Social pedagogy as a model to provide support for siblings of children with intellectual disabilities

Carter, Sid; Cook, James R.; Sutton-Boulton, Gary; Ward, Vicki; Clarke, Steve

doi:10.1177/1744629515586516

Cited by 9 publications

(10 citation statements)

References 32 publications

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“…These literacy narratives align with previous literacy research that show that parents within the dis/ability community need and search for ways to connect with others for both emotional and educational purposes (Carter et al, 2016; Gibbons & Gibbons, 2016; Gilson et al, 2018; Luijkx et al, 2016; Resch et al, 2012). To form these connections, parents reach out to those in similar situations to share texts and other literary resources.…”

Section: Discussionsupporting

confidence: 81%

“Just Bring Me Some Books to Read”: Exploring Parental Literacy Narratives Within the Dis/ability Community

Berglund¹

2021

J Adolescent & Adult Lit

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Parents of individuals with dis/abilities often grapple with their child’s dis/ability, as parents mediate their own experiences surrounding dis/ability. This research specifically investigates the literacy narratives in which parents reveal the literacy tools and practices they engaged with and in to aid in forming their own conceptions of dis/ability. Through narrative inquiry, three interviews with parents of children with dis/abilities were analyzed using postconventional perspectives of dis/ability to highlight the destabilization and multifaceted nature of dis/ability and the dis/ability experience. Findings drawn from parents’ literacy narratives suggest that parents have literacy experiences that stretch well beyond themselves and their immediate families and into the larger dis/ability community. Implications show that more pedagogical and communal resources are needed to support parents within the dis/ability community, as they search for ways to connect with others for emotional and educational purposes.

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Section: Discussionsupporting

confidence: 81%

“Just Bring Me Some Books to Read”: Exploring Parental Literacy Narratives Within the Dis/ability Community

Berglund¹

2021

J Adolescent & Adult Lit

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“…This finding is consistent with the study for the siblings of people diagnosed with a mental disorder that showed siblings mature faster and support their family [ 24 ]. Siblings played a significant role as emotional support and advocates [ 25 ] thus, siblings could facilitate adaptation and enhance the resilience of adolescents with disease [ 25 ]. The presence of siblings may be vital in helping to maintain a sense of security and emotional continuity, as well as self-identity [ 26 ].…”

Section: Discussionmentioning

confidence: 99%

Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study

Yun

Lee

2018

Health Qual Life Outcomes

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BackgroundThe focus of clinical care after the repair of congenital heart disease has shifted from saving life of the patient to the patient’s quality of life. The purpose of this study was to examine the health condition and familial factors associated with the health related quality of life of adolescents with congenital heart disease.MethodsNinety-eight adolescents aged 13–19 years were collected from a congenital heart clinic from July 22 to August 23, 2013. Perceptions of parental rearing behaviors, health related quality of life of adolescent with congenital heart disease, and general characteristics were measured. We used multiple linear regression analysis to explore factors that are associated with the health related quality of life of adolescents with congenital heart disease.ResultsNew York heart association class (Adj R2 = .186, p = .000), presence of siblings (Adj R2 = .240, p = .010), and mother’s emotional warmth (Adj R2 = .265, p = .043) were significantly associated with the health related quality of life of adolescents with congenital heart disease.ConclusionsEmotionally warm parental rearing behaviors and the presence of siblings were important familial factors that were positively associated with HRQOL in adolescents with CHD. Therefore, it is important for healthcare providers to develop a greater sensitivity to, and awareness of, the familial influences that may be impacting a subject’s HRQOL, as well as the exigencies of the CHD, itself.

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“…living in a neighborhood with a helpful atmosphere) can increase mothers' hope. On the contrary, for mothers of multiple children with and without intellectual disabilities, it might be necessary to provide them with the support for their children without disabilities, such as creating a peer group using social pedagogy (Carter et al, 2016).…”

Section: Discussionmentioning

confidence: 99%

Having another child without intellectual disabilities: Comparing mothers of a single child with disability and mothers of multiple children with and without disability

Kimura

Yamazaki

2017

J Intellect Disabil

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To investigate how having a child without a disability is related to maternal mental health and its predictors, we compared mothers of a single child with intellectual disabilities (single-child group, n = 117) and mothers of children with and without intellectual disabilities (multiple-children group, n = 457), in Japan. Compared to the multiple-children group, the single-child group had lower hope and social capital and poorer mental health; furthermore, 42.5% of them had decided not to have another child, despite desiring one. Hope was the strongest predictor of mental health in both groups but was more positively related to mental health in the multiple-children group. The fear of the possibility of the next child having a disability and receiving inadequate support were the obstacles for mothers who had decided not to have another child. Thus, greater support and more opportunities for obtaining adequate information about the implications of having another child may be needed.

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Social pedagogy as a model to provide support for siblings of children with intellectual disabilities

Cited by 9 publications

References 32 publications

“Just Bring Me Some Books to Read”: Exploring Parental Literacy Narratives Within the Dis/ability Community

“Just Bring Me Some Books to Read”: Exploring Parental Literacy Narratives Within the Dis/ability Community

Health condition and familial factors associated with health-related quality of life in adolescents with congenital heart disease: a cross sectional study

Having another child without intellectual disabilities: Comparing mothers of a single child with disability and mothers of multiple children with and without disability

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