Sociocultural Influences on Heart Failure Self-care Among an Ethnic Minority Black Population

Dickson, Victoria Vaughan; McCarthy, Margaret M.; Howe, Alexandra; Schipper, Judith; Katz, Stuart

doi:10.1097/jcn.0b013e31823db328

Cited by 107 publications

(157 citation statements)

References 23 publications

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“…For example, self-care is poorer among ethnic minority populations than whites and those with low socioeconomic status. 37,52 Women also report poorer self-care than men. 53,54 These variables are entered into the Minim program for each enrolled individual.…”

Section: Randomizationmentioning

confidence: 97%

“…36 For example, lowincome ethnic minority patients reported difficulty with dietary adherence because of a conflict with cultural food preferences, cooking techniques, and family roles. 37 The cultural meaning ascribed to HF and perceived role in performing self-care also influence how individuals engage in self-care on a daily basis and their response to symptoms. 34 Given the shortcomings of traditional approaches to HF patient education, we propose a new paradigm in how HF self-care interventions are delivered to address the needs of the growing population of communitydwelling older adults with HF.…”

Section: Introductionmentioning

confidence: 99%

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Improving Heart Failure Self-care Through a Community-Based Skill-Building Intervention

Dickson

Melkus

Dorsen

et al. 2015

Journal of Cardiovascular Nursing

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Section: Randomizationmentioning

confidence: 97%

Section: Introductionmentioning

confidence: 99%

Improving Heart Failure Self-care Through a Community-Based Skill-Building Intervention

Dickson

Melkus

Dorsen

et al. 2015

Journal of Cardiovascular Nursing

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“…However, some felt the need to cope with HF alone, as keeping things private was a desirable trait in some sociocultural contexts [55,53] or was perceived as a way of protecting loved ones by "putting on a front" [64]. Patients were also generally unwilling to discuss issues pertaining to emotional turmoil and sexual health with HCPs as they were deemed too private.…”

Section: "It Feels Like You Are Getting the Last Drop Of Air Around Ymentioning

confidence: 99%

“…Perceived control was low in patients who accepted the limiting effects of symptoms as age related [62,48,66], attributed the unpredictable nature of symptoms to fate [55], or believed HF was inevitable due to a genetic predisposition [53]. For example, in cases where heart disease was part of cultural identity, patients accepted HF as a condition they must live with, and could do little about [53].…”

Section: Cure/controlmentioning

confidence: 99%

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

Ivynian

DiGiacomo

Jha

et al. 2015

Heart, Lung and Circulation

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Purpose: Over 50% of heart failure (HF) patients delay seeking help for worsening symptoms until these reach acute levels and require emergency hospitalisation. This metasynthesis aimed to identify and explore factors influencing timely care-seeking in patients with HF.Methods: Electronic databases searched were Medline, EMBASE and CINAHL. Studies were included if they were peer reviewed journal articles written in English, and reported perspectives of HF patients following qualitative data collection and analysis. Forty articles underwent analysis following the approach of Thomas and Harden. Leventhal's self-regulatory model (SRM) was used to organise the literature.Results: Much of the literature fit within the SRM, however this model did not account for all factors that influence patients' care-seeking for worsening symptoms. Factors not accounted for included patients' appraisals of previous care-seeking experiences, perceived system and provider barriers to accessing care, and the influence of external appraisals. When added to factors already represented in the model, such as misattribution of symptoms, not identifying with HF diagnosis, cognitive status, lack of understanding information provided, adaptation to symptoms, and emotional responses, a more comprehensive account of patients' decision-making was revealed.Implications: This metasynthesis identified factors, as yet unaccounted for, in a prominent model, and has suggested a more comprehensive framework for addressing care-seeking in HF patients. This information can be used to tailor education, communication, and service initiatives to improve HF patients' responses to worsening symptoms, and target those most at risk of delay.

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“…7,40,41 Vassilev et al 42 recommend a shift in the way we conceptualise patient self-management "from individualised, behaviour-based interventions to community and network-centred approaches" (p. 73); i.e. from patient self-efficacy towards collective efficacy.…”

Section: Recommendations To Promote Patient Self-management: a Socialmentioning

confidence: 99%

Patient Self-Management In Chronic Heart Failure — Establishing Concordance Between Guidelines And Practice

Toukhsati¹,

Driscoll²,

Hare³

2015

Cardiac Failure Review

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The gold-standard of patient self-management in chronic heart failure (CHF) can be defined as "daily activities that maintain clinical stability". 1 This requires that patients monitor their symptoms, adhere to their medication, diet and exercise regimens and manage symptoms by recognising changes and responding by either adapting behaviours or by seeking appropriate assistance.2 Patient self-management is linked to reduced mortality risk and fewer hospital admissions; however, there is less certainty with regard to the benefits of some aspects of self-care, such as lifestyle choices and fluid restriction.2 According to the European Society of Cardiology Guidelines for the diagnosis and treatment of acute and chronic heart failure, 3 self-management is integral to achieving best patient outcomes: to reduce mortality and improve quality of life.Self-management in CHF usually involves behavioural adaptation.Patients may need to learn new behaviours, such as learning how to monitor and manage symptoms and complex medical regimens.Patients may also need to abstain (e.g. cease smoking), adapt (e.g. AbstractChronic heart failure (CHF) is a progressive and debilitating disease with a broad symptom profile, intermittently marked by periods of acute decompensation. CHF patients are encouraged to self-manage their illness, such as adhering to medical regimens and monitoring symptoms, to optimise health outcomes and quality of life. In so doing, patients are asked to collaborate with their health service providers with regard to their care. However, patients generally do not self-manage well, even with specialist support. Moreover, selfmanagement interventions are yet to demonstrate morbidity or mortality benefits. Social network approaches to self-management consider the availability and mobilisation of all resources, beyond those of only the patient and healthcare providers. Used in conjunction with e-health platforms, social network approaches may offer a means by which to optimise self-management programmes of the future.

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Sociocultural Influences on Heart Failure Self-care Among an Ethnic Minority Black Population

Abstract: Research to develop and test culturally sensitive interventions is needed. Community-based interventions that provide culturally acceptable resources to facilitate self-care should be explored.

Cited by 107 publications

References 23 publications

Improving Heart Failure Self-care Through a Community-Based Skill-Building Intervention

Improving Heart Failure Self-care Through a Community-Based Skill-Building Intervention

Care-seeking decisions for worsening symptoms in Heart Failure: a qualitative metasynthesis

Patient Self-Management In Chronic Heart Failure — Establishing Concordance Between Guidelines And Practice

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