Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group

Coulson, Neil; Buchanan, Heather; Aubeeluck, Aimée

doi:10.1016/j.pec.2007.06.002

Cited by 340 publications

(308 citation statements)

References 27 publications

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“…A number of content analyses have been conducted to examine the types of support messages shared in computer-mediated contexts (e.g., Dunham et al, 1998;Eichhorn, 2008;Keating, 2013). Informational support and emotional support are typically the most common types of support messages found in these studies (Braithwaite et al, 1999;Coulson, Buchanan, & Aubeeluck, 2007;Ginossar, 2008;Keating, 2013).…”

Section: Social Support and Computer-mediated Communicationmentioning

confidence: 99%

Language Style Matching as a Predictor of Perceived Social Support in Computer-Mediated Interaction Among Individuals Coping With Illness

Rains

2015

Communication Research

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Several forms of computer-mediated communication (e.g., online support groups, blogs, social network sites) have been shown to be important resources for social support among individuals coping with illness. The reported study attempts to better understand social support processes in these settings by examining the implications of language style matching-a form of interpersonal coordination involving the degree to which speakers match one another's use of function words (e.g., articles, prepositions, pronouns). Language style matching among a sample of health bloggers and their readers over a 3-month period was tested as a predictor of bloggers' perceptions of support available from their readers. The results show that language style matching contributed to bloggers' perceptions that their readers are willing and able to serve as a resource for specific forms of social support.

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Section: Social Support and Computer-mediated Communicationmentioning

confidence: 99%

Language Style Matching as a Predictor of Perceived Social Support in Computer-Mediated Interaction Among Individuals Coping With Illness

Rains

2015

Communication Research

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“…Online support groups may provide one of the only mechanisms for people affected by rare diseases (such as NMDs) to meet people with similar experiences [41] and there is limited research exploring how people affected by rare diseases use such groups [42]. These groups may be more accessible for people with NMDs and their carers when compared with other services.…”

Section: Introductionmentioning

confidence: 99%

The use of an online support group for neuromuscular disorders: a thematic analysis of message postings

Meade

Buchanan

Coulson

2017

Disability and Rehabilitation

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Purpose: People affected by neuromuscular disorders can experience adverse psychosocial consequences and difficulties accessing information and support. Online support groups provide new opportunities for peer support. The aim of this study was to understand how contributors used the message board function of a newly-available neuromuscular disorders online support group. Message postings (n=1,951) from the first five months of the message board of a newly-formed online support group for neuromuscular disorders hosted by a charitable organisation were analysed using inductive thematic analysis. Results: Members created a sense of community through disclosing personal information, connecting with people with similar illness experiences or interests, welcoming others, and sharing aspirations for the development of a resourceful community. Experiences, emotional reactions and support were shared in relation to: delayed diagnosis; symptom interpretation; illness management and progression; the isolating impact of rare disorders; and the influence of social and political factors on illness experiences. Methods: Conclusions:This study provided a novel insight into individuals' experiences of accessing a newly-available online support group for rare conditions hosted by a charitable organisation. The findings highlight how the online support group provided an important peer support environment for members to connect with others, exchange information and support, and engender discussion on political and social issues unique to living with often-rare neuromuscular disorders. Online support groups may therefore provide an important and easily accessible support outlet for people with neuromuscular disorders as well as a platform for empowering members to raise awareness about the impact of living with these conditions. Further research is needed to examine member motivations for using such groups and any effects of participation in greater detail.

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“…ŉ Aanlyn ondersteuningsgroep is ŉ tipe ondersteuningsgroep waarby ŉ mens op die Internet kan aansluit. In 2007 het ŉ studie getoon dat 36 miljoen mense in die VSA lede van een of ander aanlyn ondersteuningsgroep is (Coulson, Buchanan & Aubeeluck 2007). Die aanlyn ondersteuningsgroepe is aktief op boodskapborde, nuusgroepe, interaktiewe webtuistes en geselsgroepe (Coulson e.a.…”

Section: Inleidingunclassified

Die ervaring van aktiewe betrokkenheid by ŉ aanlyn Facebook-ondersteuningsgroep as ŉ vorm van ondersteuning vir individue wat met Meervoudige Sklerose gediagnoseer is

Pretorius

2016

Tydskr. geesteswet.

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Chrisma Pretorius behaal haar voor-en nagraadse kwalifikasies, insluitend 'n PhD (Siel kunde) aan die Universiteit van die Vrystaat. Sy is ook 'n geregistreerde Voorligtingsielkundige wat spesialiseer in psigometriese en neurosielkunde assesserings. Haar loopbaan as dosent begin in die Departement Sielkunde aan die Universiteit van Stellenbosch in Maart 2010.Sy is ŉ jong opkomende navorser wat reeds verskeie innoverende studies van stapel gestuur en suksesvol voltooi het. Haar navorsingsfokus is op ŉ kombinasie van kliniese neurosielkunde en gesondheidsielkunde. Sy is veral geïnteresseerd in toestande soos Psigogeniese nieepileptiese aan valle (PNEA), Meervoudige Sklerose (MS), en Traumatiese Hoofbeserings. Sy is ook deel van ŉ internasionale navorsing taakspan wat tans besig is met ŉ studie oor PNEA. Die oorkoepelende fokus van haar navorsing is op die impak van kroniese siektetoestande vanuit verskillende perspektiewe (o.a. die pasiënt, die versorger en die diensverskaffers soos gesondheidsorgwerkers). Haar doelwit is om ŉ bydrae te maak tot die verbetering van dienste wat voorsien word aan pasiënte met kroniese siektetoestande om sodoende die ervarings van hierdie individue en hulle versorgers op ŉ positiewe manier te fasiliteer.

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Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group

Cited by 340 publications

References 27 publications

Language Style Matching as a Predictor of Perceived Social Support in Computer-Mediated Interaction Among Individuals Coping With Illness

Language Style Matching as a Predictor of Perceived Social Support in Computer-Mediated Interaction Among Individuals Coping With Illness

The use of an online support group for neuromuscular disorders: a thematic analysis of message postings

Die ervaring van aktiewe betrokkenheid by ŉ aanlyn Facebook-ondersteuningsgroep as ŉ vorm van ondersteuning vir individue wat met Meervoudige Sklerose gediagnoseer is

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