Soins palliatifs pédiatriques et fin de vie d’enfants suivis en onco-hématologie : place de l’hospitalisation à domicile

Bertrand, A.; Marcault-Derouard, Anna; Devaux, Yves; Bertrand, Yves; Bergeron, Christophe; Veyet, Véronique; Cervos, Marie; Filion, Shirley; Goy, Florence; Schell, Matthias

doi:10.1016/j.bulcan.2018.05.007

Cited by 3 publications

(1 citation statement)

References 9 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…20 In the Lyon area, the rate of home death is higher for pediatric oncology patients (65%), possibly in relation to a very dedicated and mobile pediatric palliative care team, a single tertiary center, and a lower population density. 25 In IDF, a similar organization is not possible due to the greater population density, a multiplicity of care centers, and perhaps the absence of a dedicated pediatric hospice.…”

Section: Discussionmentioning

confidence: 99%

End-of-life care in children and adolescents with cancer: perspectives from a French pediatric oncology care network

Blais

Cohen-Gogo

Gouache

et al. 2021

Tumori

View full text Add to dashboard Cite

Background: In developed countries, cancer remains the leading cause of pediatric death from illness after the neonatal period. Objective: To describe the end-of-life care characteristics of children and adolescents with solid tumors (ST) or hematologic malignancies (HM) who died from tumor progression in the Île-de-France area. Methods: This is a regional, multicentric, retrospective review of medical files of all children and adolescents with cancer who died over a 1-year period. Extensive data from the last 3 months of life were collected. Results: A total of 99 eligible patients died at a median age of 9.8 years (range, 0.3–24 years). The most frequent terminal symptoms were pain (n = 86), fatigue (n = 84), dyspnea (n = 49), and anorexia (n = 41). Median number of medications per patient was 8 (range, 3–18). Patients required administration of opioids (n = 91), oxygen (n = 36), and/or sedation (n = 61). Decision for palliative care was present in all medical records and do-not-resuscitate orders in 90/99 cases. Symptom prevalence was comparable between children and adolescents with ST and HM. A wish regarding the place of death had been expressed for 64 patients and could be respected in 42 cases. Death occurred in hospital for 75 patients. Conclusions: This study represents a large and informative cohort illustrating current pediatric palliative care approaches in pediatric oncology. End-of-life remains an active period of care requiring coordination of multiple care teams.

show abstract

Section: Discussionmentioning

confidence: 99%

End-of-life care in children and adolescents with cancer: perspectives from a French pediatric oncology care network

Blais

Cohen-Gogo

Gouache

et al. 2021

Tumori

View full text Add to dashboard Cite

show abstract

L’hospitalisation à domicile en soins palliatifs pédiatriques

Cervos¹,

Veyet²,

Bertrand³

et al. 2023

Cahiers de la Puéricultrice

View full text Add to dashboard Cite

Children and adolescent solid tumours and high-intensity end-of-life care: what can be done to reduce acute care admissions?

Podda

Schiavello

Clerici

et al. 2021

BMJ Support Palliat Care

View full text Add to dashboard Cite

Despite improvements in survival, cancer remains the leading cause of non-accidental death in children and adolescents, who risk receiving high-intensity end-of-life (HI-EOL) care.ObjectiveTo analyse treatments for relapses (particularly in the last weeks of life), assess their impact on the EOL, identify patients most likely to receive HI-EOL care and examine whether palliative care services can contain the intensity of EOL care.MethodsThis retrospective study involved patients treated at the paediatric oncology unit of the Istituto Nazionale Tumori in Milan who died between 2018 and 2020. The primary outcome was HI-EOL care, defined as: ≥1 session of intravenous chemotherapy <14 days before death; ≥1 hospitalisation in intensive care in the last 30 days of life and ≥1 emergency room admission in the last 30 days of life.ResultsThe study concerned 68 patients, and 17 had HI-EOL care. Patients given specific in-hospital treatments in the last 14 days of their life more frequently died in hospital. Those given aggressive EOL care were less likely to die at home or in the hospice. Patients with central nervous system (CNS) tumours were more likely to have treatments requiring hospitalisation, and to receive HI-EOL care.ConclusionThese results underscore the importance of considering specific treatments at the EOL with caution. Treatments should be administered at home whenever possible.The early activation of palliative care, especially for fragile and complicated patients like those with CNS cancers, could help families cope with the many problems they face.

show abstract

Soins palliatifs pédiatriques et fin de vie d’enfants suivis en onco-hématologie : place de l’hospitalisation à domicile

Cited by 3 publications

References 9 publications

End-of-life care in children and adolescents with cancer: perspectives from a French pediatric oncology care network

End-of-life care in children and adolescents with cancer: perspectives from a French pediatric oncology care network

L’hospitalisation à domicile en soins palliatifs pédiatriques

Children and adolescent solid tumours and high-intensity end-of-life care: what can be done to reduce acute care admissions?

Contact Info

Product

Resources

About