Social Support for Parents of Deaf Children: Moving Toward Contextualized Understanding

Poon, Brenda T.; Zaidman‐Zait, Anat

doi:10.1093/deafed/ent041

Cited by 29 publications

(13 citation statements)

References 41 publications

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“…Academic and non-governmental institutions have identified the need to develop guidelines of parent-to-parent support (Joint Committee on Infant Hearing, 2013; Poon & Zaidman-Zait, 2014). The conceptual framework is an evidence-based model that identifies the constructs, components, and complexities of exchange in parent-to-parent support.…”

Section: Discussionmentioning

confidence: 99%

“…In addition, a recent international consensus statement for children who are D/HH identified family access to parent-to-parent support as a central tenet in family-centered principles . A synthesis of evidence indicates parent-to-parent support is a necessary part of the whole health care system and ought to be provided or supported by a formalized entity (Eleweke, Gibert, & Bays, 2008;Fitzpatrick, Angus, Durieux-Smith, Graham, & Coyle, 2008;Joint Committee on Infant Hearning, 2013;Poon & Zaidman-Zait, 2014). The evidence required to inform parent-to-parent support is emerging in academic literature and endorsed by non-governmental organizations as a principle in C&FCC.…”

Section: Impetus For Researchmentioning

confidence: 99%

“…A 3D model would best represent the interaction and merging of the conceptual framework and the environment to support it. has an important role in helping parents provide assistance to their children (Åsberg, Vogel, & Bowers, 2007;Bradham, Houston, Guignard, & Hoffman, 2011;Brown & Remine, 2008;Dalzell, Nelson, Haigh, Williams, & Monti, 2007;Eleweke, Gilbert, & Bays, 2008;Fitzpatrick, Graham, Durieux-Smith, Angus, & Coyle, 2007;Fitzpatrick, 2010;Hardonk et al, 2013;Jackson, Wegner, & Turnbull, 2010;Larson, Munoz, DesGeorges, Nelson, & Kennedy, 2012;Lederberg & Golbach, 2002;Muñoz, Blaiser, & Barwick, 2013;Poon & Zaidman-Zait, 2014;Sipal & Sayin, 2012). When a child is diagnosed with a hearing loss, the majority of these children will be born to parents with typical hearing who were not expecting the diagnosis (Bagatto, Scollie, Hyde, & Seewald, 2010;Mitchell & Karchmer, 2004 The international consensus document provided the impetus for this research study.…”

Section: Future Directionsmentioning

confidence: 99%

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Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

2014

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The goals of this project were to: (1) identify the constructs and components of a conceptual framework of parent-to-parent support for parents of children who are deaf or hard of hearing (D/HH); and (2) invite a panel of international experts to provide personal judgment on the conceptual framework.In a dual-stage scoping review methodology, the first project identified, extracted, and organized data into libraries of thematic and descriptive content. A conceptual framework of parent-to-parent support for parents of children who are D/HH was developed and presented in a comprehensive, bidirectional informational graphic.A modified eDelphi study satisfied the consultation and second stage of the scoping review. Hand-picked experts (from seven countries) with experience in provision, research or experience in the area of parent-to-parent support participated in the revision of the original conceptual framework. KeywordsScoping review, eDelphi, parent-to-parent support, children with hearing loss, deaf or hard of hearing, conceptual framework iii Co-authorship Statement

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Section: Discussionmentioning

confidence: 99%

Section: Impetus For Researchmentioning

confidence: 99%

Section: Future Directionsmentioning

confidence: 99%

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Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

2014

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“…When they do not have the opportunity of going to a parents' group, they do not receive counseling or reception or they even do not have anyone to talk to in order to clarify their doubts; so, these parents exhibit isolated thoughts, increasing false beliefs, with difficulties both in the child and family's development (17,(19)(20)(21)(22)(23) . Data from this domain (support to the disability-related support) show that parents are not completely involved with their child's routine, and it includes items of: school stimulation, over which the mothers report their dissatisfaction, because they mention that schools do not give the proper attention to their children such as teaching literacy in the right time; stimulation in the family environment, over which part of the mothers also express dissatisfaction, because they do not have enough time to give the proper attention to their child when they arrive home; family stimulating the child in making new friends, because some parents are not used to going out with their children; involvement of parents with service providers, which is the only item where good satisfaction is unanimous.…”

Section: Discussionmentioning

confidence: 99%

Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro

Jorge¹,

Levy²,

Granato³

2015

CoDAS

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Purpose: To culturally adapt the Family Quality of Life Scale to the Brazilian Portuguese version and evaluate the instrument reliability and family quality of life of those who have children with hearing loss. Methods:The process of cultural adaptation of the scale followed the steps of the Guidelines for the Process of Cross-Cultural Adaptation of Self-Report Measure. It was conducted in three stages: translation, back translation, and application in a pilot sample, as a way to check the comprehension difficulties of the items. After it had been completed, it was administered to 41 families who have children with hearing loss and, with their results, the quality of life and reliability were analyzed based on the Cronbach's alpha statistical test. Results:In the first version (translation), among the 25 items, there were differences between the translators only in four items; after the corrections, the second version was done (back translation), in which other four more differences were found. Finally, after the final corrections, the last version was developed and used in the pilot sample without differences. Thus, it was applied to families with deaf children, who believe to be satisfied as to their quality of life. The Cronbach's alpha test found that the scale shows a satisfactory reliability. Self-Report Measure. Realizada em três momentos: tradução, retrotradução e aplicação na amostra piloto como forma de verificar dificuldades de compreensão dos itens. Quando finalizada foi aplicada em 41 famílias que possuem filhos com deficiência auditiva e, com os seus resultados, foram analisadas a qualidade de vida (QV) e a confiabilidade, a partir do teste estatístico alfa de Cronbach (α). Resultados: Na primeira versão (tradução), dentre os 25 itens presentes, apenas em 4 houve divergências entre as tradutoras; após as correções, houve a segunda versão (retrotradução), em que foram identificadas mais 4 divergências. Por fim, após as correções finais, a última versão foi elaborada e usada na amostra piloto sem divergências, e, dessa forma, foi aplicada nas famílias de filhos surdos, as quais se consideraram satisfeitas em relação à QV. Com o teste alfa de Cronbach (α) foi verificado que a escala tem confiabilidade satisfatória. Conclusão: A versão em PB da FQOLS é um instrumento de fácil aplicação e com confiabilidade satisfatória. As famílias estão satisfeitas com sua QVF. Conclusion

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“…This finding suggests that some early intervention services for children with hearing loss and their families may not be in line with the principles of family-centred care. In order to address families' unique and often complex needs, families require support services which directly align with these needs (Poon & Zaidman-Zait, 2013).…”

Section: Impacts Of Hearing Loss On Children and Their Familiesmentioning

confidence: 99%

Supporting families of children with hearing loss transitioning to early intervention

Nickbakht¹

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Family-centred care (FCC) has long been acknowledged as best practice for meeting the needs of families of children with hearing loss (HL) and improving early intervention (EI) outcomes. Although the literature has reported some gaps in service provision to families of children with HL, and the period from the time of diagnosis to enrolment in EI has been identified as a significant decision-making period, there is a lack of in-depth knowledge regarding families' needs during this period. In addition, no study has addressed the current gaps in FCC for children with HL with or without additional disabilities transitioning to EI. Therefore, the overarching aim of this thesis was to develop a family-centred intervention to support families of children with HL transitioning to EI, using an implementation science approach. The specific aims of this thesis were: (1) to explore families' needs in the transition to EI after diagnosis of HL from both families' and professionals' perspectives; (2) to investigate families' and professionals' perspectives on the provision of FCC in the transition to EI; and (3) to develop a family-centred intervention for children with HL-with or without additional disabilities-transitioning to EI. Chapter 2 describes the overarching framework applied throughout this thesis, the Behaviour Change Wheel (BCW). The BCW is a step-by-step guide for planning interventions that involves three tasks, including (a) understanding the behaviour that needs to be changed (Chapters 3 and 4), (b) identifying intervention options (Chapter 5), and (c) identifying implementation options and content of the intervention (Chapter 6). Chapter 3 explored families' needs in the transition to EI using a qualitative approach incorporating semi-structured interviews with families and professionals. Four major themes were identified from the interviews: (1) families require information that meet their specific xi Financial support This research was supported by an Australian Government Research Training Program Scholarship. The authors acknowledge the financial support of the HEARing CRC, established under the Australian Government's Cooperative Research Centres (CRC) Program. The CRC Program supports industry-led collaborations between industry, researchers and the community.

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Social Support for Parents of Deaf Children: Moving Toward Contextualized Understanding

Cited by 29 publications

References 41 publications

Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro

Supporting families of children with hearing loss transitioning to early intervention

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