Social Media's Role in Otolaryngology–Head and Neck Surgery: Informing Clinicians, Empowering Patients

Steehler, Kevin; Steehler, Matthew K.; Pierce, Matthew L.; Harley, Earl H.

doi:10.1177/0194599813501463

Cited by 31 publications

(40 citation statements)

References 3 publications

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“…Social media provide opportunities to address patient expectations, offer education, receive feedback, and communicate on topics that may appeal to a wider audience of patients and families (Steehler et al, 2013). The role of social media in health care and the patient experience has been studied in the oncology (Dizon et al, 2012; Simmons et al, 2014; West, 2013) and psychiatry literature (Afsar, 2013; Landoll et al, 2013; Livingston et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Social Media Utilization in the Cochlear Implant Community

et al. 2015

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Background More than 200,000 individuals worldwide have received a cochlear implant (CI). Social media Websites may provide a paramedical community for those who possess or are interested in a CI. The utilization patterns of social media by the CI community, however, have not been thoroughly investigated. Purpose The purpose of this study was to investigate participation of the CI community in social media Websites. Research Design We conducted a systematic survey of online CI-related social media sources. Using standard search engines, the search terms cochlear implant, auditory implant, forum, and blog identified relevant social media platforms and Websites. Social media participation was quantified by indices of membership and posts. Study Sample Social media sources included Facebook, Twitter, YouTube, blogs, and online forums. Each source was assigned one of six functional categories based on its description. Intervention No intervention was performed. Data Collection and Analysis We conducted all online searches in February 2014. Total counts of each CI-related social media source were summed, and descriptive statistics were calculated. Results More than 350 sources were identified, including 60 Facebook groups, 36 Facebook pages, 48 Twitter accounts, 121 YouTube videos, 13 forums, and 95 blogs. The most active online communities were Twitter accounts, which totaled 35,577 members, and Facebook groups, which totaled 17,971 members. CI users participated in Facebook groups primarily for general information/support (68%). Online forums were the next most active online communities by membership. The largest forum contained approximately 9,500 topics with roughly 127,000 posts. CI users primarily shared personal stories through blogs (92%), Twitter (71%), and YouTube (62%). Conclusions The CI community engages in the use of a wide range of online social media sources. The CI community uses social media for support, advocacy, rehabilitation information, research endeavors, and sharing of personal experiences. Future studies are needed to investigate how social media Websites may be harnessed to improve patient-provider relationships and potentially used to augment patient education.

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Section: Introductionmentioning

confidence: 99%

Social Media Utilization in the Cochlear Implant Community

et al. 2015

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“…The internet enables patients to access health information 8 (from websites or the PHR) and share information about their disease risk with others through email or on social media platforms. Gaining further insight into the patient’s information seeking and sharing behaviors following disclosure of disease risk for health promotion may help ensure available, accessible, and high quality health information, to enable patients (i.e., e-patients 2 ) to engage with their physicians.…”

Section: Introductionmentioning

confidence: 99%

Effect of Disclosing Genetic Risk for Coronary Heart Disease on Information Seeking and Sharing

Brown

Jouni

Marroush

et al. 2017

Circ Cardiovasc Genet

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Background Whether disclosing genetic risk for coronary heart disease (CHD) to individuals influences information seeking and information sharing is not known. We hypothesized that disclosing genetic risk for coronary heart disease (CHD) to individuals influences information seeking and sharing. Methods and Results The Myocardial Infarction Genes (MI-GENES) study randomized participants (n=203) aged 45–65 years who were at intermediate CHD risk based on conventional risk factors and not on statins, to receive their conventional risk score (CRS) alone or also a genetic risk score (GRS) based on 28 variants. CHD risk was disclosed by a genetic counselor and then discussed with a physician. Surveys assessing information seeking were completed before and after risk disclosure. Information sharing was assessed post-disclosure. Six months post-disclosure, GRS participants were more likely than CRS participants to visit a website to learn about CHD (OR 4.88 (1.55–19.13), P=.01), use the internet for information about how genetic factors affect CHD risk (OR 2.11 (1.03–4.47), P=.04), access their CHD risk via a Patient Portal (OR 2.99 (1.35–7.04), P=.01), and discuss their CHD risk with others (OR 3.13 (1.41–7.47), P=.01), particularly their siblings (OR 1.92 (1.06–3.51), P=.03), extended family (OR 3.8 (1.37–12.38), P=.01), co-workers (OR 2.42 (1.09–5.76), P=.03), and primary care provider (PCP) (OR 2.00 (1.08–3.75), P=.03). Conclusions Disclosure of a GRS for CHD increased information seeking and sharing. Clinical Trial Registration https://clinicaltrials.gov/; Unique Identifier: NCT01936675.

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“…McGee and Begg define Web 2.0 as a “collection of Web‐based technologies that share a user‐focused approach to design and functionality, where users actively participate in content creation and editing through open collaboration between members and communities of practice.” (p164) Within medicine, social media has been used to share important concepts in a year‐long elective ultrasound course, develop a monthly international urology journal club, and report on national medical conferences . Even within otolaryngology, the use of social media and apps is increasingly described …”

Section: Introductionmentioning

confidence: 99%

“…1,[6][7][8][9][10] Even within otolaryngology, the use of social media and apps is increasingly described. 11,12 Although almost all physicians own a smartphone, 13 and the Apple App store (iOS) and Google Play (Android) feature a dedicated medical app category, available apps currently do not seem to fulfill physician expectations. Apps regarding general medical knowledge are frequently requested but infrequently used.…”

Section: Introductionmentioning

confidence: 99%