Social Media Representation of Chronic Cerebrospinal Venous Insufficiency Intervention for Multiple Sclerosis

Ghahari, Setareh; Forwell, Susan

doi:10.7224/1537-2073.2014-073

Cited by 13 publications

(11 citation statements)

References 24 publications

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“…In 2009, in response to the proposed controversial MS therapy based on the unproven chronic cerebrospinal venous insufficiency (CCSVI) theory of MS etiology, 10 the BartsMS Blog was set up, 11 representing a turning point in enhancing the digital presence to promote quality of care, to spread valid information, and to contrast misinformation. The BartsMS Blog has since grown as a model for dissemination of evidence-based information, supported by a team of researchers and clinicians that focus on a wide range of issues in MS research, diagnosis, treatment, and much more.…”

Section: Digital Opinion Leaders In E-health and Msmentioning

confidence: 99%

e-Health and multiple sclerosis: An update

Lavorgna

Brigo

Moccia³

et al. 2018

Mult Scler

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e-Health (or digital healthcare) is becoming increasingly relevant in multiple sclerosis (MS) clinical management. We aim to review and discuss current status and future perspective of e-health in people with multiple sclerosis (pwMS). The first part of this review describes how information on MS can be conveyed through the Web and digital media. The second part illustrates recent advances in digital technology that can improve clinical management and in motor and cognitive rehabilitation of pwMS. Finally, this review advocates future development of the "digital case manager" as a new figure to coordinate clinical management and care of pwMS. The digital revolution is changing the medical approach to MS in terms of information conveying and sharing, rehabilitation, and healthcare management.

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Section: Digital Opinion Leaders In E-health and Msmentioning

confidence: 99%

e-Health and multiple sclerosis: An update

Lavorgna

Brigo

Moccia³

et al. 2018

Mult Scler

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“…The potential link between the pathogenesis of MS and CCSVI has generated tremendous interest in the scientific community and in the news media [17].…”

Section: Introductionmentioning

confidence: 99%

Failure of the vascular hypothesis of multiple sclerosis in a rat model of chronic cerebrospinal venous insufficiency

Zakaria¹,

Mikhael²,

Hussein³

et al. 2017

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A b s t r a c t Chronic cerebrospinal venous insufficiency (CCSVI) is a series of stenotic malformations in the cerebrospinal venous outflow routes, which is postulated to cause multiple sclerosis (MS). The hypotheses assumed that CCSVI leads to iron deposition which triggers inflammation and demyelination in MS. Invasive endovascular treatment of CCSVI was initiated based on the previous theory. The present study was designed to validate this hypothesis using a rat model of CCSVI. Bilateral jugular vein ligation (JVL) was performed on female albino rats (n = 15), and sham-operated rats (n = 15) were used as a control group. The rats were followed clinically for eight months and neurological examination detected no weakness or paralysis in the operated

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“…Studies of CCSVI reinforced the need for HCPs to provide patients with adequate and accurate information. 15 Reviewing concerns on social media by HCPs can assist in providing ongoing adequate information/education for current and future patients; the objective of this study falls in this domain. 16 Administration of this peer-to-peer Facebook group by five core members who have personal experience with alemtuzumab treatment for MS seems appropriate, with clear guidelines/structure on the purpose of the group and type of information allowed.…”

Section: Discussionmentioning

confidence: 99%

Alemtuzumab in Multiple Sclerosis: Lessons from Social Media in Enhancing Patient Care

Rath¹,

Vijiaratnam²,

Skibina³

2017

International Journal of MS Care

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CME/CNE Information Activity Available Online: To access the article, post-test, and evaluation online, go to http://www.cmscscholar.org. Target Audience: The target audience for this activity is physicians, physician assistants, nursing professionals, and other health-care providers involved in the management of patients with multiple sclerosis (MS). Learning Objectives: Accreditation Statement: This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the Consortium of Multiple Sclerosis Centers (CMSC), Nurse Practitioner Alternatives (NPA), and Delaware Media Group. The CMSC is accredited by the ACCME to provide continuing medical education for physicians. The CMSC designates this journal-based CME activity for a maximum of 1.0 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Nurse Practitioner Alternatives (NPA) is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation. NPA designates this enduring material for 1.0 Continuing Nursing Education credit (1.0 in the area of pharmacology). Laurie Scudder, DNP, NP, has served as Nurse Planner and reviewer for this activity. She has disclosed no relevant financial relationships. Disclosures: Editor in Chief of the International Journal of MS Care (IJMSC), has served as Physician Planner for this activity. He has received royalties from Springer Publishing, received intellectual property rights/patent holder from Biogen, and has performed contracted research for Biogen.Francois Bethoux, MD, has served as Nurse Planner and reviewer for this activity. She has disclosed no relevant financial relationships.Laurie Scudder, DNP, NP, has received a travel grant from Genzyme.Louise Rath, MA (Bioethics), Grad Dip Crit Care, BA, RN, , has disclosed no relevant financial relationships.Nirosen Vijiaratnam, MBBS, BMedSci , has served on a speakers' bureau for and received a travel grant from Genzyme.Olga Skibina, MD, FRACP The anonymous peer reviewers for the IJMSC have disclosed no relevant financial relationships. The staff at the IJMSC, CMSC, NPA, and Delaware Media Group who are in a position to influence content have disclosed no relevant financial relationships. Note: Disclosures listed for authors are those applicable at the time of their work on this project and within 12 months previously. Financial relationships for some authors may have changed in the interval between the time of their work on this project and publication of the article and/or the authors may list other older disclosures at the end of the article. Method of Participation: Release Date: December 1, 2017 Valid for Credit Through: December 1, 2018 In order to receive CME/CNE credit, participants must: Statements of Credit are awarded upon successful completion of the post-test with a passing score of >70% and the evaluation. There is no fee to participate in this activity. Disclosure of Unlabeled Use: This CME/CNE activity may contain discussion of published and/or investigational uses of agents that are not approved by the FDA. CMSC, NPA, and Delaware Media Group do not recommend the use of any agent outside of the labeled indications. The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of CMSC, NPA, or Delaware Media Group. Disclaimer: Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any medications, diagnostic procedures, or treatments discussed in this publication should not be used by clinicians or other health-care professionals without first evaluating their patients' conditions, considering possible contraindications or risks, reviewing any applicable manufacturer's product information, and comparing any therapeutic approach with the recommendations of other authorities.

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Social Media Representation of Chronic Cerebrospinal Venous Insufficiency Intervention for Multiple Sclerosis

Cited by 13 publications

References 24 publications

e-Health and multiple sclerosis: An update

e-Health and multiple sclerosis: An update

Failure of the vascular hypothesis of multiple sclerosis in a rat model of chronic cerebrospinal venous insufficiency

Alemtuzumab in Multiple Sclerosis: Lessons from Social Media in Enhancing Patient Care

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