Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis

Tatterton, Michael J; Honour, Alison; Lyon, Judith Anne; Kirkby, Lorna; Newbegin, Mary; Webster, Jo

doi:10.1080/13576275.2021.1929897

Cited by 7 publications

(6 citation statements)

References 38 publications

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“…Similar findings have been reported by practitioners working in critical and complex care, both in the United Kingdom 24 and internationally 25,26 . The findings that relate to family-centered care have been published separately 5 …”

Section: Discussionsupporting

confidence: 80%

“…To inform policy and practice, a survey was designed to explore the experiences of staff involved in the moving and handling of children after death. In addition to exploring moving and handing of children's bodies, we wanted to identify the sources of emotional challenge for practitioners delivering family-centered care after the death of a child, published separately 5 . The findings, together with those of this study, have led to the production of clinical guidelines relating to the care of children after death 6 …”

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confidence: 99%

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Moving and Handling Children After Death: An Inductive Thematic Analysis of the Factors That Influence Decision Making by Children's Hospice Staff

Tatterton

Honour

Kirkby

et al. 2021

J Hosp Palliat Nurs

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Hospices for children and adolescents in the United Kingdom provide care to the bodies of deceased children in specially designed chilled bedrooms called “cool rooms.” In an effort to develop resources to support hospice practitioners to provide this specialist area of care, this study aimed to identify the factors that influence decision making when moving and handling children's bodies after death in a hospice cool bedroom. An internet-based survey was sent to all practitioners employed by 1 children's hospice. A total of 94.9% of eligible staff responded (n = 56). An inductive approach to thematic analysis was undertaken, using a 6-phase methodological framework. Three core themes were identified that inform practitioners' perception of the appropriateness of moving and handling decisions: care of the body, stages of care, and method of handling. The complexity of decision making and variation in practice was identified. Practitioners relied on both analytical and initiative decision making, with more experienced practitioners using an intuitive approach. Evidence-based policy and training influence the perception of appropriateness and the decisions and behavior of practitioners. The development of a policy and education framework would support practitioners in caring for children's bodies after death, standardizing expectations and measures of competence in relation to moving and handling tasks.

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Section: Discussionsupporting

confidence: 80%

mentioning

confidence: 99%

Moving and Handling Children After Death: An Inductive Thematic Analysis of the Factors That Influence Decision Making by Children's Hospice Staff

Tatterton

Honour

Kirkby

et al. 2021

J Hosp Palliat Nurs

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“…Described as a cornerstone of nursing (Tatterton & Walshe, 2019), family‐centered care (FCC) is widely regarded as a fundamental component of neonatal, child, and adolescent health care (Foster & Shields, 2020; Kuo et al, 2012; Shields, 2018; Tatterton et al, 2021). The positive effects of FCC on parents cannot be overstated.…”

Section: Discussionmentioning

confidence: 99%

“…These are independent, charitable organizations that offer a range of family centered, palliative care services to babies, children and adolescents and their families, in hospice buildings, the community setting (Tatterton, 2019), or by delivering services in hospitals. Palliative care services include short breaks, symptom management, end of life care and bereavement support before and after the death of a baby or child (Tatterton et al, 2021). Despite 93% of neonatal units having access to hospice support, only 63% refer to hospice services (Price & Mendizabal‐Espinosa, 2019).…”

Section: Introductionmentioning

confidence: 99%

The role of children's hospices in perinatal palliative care and advance care planning: The results of a national British survey

Tatterton

Fisher

Storton

et al. 2022

J of Nursing Scholarship

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Introduction Perinatal palliative care services are increasingly available globally, offering a range of clinical and psychological support services to families during pregnancy, in the neonatal period and following the death of a baby with a life‐limiting or life‐threatening condition. Little is understood about the role of children's hospice care and how it contributes to effective perinatal palliative care. Design The study aims to answer the question “what is the role of children's hospices in the provision of perinatal palliative care and advance care planning in the United Kingdom?” Methods An electronic survey was sent to all 54 children's hospices in the United Kingdom between May and June 2022. Results Thirty hospices responded, representing 54% of the sector. All regions of all four counties are represented. Numbers of referrals to hospices for perinatal palliative care have increased significantly over the last 5 years. Hospices provide a range of services for families and babies, usually from the point of diagnosis or recognition of a life‐limiting or life‐threatening condition, underpinned with counseling and emotional support. Hospices worked with a range of professionals and services, most commonly fetal medicine and neonatal services. Advance care plans were an important element of effective perinatal palliative care, strengthening parent–professional and interprofessional relationships. Conclusion Children's hospice services play an important and growing role in the perinatal care of babies and families following the diagnosis or recognition of a life‐limiting or life‐threatening condition. The family‐centered approach to care, from a broad, biopsychosocial perspective means that hospices make a unique and meaningful contribution to both the clinical and psychological needs of families. Clinical relevance The family‐centered approach to care, from a broad, biopsychosocial perspective means that hospices make an important contribution to both the clinical needs of babies, and psychological needs of families antenatally, in the neonatal period and after death.

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“…In addition to vast legal protections, a wave of research that followed the inception of the National Health Service considered 'harm' in a broader sense, focusing particularly on attachment, separation, and loss (Bowlby, 1988), and the emotional suffering of children in hospital (Clarke, 2017). The need for a child-focused, family-centred approach to nursing children forms a fundamental principle of modern children's nursing (Tatterton et al, 2023). Despite these measures, risks to children and examples of poor care delivered by nurses who were not specifically trained to care for children remain (Platt, 1959;Clothier, 1994;Kennedy, 2001).…”

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confidence: 99%

Don’t throw the baby out with the bathwater: Preserving children’s undergraduate nurse education in the move towards genericism in nursing

Tatterton,

Carey,

Hyde

et al. 2024

J Child Health Care

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Approaches to nurse education vary internationally. Our approach in the United Kingdom (UK), together with countries including Germany, Italy, and Republic of Ireland is unusual, where fieldspecific undergraduate nurse education programmes are standard. This approach allows nurses to register as children's nurses without undertaking generalist training beforehand. Recently, arguments have been made for a move back towards generalist nurse education (Purssell and Sagoo, 2023). This has been met with passionate refutation from children's (Fallon, 2023), learning disability (Cogher, 2023), and mental health (Warrender, 2022) nursing colleagues.Internationally, generalist nurse education is standard (van Kraaij et al., 2023). In most countries, nurses wishing to specialise in the care of babies, children or young people, or other specialities undertake post-registration, postgraduate training (Clarke, 2017). Arguments for generalised education surround the universality of this approach, where all nurses are trained to meet the needs of people across a lifespan. Purssell and Sagoo (2023) suggest that removing general elements of nurse education in the United Kingdom has resulted in an inflexible British nursing workforce.In 2018, the UK nursing regulator, Nursing and Midwifery Council (NMC) launched new education standards, designed to tackle the health of the UK population, following national inquiries and reports, including Prime Ministers Commission (2010), Francis (2013), and Keogh (2013). These Future Nurse Standards (NMC, 2018) have led to a move towards 'a model, constructed on quantifiable skills and competencies ' (Connell et al., 2022:473) that are applied to all preregistration nursing students, regardless of field. This approach undermines elements of a children's nurses' role, owing to the generic, skills-based design. Our question is should our children's nursing baby be thrown out with associated bathwater? As children's nursing academics involved in providing care and educating future children's nurses, we strongly support the preservation of

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Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis

Abstract: 2021): Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis, Mortality,

Cited by 7 publications

References 38 publications

Moving and Handling Children After Death: An Inductive Thematic Analysis of the Factors That Influence Decision Making by Children's Hospice Staff

Moving and Handling Children After Death: An Inductive Thematic Analysis of the Factors That Influence Decision Making by Children's Hospice Staff

The role of children's hospices in perinatal palliative care and advance care planning: The results of a national British survey

Don’t throw the baby out with the bathwater: Preserving children’s undergraduate nurse education in the move towards genericism in nursing

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