Social media use by patients with glaucoma: what can we learn?

McGregor, Freia; Somner, John; Bourne, Rupert R A; Munn‐Giddings, Carol; Shah, Peter; Cross, Vinette

doi:10.1111/opo.12093

Cited by 49 publications

(49 citation statements)

References 29 publications

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“…Although Twitter has been identified as a valuable source of information for other health issues [14], users would not likely learn about prostate and testicular cancers in Movemberrelated conversations on this social networking site. The tweets that explicitly mentioned one of the official Movember 2013 campaign health agenda items were mostly about prostate cancer.…”

Section: Discussionmentioning

confidence: 99%

Tweeting About Prostate and Testicular Cancers: Do Twitter Conversations and the 2013 Movember Canada Campaign Objectives Align?

Bravo

Hoffman‐Goetz

2015

J Canc Educ

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Prostate cancer is the most frequently diagnosed cancer of the reproductive system in men. Mass media campaigns have long been a tool for raising awareness of important health issues and changing health behavior. The Movember campaign was launched in Canada in 2007 with the goal of creating conversations about men's health in order to raise awareness and understanding about prostate cancer. In 2012, testicular cancer was added to the Movember Canada campaign agenda. Social networking sites such as Twitter are popular platforms for conversations in the digital age. Our objective was to determine if the Movember Canada 2013 campaign accomplished the goal of creating conversations about prostate and testicular cancers on the social media platform of Twitter. We conducted a content analysis of 4222 Canadian tweets posted during the November 2013 Movember Canada campaign to investigate whether tweets were health-related or non-health-related and to determine what topics of discussion were present in the tweets. There were significantly fewer health-related (n = 673) than non-health-related (n = 3549) tweets (p < 0.05). Few tweets (0.6 % of all tweets) referenced prostate or testicular cancers. Community engagement activities as well as moustache and grooming references were the most frequent topics in the health-related (10.49 and 1.97 %) and non-health-related (32.83 and 32.76 %) categories, which were significantly different by topic (p < 0.05). Findings from Twitter suggest that the Movember Canada 2013 did not meet the stated campaign objective of creating conversations about men's health and, specifically, about prostate and testicular cancers.

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Section: Discussionmentioning

confidence: 99%

Tweeting About Prostate and Testicular Cancers: Do Twitter Conversations and the 2013 Movember Canada Campaign Objectives Align?

Bravo

Hoffman‐Goetz

2015

J Canc Educ

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“…To survey online social media, we used the systematic approach detailed below. As analysis of social media is still in its infancy in health care, and especially in otolaryngology, we drew from studies in other disciplines for the methodological basis of our study, notably a study by McGregor et al (2014), which investigated the use of social media by patients with glaucoma. All online searches were conducted in February 2014.…”

Section: Methodsmentioning

confidence: 99%

“…As this is the first study of social media in the CI community, there are no previously validated functional categories. Therefore, the above categories were determined based on a combination of categories in the social media literature and topics found to be of specific interest to the CI community (Gold et al, 2011; McGregor et al, 2014; Moorhead et al, 2013). …”

Section: Methodsmentioning

confidence: 99%

Social Media Utilization in the Cochlear Implant Community

et al. 2015

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Background More than 200,000 individuals worldwide have received a cochlear implant (CI). Social media Websites may provide a paramedical community for those who possess or are interested in a CI. The utilization patterns of social media by the CI community, however, have not been thoroughly investigated. Purpose The purpose of this study was to investigate participation of the CI community in social media Websites. Research Design We conducted a systematic survey of online CI-related social media sources. Using standard search engines, the search terms cochlear implant, auditory implant, forum, and blog identified relevant social media platforms and Websites. Social media participation was quantified by indices of membership and posts. Study Sample Social media sources included Facebook, Twitter, YouTube, blogs, and online forums. Each source was assigned one of six functional categories based on its description. Intervention No intervention was performed. Data Collection and Analysis We conducted all online searches in February 2014. Total counts of each CI-related social media source were summed, and descriptive statistics were calculated. Results More than 350 sources were identified, including 60 Facebook groups, 36 Facebook pages, 48 Twitter accounts, 121 YouTube videos, 13 forums, and 95 blogs. The most active online communities were Twitter accounts, which totaled 35,577 members, and Facebook groups, which totaled 17,971 members. CI users participated in Facebook groups primarily for general information/support (68%). Online forums were the next most active online communities by membership. The largest forum contained approximately 9,500 topics with roughly 127,000 posts. CI users primarily shared personal stories through blogs (92%), Twitter (71%), and YouTube (62%). Conclusions The CI community engages in the use of a wide range of online social media sources. The CI community uses social media for support, advocacy, rehabilitation information, research endeavors, and sharing of personal experiences. Future studies are needed to investigate how social media Websites may be harnessed to improve patient-provider relationships and potentially used to augment patient education.

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“…To the best of our knowledge, this is the first analysis of Twitter seeking to discover the areas of interest raised online regarding biological therapies for chronic inflammatory arthropathies. Similar studies have been conducted for other diseases such as cancer,6 multiple sclerosis,7 glaucoma9 and cardiovascular diseases 10…”

Section: Discussionmentioning

confidence: 53%

Content analysis of Twitter in relation to biological treatments for chronic inflammatory arthropathies: an exploratory study

et al. 2018

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ObjectiveTo analyse the volume and content of tweets in relation to biological treatments for chronic inflammatory arthropathies.MethodsA Twitter analysis was carried out during one month using the following keywords: ’rheumatoid arthritis', ’ankylosing spondylitis', ’psoriatic arthritis' and their biological therapies: ’abatacept', ’adalimumab', ’certolizumab', ’etanercept', ’golimumab', ’infliximab' and ’tocilizumab'. Tweets were hand-coded and filtered for content.Results25 441 tweets contained at least one of the keywords. After filtering, 2480 tweets were included in the analysis. Regarding the 983 tweets about therapies, the most frequently mentioned biologics were ’adalimumab' (n=359), ’infliximab' (n= 278) and ’etanercept' (n= 205). In the 1497 tweets about diseases, the term ’rheumatoid arthritis' (n= 1109) was used more frequently than ’psoriatic arthritis' (n= 233) and ’ankylosing spondylitis' (n= 155). The most commonly addressed subjects in the tweets in relation to biological therapies were related to safety/adverse events (136 of 983 (13.8%)) and to administration, particularly drug infusion (60 of 983 (6.1%)) and self-administration (57 of 983 (5.8%)). Regarding diseases, the most commonly addressed subjects were non-pharmacological recommendations such as alternative therapies (145 of 1497 (9.7%)), nutrition (128 of 1497 (8.5%)) and exercise (91 of 1497 (6.1%)).ConclusionsTwitter is widely used to search for information about biological treatments for chronic athropathies. Learning more about the subjects dealt with in the tweets will enable us to improve our understanding of the areas of greater interest and concern among patients. This could help hospital pharmacists establish patient-focused strategies addressing the needs of the patients.

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Social media use by patients with glaucoma: what can we learn?

Cited by 49 publications

References 29 publications

Tweeting About Prostate and Testicular Cancers: Do Twitter Conversations and the 2013 Movember Canada Campaign Objectives Align?

Tweeting About Prostate and Testicular Cancers: Do Twitter Conversations and the 2013 Movember Canada Campaign Objectives Align?

Social Media Utilization in the Cochlear Implant Community

Content analysis of Twitter in relation to biological treatments for chronic inflammatory arthropathies: an exploratory study

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