Sociocultural Influences on African Americans’ Representations of Type 2 Diabetes: A Qualitative Study

Shiyanbola, Olayinka O.; Ward, Earlise C.; Brown, Carolyn M.

doi:10.18865/ed.28.1.25

Cited by 34 publications

(62 citation statements)

References 29 publications

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“…In our prior work, AAs with diabetes reported a sociocultural component to their perception of the development of diabetes, with an attribution to stigma among family members and the community, that led to a denial of the disease. [ 49 ]…”

Section: Discussionmentioning

confidence: 99%

“…[ 64 , 65 ]In a prior work, AAs with diabetes perceived that there was a race-mediated effect of how they developed diabetes due to poverty associated with past slavery and racial discrimination they had experienced from their health care providers. [ 49 ] Since illness perceptions are influenced by patient environmental and sociocultural contexts,[ 14 ] it follows that cultural values need to be integrated into patient-centered interventions designed to present positive illness perceptions that can enhance self-management and medication adherence. [ 65 ] Gaps in patient and provider concordance in illness perceptions exist and hinder medication adherence.…”

Section: Discussionmentioning

confidence: 99%

“…[ 7 ] To help patients improve adherence behavior, health care providers need to be aware of how different cultural contexts influence patients’ knowledge and beliefs about diabetes. [ 8 , 9 ] Studies have shown that illness perceptions influence whether patients take their medicines or not, and hence should be taken into account in designing adherence interventions. [ 10 – 12 ] However, AA patients’ perception of type 2 diabetes is not well understood, and to date, no known studies have used a comprehensive evidence-based theoretical framework to explore what AAs with type 2 diabetes know, believe, and think about type 2 diabetes.…”

Section: Introductionmentioning

confidence: 99%

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Utilizing the common sense model to explore African Americans’ perception of type 2 diabetes: A qualitative study

2018

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Illness perceptions, which are likely influenced by patients’ cultural contexts, are associated with disease self-management and adherence. African American patients perceptions of type 2 diabetes is not well understood and no known studies has used a comprehensive evidence-based theoretical framework to explore what AAs with type 2 diabetes know, believe, and think about type 2 diabetes. Understanding perceptions of an illness shared by a group of people will be useful in developing culturally-appropriate interventions targeted to the needs of the community. The purpose of this study is to explore African Americans’ perceptions of type 2 diabetes based on the common sense model of illness and self-regulation. Using a phenomenology qualitative approach and purposive sampling, 40 African American men and women, age 45–60 years old with diagnosed type 2 diabetes at least one year prior, and who took at least one prescription diabetes medication, participated in six semi-structured 90-minute focus groups conducted in a private space. Qualitative content analysis was conducted to explore African Americans beliefs about type 2 diabetes. Participants expressed that historical issues, e.g., slavery, healthcare providers, the government, and God influenced how they developed diabetes. Participants reported a loss of autonomy, a change of their identity as an employee, a social individual and sexual person, as well as anger and frustration due to having diabetes. Diabetes made the African American family bonding experience of eating difficult, and the disease diminished their cultural experiences. Concerns about diabetes ranged from fear of death and amputations to the inability to prevent the disease among their children/grandchildren. Participants perceived that medications, faith in God, and positive thinking about survival helped control diabetes. Conclusions: Improved diabetes self-management and medication adherence may depend on the meaning African Americans attach to diabetes, available psychosocial support for managing diabetes, and African Americans experience with diabetes.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Utilizing the common sense model to explore African Americans’ perception of type 2 diabetes: A qualitative study

2018

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“…Lack of trust is a consistent driver in discussions of diabetes care for African Americans (150). In a qualitative study using semistructured focus groups, Shiyanbola et al (151) affirmed the relationship between T2D management and socio-cultural context. Specifically, members of the African American community have perceptions of the world-including T2D care-that are based on historical circumstances, such as slavery and poverty effects, and current experiences, such as racial minority and trust effects (151).…”

Section: Behavior and Social Determinantsmentioning

confidence: 99%

Transcultural Diabetes Care in The United States – A Position Statement by the American Association of Clinical Endocrinologists

Mechanick¹,

Adams

Davidson

et al. 2019

Endocrine Practice

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“…The study aimed to utilize qualitative findings from prior focus groups [20, 21] to adapt the established Illness Perception Questionnaire [13, 22] for use in AAs with diabetes, and to use cognitive interviews to explore patients’ interpretation and understanding of the survey. This study describes the cognitive interviewing process used to pretest the survey.…”

Section: Introductionmentioning

confidence: 99%

A content validity and cognitive interview process to evaluate an Illness Perception Questionnaire for African Americans with type 2 diabetes

et al. 2019

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Objective The Illness Perception Questionnaire (IPQ) is the only available and empirically validated tool used to gain insight into patient illness beliefs. However, the IPQ has reliability and validity problems when used with African Americans (AAs) and needs to be culturally-adapted and validated for use with this group. This study aimed to utilize findings from focus groups to culturally adapt the IPQ for use in AAs with diabetes. Ten cognitive interviews among AAs with type 2 diabetes explored patients’ interpretation and understanding of the adapted IPQ. Results Forty-four new survey items were added to the IPQ. Twenty-nine of the forty-four items were determined as the appropriate number of questions to be tested because of time, and to reduce respondent burden. After the first round of interviews, an item-by-item review of the new items identified problems related to AA comprehension of certain items, their applicability, and wording/tone. Five items identified as problematic were related to AAs understanding of a cure for diabetes, their perception of how food influences their diabetes, how their identity as AAs influence diabetes control, and the dialogue about diabetes within their families and/or community. Findings support the newly developed illness perception questions as culturally specific to AAs with diabetes after being tested for content validity and participant understanding using cognitive interviews. Electronic supplementary material The online version of this article (10.1186/s13104-019-4342-9) contains supplementary material, which is available to authorized users.

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Sociocultural Influences on African Americans’ Representations of Type 2 Diabetes: A Qualitative Study

Cited by 34 publications

References 29 publications

Utilizing the common sense model to explore African Americans’ perception of type 2 diabetes: A qualitative study

Utilizing the common sense model to explore African Americans’ perception of type 2 diabetes: A qualitative study

Transcultural Diabetes Care in The United States – A Position Statement by the American Association of Clinical Endocrinologists

A content validity and cognitive interview process to evaluate an Illness Perception Questionnaire for African Americans with type 2 diabetes

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