“South Dakota's Dying to Know”: A Statewide Survey about End of Life

Schrader, Susan L.; Nelson, Margot L.; Eidsness, LuAnn M

doi:10.1089/jpm.2009.0056

Cited by 22 publications

(14 citation statements)

References 27 publications

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“…1,2 Its holistic, person-centered approach, interdisciplinary involvement, and focus on pain and symptom management are often considered preferable to other care alternatives such as curative treatments (eg, radiation, chemotherapy, surgery) or artificial life-support. 3–5 However, more than 40% of individuals who are eligible for hospice care actually receive it; 6 and, after receiving a life-limiting prognosis, disproportionately lower numbers of qualifying African Americans, Asians, and Hispanics enroll in hospice. 7,8 Public misconceptions and lack of information about hospice are considered important reasons why many patients and families forego these services.…”

Section: Introductionmentioning

confidence: 99%

Perceptions About Hospice From a Community-Based Pilot Study

Dussen

Culler

Cagle

2011

Am J Hosp Palliat Care

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Research investigating the knowledge and attitudes of diverse older adults about hospice care and end-of-life issues is needed to expand service utilization. This pilot study explored an urban area’s perceptions and awareness of hospice through local churches. The sample consisted of 148 adults age 43 and older. Although recruitment efforts resulted in a relatively homogenous sample, findings suggest a lack of knowledge about whether hospice is covered by Medicare, Medicaid, or private insurance. Perceptions of the expense of hospice, however, were not associated with knowledge of coverage. Respondents generally agreed that hospice is important and would recommend its services for their family members.

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Section: Introductionmentioning

confidence: 99%

Perceptions About Hospice From a Community-Based Pilot Study

Dussen

Culler

Cagle

2011

Am J Hosp Palliat Care

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“…Some barriers relate to patients, such as misconceptions about pain and treatments (Schrader, Nelson, & Eidsness, 2009), fears and concerns about pain medications and side effects, reluctance to report pain and symptoms, and complexity of the symptom experience. Other barriers relate to providers, such as lack of knowledge, skills, and time for adequate pain and symptom assessment (Fineberg, Wenger, & Brown-Saltzman, 2006).…”

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confidence: 99%

Pain and symptom management in palliative care and at end of life

Wilkie

Ezenwa

2012

Nursing Outlook

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The purpose of this review is to provide a literature update of the research published since 2004 on pain and symptom management in palliative care and at end of life. Findings suggest that pain and symptom are inadequately assessed and managed even at the end of life. Although not pervasive, there is evidence of racial/ethnic disparities in symptom management in palliative care and at end of life. There is a need for a broader conceptualization and measurement of pain and symptom management as multidimensional experiences. There is insufficient evidence about mechanisms underlying pain at end of life. Although there are advances in the knowledge of pain as a multidimensional experience and the many symptoms that occur sometimes with pain, still gaps remain. One approach of addressing the gaps will involve assessment and management of pain and symptoms as multidimensional experiences in people receiving palliative care and at end of life.

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“…46 When individuals are asked their own preferences (as opposed to what they would want for a family member), sizeable majorities would refuse feeding tubes at the end of life. 47,48 Yet many physicians believe that the feeding tube represents the standard of care and are unaware of data showing its lack of benefit. 49 Aided by market forces, public opinion created an institutional environment in which it was nearly impossible to implement the lessons of ethics and palliative care.…”

mentioning

confidence: 99%