Hong Kong With Systemic Lupus Erythematosus

“…Of the currently available disease‐targeted PRO tools for SLE (), LupusPRO is the only PRO tool that allows a comprehensive evaluation of both the aspects. The tool has been found to have fair psychometric properties (including measurement equivalence) in different languages and countries () and is responsive to changes in disease activity ().…”

“…Unlike other lupus‐specific questionnaires, such as the UK LupusQoL (), it consists of both 8 health‐related and 4 non–health‐related domains to enable an understanding of the broader burden of the disease. The LupusPRO has been cross culturally adapted and validated in various countries (Canada, Philippines) and different languages, such as Turkish, Spanish, French, and Filipino (). However, it has not been validated in Chinese.…”

Sex Differences in Quality of Life in Patients With Systemic Lupus Erythematosus

“…QoL was measured using the LupusPRO tool , which has been validated in several languages and shows measurement equivalence . The LupusPRO tool has response options on a 1–5 point Likert scale, where 0 = none of the time, 1 = a little of the time, 2 = some of the time, 3 = most of the time, 4 = all of the time, 5 = not applicable (recoded as 0 for scoring).…”

Patient-Reported Outcomes in Systemic Lupus Erythematosus

“…The developers also sought to include issues pertinent to male SLE patients and assess non-HRQOL domains. Cross-cultural validations of the English version of LupusPRO has been established in Canada [76] and the Philippines [77], and the validity of translations into French-Canadian [78], Spanish [79], Turkish [80], and Chinese [81] have also been reported. The 43-item questionnaire includes eight HRQOL domains such as lupus symptoms, physical health, and body image, as well as four non-HRQOL domains including desires/goals and satisfaction with care.…”