Sources of the Uncertainty Experienced by Women With HPV

Kosenko, Kama Allyn; Hurley, Ryan J.; Harvey, Jackie

doi:10.1177/1049732311424404

Cited by 30 publications

(44 citation statements)

References 44 publications

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“…Prior research has established that, for patients, the experience of illness tends to be accompanied by uncertainty (e.g., Babrow, Kasch, & Ford, 1998;Brashers et al, 2003;Kosenko, Hurley, & Harvey, 2011;Martin, Stone, Scott, & Brashers, 2010;Mishel, 1988Mishel, , 1990. Less commonly, the uncertainty of a patient's loved ones has been documented (e.g., Donovan-Kicken & Bute, 2008;Goldsmith, 2009;Stone & Jones, 2009).…”

Section: Partners' Experience Of Caregivingmentioning

confidence: 96%

Psychosocial Challenges Experienced by Partners of People With Parkinson Disease

Martin¹

2015

Journal of Neuroscience Nursing

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Although researchers have examined issues related to partners providing care for a person with Parkinson disease (PWP), few have explored partners' broader psychosocial experiences. To investigate this underexplored area, individual, in-depth interviews with 23 partners of PWPs were conducted. Participants reported significant psychosocial challenges, including having the PWP withdraw from communication, being unable to "rescue" the PWP, being the recipient of the PWP's frustration, expressing impatience with the PWP, shouldering increased responsibility, being confronted with possibly losing the PWP, losing valued activities, feeling housebound, being unable to predict the PWP's daily well-being, and experiencing uncertainty about future caregiving and disease progression. These results indicate that being the partner of a PWP involves serious, complex psychosocial challenges related to both caregiving and noncaregiving issues. This research highlights the need for a family-centered approach to Parkinson care and provides valuable insight that can inform interventions and nursing practice for this population.

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Section: Partners' Experience Of Caregivingmentioning

confidence: 96%

Psychosocial Challenges Experienced by Partners of People With Parkinson Disease

Martin¹

2015

Journal of Neuroscience Nursing

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“…Uncertainty around positive-HPV test results is high (Kosenko, Hurley, & Harvey, 2012): such as its meaning and separation from other diseases, such as herpes, its progression, and the source of infection. In contrast, HPV has few visible symptoms that are likely to be unintentionally noticed, which may lower symptoms’ salience.…”

Section: Initial Conversations About Positive Hpv Test Resultsmentioning

confidence: 99%

“…The results in this study showed that the relational concerns may infuse the disclosure and initial reactions by attempting to get and give reassurance that the diagnosed person is not tainted by the health condition and their interpersonal relationship remains strong. Tensions between social rejection and disclosure have been reported by women living with HPV (Kosenko, Hurley, & Harvey, 2012). …”

Section: Resultsmentioning

confidence: 99%

Investigating Initial Disclosures and Reactions to Unexpected, Positive HPV Diagnosis

Smith

Hernandez

Catona

2013

Western Journal of Communication

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Initial disclosures of health conditions are critical communication moments. Existing research focuses on disclosers; integrating confidants into studies of initial disclosures is needed. Guided by the disclosure decision-making model (DD-MM; Greene, 2009), this study examined what diagnosed persons and confidants may say when faced with unexpected test results and unexpected disclosures, respectively. Participants (N = 151) recorded an audio-visual message for another person, after imagining that they or the other person had just received unexpected, positive HPV test results. The qualitative analysis revealed four themes: (1) impression management and social distance, (2) invisible symptoms and advice regarding future disclosures, (3) expressing and acknowledging emotional reactions, and (4) misunderstandings and lacking knowledge about HPV. These findings suggested that DD-MM may be a relevant framework for understanding not only when disclosers share, but what disclosers and confidants say in early conversations about new diagnoses. While disclosers’ and confidants’ messages showed marked similarities, important differences appeared. For example, confidants focused on assuaging disclosers’ fear about the consequences, whereas disclosers expressed distress related to their uncertainty about the prognosis of an HPV infection and how to prepare for next steps. The discussion highlighted implications for the DD-MM, HPV disclosures, and future interventions.

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“…As blog members share their information with each other, it is possible that they could become even more confused or misinformed. Misinformation can be a source of uncertainty for individuals with HPV, which can impact coping, disclosure, and thus psychological adjustment [Kosenko, Hurley, & Harvey, 2012]. These findings demonstrate a need for people diagnosed with HPV to be given more accurate and thorough information in a way that is understandable.…”

Section: Discussionmentioning

confidence: 99%

“I have human papillomavirus”: An analysis of illness narratives from the Experience Project

Barnack‐Tavlaris

Serpico

Ahluwalia

et al. 2016

Applied Nursing Research

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Purpose Human papillomavirus (HPV) is the most common sexually transmitted virus worldwide. Our purpose was to examine people's experiences with HPV using narratives posted on a website entitled, Experience Project. Method We conducted a content analysis of 127 HPV narratives to identify stigma, emotion-focused and problem-focused coping, and misinformation. Results Negative self-image was the most commonly identified type of stigma. There were more instances of problem-focused than emotion-focused coping. Sources of confusion were mostly about HPV treatment and side effects/symptoms. Conclusions These findings have implications for how nurses and other health professionals can care for individuals living with HPV. Based on these findings, it would be beneficial for clinics/providers to implement on-line forums where myths about HPV can be debunked and accurate information provided. Both patients and the public need to be better informed about HPV, in order to decrease the negative stigma that can create a mental burden for individuals with HPV.

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Sources of the Uncertainty Experienced by Women With HPV

Cited by 30 publications

References 44 publications

Psychosocial Challenges Experienced by Partners of People With Parkinson Disease

Psychosocial Challenges Experienced by Partners of People With Parkinson Disease

Investigating Initial Disclosures and Reactions to Unexpected, Positive HPV Diagnosis

“I have human papillomavirus”: An analysis of illness narratives from the Experience Project

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