Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability

Lei, Xianmei; Kantor, Jiří

doi:10.1080/20473869.2020.1803706

Cited by 30 publications

(29 citation statements)

References 46 publications

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“…Families identified as high on family cohesion (i.e., enmeshed) could implement more positive coping strategies [ 13 ]. A recent study suggested family cohesion and adaptability completely mediated the relationship between social support and caregivers’ satisfaction on family quality of life [ 14 ]. In a study of parents of preschool children, Wang et al [ 15 ] reported family cohesion and adaptability had effects on children’s mental development.…”

Section: Introductionmentioning

confidence: 99%

Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder

Lei

Kantor

2021

IJERPH

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Families caring for children with autism spectrum disorder (ASD) have reported poorer family functioning. Social support might strengthen family functioning, but limited research to date has focused on this association in China. This study conducted a cross-sectional survey of Chinese families that have children with ASD to examine the relationship between social support and family functioning. Caregivers of children with ASD from Sichuan province in China (N = 167) were surveyed concerning their perceived social support and family functioning. The Social Support Rating Scale was used to investigate caregivers’ perceived social support from three dimensions: subjective support, objective support, and the utilization of support. A Chinese version of the Family Adaptability and Cohesion Scale was used to investigate their perceptions of family cohesion and adaptability. The Pearson correlation coefficient and stepwise multiple regression were used for analyses. The results suggested that social support was positively related to family cohesion and adaptability. Of the three sub-domains of social support, both subjective support and the utilization of support were positively associated with family cohesion and adaptability. The study’s findings evidenced the importance of different types of social support and could be used to develop a targeted support service for families that have children with ASD to improve their family functioning and sustain the family unit.

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Section: Introductionmentioning

confidence: 99%

Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder

Lei

Kantor

2021

IJERPH

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“…The literature shows a pronounced interest in carrying out studies that represent an advance in this field of knowledge [ 30 ]. In this sense, research reports effective mechanisms and actions to address this disorder in the best possible way [ 25 , 31 , 32 , 33 , 34 , 35 , 36 , 37 ]. With the completion of this study, we have tried to analyze all the literature concerning ASD and the family environment, in order to report the most significant and relevant findings that the scientific community has obtained on the state of the matter.…”

Section: Discussionmentioning

confidence: 99%

“…These interventions must pursue quality rather than quantity [ 35 ]. State-of-the-art research postulates that adequate family cohesion can be beneficial to improving the quality of life of family members of people with ASD [ 36 ]. Likewise, the literature also reveals how companion animals can cause good results in reducing stress, both in people with ASD and in other members of the family unit [ 37 ].…”

Section: Introductionmentioning

confidence: 99%

Evolution of the Autism Literature and the Influence of Parents: A Scientific Mapping in Web of Science

et al. 2021

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Parents interventions are relevant to address autism spectrum disorder (ASD). The objective of this study is to analyze the importance and evolution of ASD and its relationship with the parents (ASD-PAR) in the publications indexed in Web of Science. For this, a bibliometric methodology has been used, based on a scientific mapping of the reported documents. We have worked with an analysis unit of 1381 documents. The results show that the beginnings of scientific production date back to 1971. There are two clearly differentiated moments in scientific production. A first moment (1971–2004), where the production volume is low. A second moment (2005–2019), where the volume of production increases considerably. Therefore, it can be said that the subject began to be relevant for the scientific community from 2005 to the present. The keyword match rate between set periods marks a high level of match between periods. It is concluded that the main focus of the research on ASD-PAR is on the stress that is generated in families with children with ASD, in addition to the family problems that the fact that these children also have behavior problems can cause.

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“…Autism spectrum disorder (ASD) is a group of neurodevelopmental disorders, including defects in social interactions, verbal and nonverbal communication and the existence of repetitive behaviors and limited interests [1,2]. ASD is being increasingly recognized and over the past three decades, rates of ASD have increased dramatically [3,4]. According to the latest estimates from the Centers for Disease Control and Prevention (CDC) in the United States, about 1 in 54 children have been identi ed with ASD [4].…”

Section: Introductionmentioning

confidence: 99%

“…ASD is being increasingly recognized and over the past three decades, rates of ASD have increased dramatically [3,4]. According to the latest estimates from the Centers for Disease Control and Prevention (CDC) in the United States, about 1 in 54 children have been identi ed with ASD [4]. Since there is no effective treatment, it can leave children with autism and their families for a lifetime facing adverse consequences related to behavioral dysfunction.…”

Section: Introductionmentioning

confidence: 99%

Reliability and Validity of the Persian Version of the Quality of Life in Autism Questionnaire (QoLA) - Parent Version in Iranian Mothers

Hosseini

Beheshti

Eapen

et al. 2021

Preprint

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Background: Parents of children with autism spectrum disorder (ASD) are known to poorer quality of life. The Quality of Life in Autism Questionnaire (QoLA) is a commonly used instrument for measuring the quality of life in parents of children with ASD. The aim of this study was to evaluate the reliability and validity of the QoLA in Iranian mothers of children with ASD.Methods: The sample of this methodological study consisted of 88 mothers of children with ASD in Arak, Iran. The data were collected using convenience sampling method between September 2019 and January 2020. A battery of questionnaires was administered to mothers which included the QoLA, Patient Health Questionnaire-9 (PHQ-9), Generalized Anxiety Disorder-7 (GAD-7), and Perceived Stress Scale-4 (PSS-4). Factor structure and internal consistency of the QoLA were examined via confirmatory factor analysis (CFA) and Cronbach’s alpha, respectively. Convergent validity was examined by relationship with WHOQOL-BREF, PHQ-9, GAD-7 and PSS-4.Results: The mean total scores of QoLA Part A and Part B were 86.50 (SD=13.89) and 61.41 (SD=18.21), respectively. Both subscales exhibited good internal validity (with Cronbach’s alpha of 0.899 and 0.950 for Part A and Part B, respectively). The convergent validity of both subscales of QoLA was proved via moderate to strong correlations with measure of the WHOQOL-BREF. In addition, both QoLA Part A and Part B scores were negatively correlated with measures of PHQ-9, GAD-7, and PSS-4. The confirmatory factor analyses provided evidence for unidimensionality of both subscales of QoLA.Conclusion: The Persian version of QoLA displays satisfactory reliability and validity in Iranian mothers of children with ASD.

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Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability

Cited by 30 publications

References 46 publications

Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder

Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder

Evolution of the Autism Literature and the Influence of Parents: A Scientific Mapping in Web of Science

Reliability and Validity of the Persian Version of the Quality of Life in Autism Questionnaire (QoLA) - Parent Version in Iranian Mothers

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