Social Support Exchanges in Facebook Social Support Group

Mustafa, Hema Rosheny; Short, Megan; Fan, Si

doi:10.1016/j.sbspro.2015.03.449

Cited by 20 publications

(20 citation statements)

References 20 publications

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“…Parents reported the Internet as being easy to access; they find the accessibility of the free services available for both gathering information and for connecting with other families particularly valuable. Less traditional sources are sought when the traditional route yields less information (Mustafa et al 2015, Ziebland and Wyke 2012, Colineau and Paris 2010, Rains 2008.…”

Section: Discussionmentioning

confidence: 99%

Co-creating a knowledge base in the “22q11.2 deletion syndrome” community

et al. 2019

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22q11.2 DS is characterised by its variability, rarity and variety of features ranging from congenital heart conditions to psychiatric and behavioural issues. As a result, health information-seeking behaviour is different from other more common conditions. An exploratory study was carried out to understand how parents access information and support, and how that information is shared. Qualitative interviews were carried out with families and support group representatives, and thematic analysis was applied. Four main themes emerged from our findings: perceptions of clinical expertise, parent empowerment, support group activities and community building via an Internet platform. Our thematic analysis enabled the construction of a possible model of informationseeking behaviour in parents and carers of children with 22q11.2 DS. We discuss the model and how the understanding of how information is shared and gathered can aid in clinical practice.

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Section: Discussionmentioning

confidence: 99%

Co-creating a knowledge base in the “22q11.2 deletion syndrome” community

et al. 2019

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“…Of the 4 areas of empowering processes, 'encoun� tering emotional support' was indicated as the less impor� tant. In contrast with the parents of children with autism spectrum disorder, 9 whose main reason for posting in a Facebook support group was sharing their personal experi� ences, the parents of children with craniosynostoses primar� ily sought online support to exchange medical knowledge. There was a relatively low indication that they did so for the purpose of 'helping others.'…”

Section: Discussionmentioning

confidence: 99%

“…Research shows that users of online support groups most often seek emotional and informational support. [8][9][10][11][12] The mutual assistance between members of online commu� nities, in particular emotional and informational assistance, may have a positive effect on patient empowerment process� es. 1,4,[13][14][15][16][17][18] The following empowerment outcomes have been identified: being better informed, enhanced social wellbeing, greater confidence in relationship with physicians, greater acceptance of illness, greater confident in treatment, greater optimism and control, improved self�esteem.…”

Section: Introductionmentioning

confidence: 99%

The Internet as an additional source of Information on rare illness. A Facebook support group for parents of children with craniosynostosis as a case study

Nieroba

Larysz

2019

Pol. Ann. Med.

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Introduction Empirical studies show that belonging to a support group contributes to patient and caretaker empowerment. They also show that support groups significantly help parents and caretakers of ill children reduce stress and better handle the illness. Aim The aim of the study is to expand knowledge of how social media support groups function, and what impact they have on members. Material and methods Data was collected using online surveys conducted on 54 respondents. Results and discussion In particular, the respondents experienced empowerment in terms of ‘exchanging information’ and ‘finding recognition.’ Thanks to the online group, they felt better prepared to meet with their doctors. They identified with other members of the group, and considered the information posted thereby to be understandable and valuable. The stories of other parents helped them realize they were not alone. Conclusions (1) Most group members were mothers. (2) Above all, the members were seeking information, not emotional support. (3) Doctors were the main source of information on the disease. (4) Analysis indicated that ‘exchanging information’ was most strongly correlated with empowering outcomes, while ‘helping others’ was least correlated. (5) It was difficult for members to evaluate empowering outcomes.

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“…To explain how failure to receive the required social support relates to Internet addiction, it can be maintained that social support is provided through consistency between one's social demands from others and their personal perception of the realized wants (Mincu & Taşcu, 2015). Hence, when a person fails to receive social support in the real world, they tend to attract that social support from the cyber world (Mustafa, Short, & Fan, 2015). On the other hand, the prevalence rate of Internet addiction is lesser in intimate and more supportive families because of the member's propensity for participating in enjoyable hobbies (such as talking to each other, eating, dining out, shopping, etc.).…”

Section: Discussionmentioning

confidence: 99%

The Role of Psychiatric Symptoms, Social Support and Meaning in Life in Predicting Internet Addiction Among University Students: A Causal Model

Rammazi

Askarizadeh

Ahmadi

et al. 2018

PCP

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The aim of this study was to investigate the direct and indirect roles of psychiatric symptoms, social support, and meaning in life in predicting internet addiction among university students. Methods: The study was performed in a cross-sectional design by employing the path analysis to explore the model fitting. All the students at Kerman University of Medical Sciences constituted the research population. A total of 159 students were selected, by random cluster sampling method, as sample members. The questionnaires were utilized for data collection. Results: The results revealed that more than half of the participants were afflicted with the Internet addiction or were on the verge of addiction. Correlation coefficients results indicated a positive correlation between all the subscales of psychiatric symptoms and students' Internet addiction and also a negative correlation between all the subscales of social support and Internet addiction. Moreover, a negative correlation was found between meaning in life (PML) and internet addiction. Among all the endogenous variables, depression accounted for most of the variances in Internet addiction. Social support and PML also accounted for a considerable part of the variances in Internet addiction, either directly or indirectly. In addition, the goodness of fit indices was indicative of an acceptable fitness (CFI=0.96, NFI=0.94, IFI=0.92, RMSEA=0.17). Conclusion: Considering the fit indices, path coefficients, and the significance level, it can be maintained that the presented model for Internet addiction has an acceptable goodness of fit and that it explains 75% of the variance in participants' Internet addiction.

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Social Support Exchanges in Facebook Social Support Group

Cited by 20 publications

References 20 publications

Co-creating a knowledge base in the “22q11.2 deletion syndrome” community

Co-creating a knowledge base in the “22q11.2 deletion syndrome” community

The Internet as an additional source of Information on rare illness. A Facebook support group for parents of children with craniosynostosis as a case study

The Role of Psychiatric Symptoms, Social Support and Meaning in Life in Predicting Internet Addiction Among University Students: A Causal Model

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