Sociodemographic factors affect the quality of life and burden of caregivers in special care in dentistry

Abstract

Aims:To analyze the epidemiological profile and quality of life (QoL) of patients with special needs and overload their caregivers.Methods and results: Health-related QoL was assessed in a quantitative, observational, cross-sectional study of prospective characteristics using the WHOQOL-BREF and ZARIT-22 questionnaires. This study included 122 patients were included; they were divided into patients without caregiver assistance (n = 63) who answered WHOQOL-BREF, 49 caregivers (n = 49) who responded to ZARIT-22, and 10 patients were secondarily caregivers of their parents and answered the ZARIT-22 + WHOQOL-BREF questionnaires. The WHOQOL-BREF general score was 71.94 ± 10.58, and patients born in urban areas and married had positive correlations (p < .05) with the QoL scores in the physical and social domains. ZARIT-22 scores showed an average of 58.63 ± 14.07. Data crosschecking revealed that patients of white races (p = .030) and who lived in urban regions (p = .003) generated less overload to caregivers. Conclusion:In the WHOQOL-BREF analysis, family income was a factor with direct impact, and all caregivers referred to moderate-to-high overload, with an increase in prevalence as far away from the service the patient resides.epidemiology, general health, quality of life 1 INTRODUCTION Patients with special needs (PSN) are individuals with some impairment of physical, mental, sensory, behavioral, cognitive, or emotional development, or who expresses a medical condition that requires management, limiting © 2022 Special Care Dentistry Association and Wiley Periodicals LLC. the intervention of health care, and/or the use of specialized services or programs. 1 According to the World Health Organization (WHO), more than one billion people with some type of disability globally, and almost 15% of the Brazilian population have some type of special need. 2 According to Castro et al., 3 most of these individuals are 464 wileyonlinelibrary.com/journal/scd

Programa Maior Cuidado: An Integrated Community-Based Intervention on Care for Older People

“…There is a large body of evidence from Brazil and similar countries demonstrating the stressful and demanding nature of unsupported family care for dependent older people and the toll it can take on those providing it (Leite et al, 2017). Studies demonstrate that the care burden in Brazil is higher for carers in poor families (Magalhães, et al 2022).…”