“Sometimes Our Mob Don’t Really Take It Serious Until It’s Serious”: The Experiences of Western Australian Aboriginal Adolescents Living With Type 2 Diabetes, Their Parents, and Their Family Members

Carman, Rebecca; Towell-Barnard, Amanda; Shah, Mark; Davis, Elizabeth A.; Maple-Brown, Louise; Pearson, Glenn; Arabiat, Diana; Kirkham, Renae; Whitehead, Lisa

doi:10.1016/j.jcjd.2023.03.008

Cited by 3 publications

(1 citation statement)

References 25 publications

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“…There is a critical need for the development of systems and supports for the management of youth-onset type 2 diabetes (defined as that diagnosed in people aged [12][13][14][15][16][17][18][19][20][21][22][23][24][25]. While the high prevalence of type 2 diabetes among older adults has received considerable attention, 1 youth-onset type 2 diabetes is an emerging condition worldwide, particularly in STRENGTHS AND LIMITATIONS OF THIS STUDY ⇒ Our study design, which encompasses four regional sites spanning Northern Australia and partnerships with key stakeholders from each jurisdiction, will advance the implementation of enhanced models of care.…”

Section: Introductionmentioning

confidence: 99%

Codesigning enhanced models of care for Northern Australian Aboriginal and Torres Strait Islander youth with type 2 diabetes: study protocol

Kirkham,

Puszka,

Titmuss

et al. 2024

BMJ Open

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IntroductionPremature onset of type 2 diabetes and excess mortality are critical issues internationally, particularly in Indigenous populations. There is an urgent need for developmentally appropriate and culturally safe models of care. We describe the methods for the codesign, implementation and evaluation of enhanced models of care with Aboriginal and Torres Strait Islander youth living with type 2 diabetes across Northern Australia.Methods and analysisOur mixed-methods approach is informed by the principles of codesign. Across eight sites in four regions, the project brings together the lived experience of Aboriginal and Torres Strait Islander young people (aged 10–25) with type 2 diabetes, their families and communities, and health professionals providing diabetes care through a structured yet flexible codesign process. Participants will help identify and collaborate in the development of a range of multifaceted improvements to current models of care. These may include addressing needs identified in our formative work such as the development of screening and management guidelines, referral pathways, peer support networks, diabetes information resources and training for health professionals in youth type 2 diabetes management. The codesign process will adopt a range of methods including qualitative interviews, focus group discussions, art-based methods and healthcare systems assessments. A developmental evaluation approach will be used to create and refine the components and principles of enhanced models of care. We anticipate that this codesign study will produce new theoretical insights and practice frameworks, resources and approaches for age-appropriate, culturally safe models of care.Ethics and disseminationThe study design was developed in collaboration with Aboriginal and Torres Strait Islander and non-Indigenous researchers, health professionals and health service managers and has received ethical approval across all sites. A range of outputs will be produced to disseminate findings to participants, other stakeholders and the scholarly community using creative and traditional formats.

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Section: Introductionmentioning

confidence: 99%

Codesigning enhanced models of care for Northern Australian Aboriginal and Torres Strait Islander youth with type 2 diabetes: study protocol

Kirkham,

Puszka,

Titmuss

et al. 2024

BMJ Open

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Aboriginal young people's experiences of type 2 diabetes diagnosis, management and support: A qualitative study in the Kimberley region of Western Australia

Spry,

Seear,

Harkin

et al. 2024

Health Prom J of Aust

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Issues AddressedIn Australia, Aboriginal and Torres Strait Islander young people in remote settings are most‐affected by young onset type 2 diabetes (T2D). It is necessary to understand young people's experiences, including factors impacting on self‐management, to improve models of care.MethodsA phenomenological methodology underpinned this qualitative study in Western Australia's Kimberley region. Two Aboriginal Community Controlled Health Services supported recruitment of seven Aboriginal young people aged 12–24 with T2D, who participated in interviews. A carer and health professional of one young person in each site were also interviewed and relevant medical record data reviewed to assist with triangulation of data. De‐identified transcripts were inductively coded and a coding structure developed with oversight by a Kimberley Aboriginal researcher.ResultsYoung people reported varied experiences and emotions relating to a T2D diagnosis. Most recounted this was upsetting and some reported current negative impact on emotional wellbeing. Challenges with understanding and managing diabetes were highlighted, particularly regarding healthy eating, physical activity and medication. Family are a prominent source of self‐management support, with the intergenerational impact of diabetes being evident for each participant. Positive relationships with health professionals, entailing continuity of care, were valued.ConclusionsThere are significant emotional and medical challenges for young people with T2D and their families. Recommendations from this work will contribute to the development of local resources and initiatives to improve diabetes‐related support.So What?Alongside broader efforts to support good health at the societal level, enhanced health education and family‐oriented support structures including Aboriginal clinical staff for young people with T2D are needed.

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Decolonizing Diabetes: The Importance of an Antiracist and Anticolonial Lens in Indigenous Health

Diffey,

Janis

2023

Canadian Journal of Diabetes

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“Sometimes Our Mob Don’t Really Take It Serious Until It’s Serious”: The Experiences of Western Australian Aboriginal Adolescents Living With Type 2 Diabetes, Their Parents, and Their Family Members

Cited by 3 publications

References 25 publications

Codesigning enhanced models of care for Northern Australian Aboriginal and Torres Strait Islander youth with type 2 diabetes: study protocol

Codesigning enhanced models of care for Northern Australian Aboriginal and Torres Strait Islander youth with type 2 diabetes: study protocol

Aboriginal young people's experiences of type 2 diabetes diagnosis, management and support: A qualitative study in the Kimberley region of Western Australia

Decolonizing Diabetes: The Importance of an Antiracist and Anticolonial Lens in Indigenous Health

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