Social Media Perceptions of Legacy-Making: A Qualitative Analysis

Sokol, Leonard L.; Jordan, Sarah; Applebaum, Allison J.; Hauser, Joshua; Forlizzi, Jodi; Cerf, Moran; Lum, Hillary D.

doi:10.1089/pmr.2020.0069

Cited by 3 publications

(4 citation statements)

References 18 publications

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“…To conclude, the findings indicate that a clinical laboratory in a developing country can be competitive within the 4IR environment, possibly with the introduction of connected instruments, which reduces the levels of human interference in the work carried out using instruments (Applebaum et al 2020). Sustainable growth in market share based on competitiveness linked to a sound strategy is shown to allow for an improved clinical laboratory, according to the research findings; this is also in line with the literature (Ali et al 2018;Machin, Fayers & Tai 2021).…”

Section: Discussion Of the Findingssupporting

confidence: 81%

“…The importance of segmenting the market to identify areas of consideration in strategy formulation was evident in the responses provided by the interviewees. This streamlines the overall strategy by setting goals along the requirements of the segmented market, which is in line with the literature on the topics (Applebaum et al 2020).…”

Section: Discussion Of the Findingssupporting

confidence: 72%

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Competitiveness of a clinical laboratory within the Fourth Industrial Revolution

Kadira,

Rossouw

2023

Acta Commercii

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Orientation: A clinical laboratory supports research for drugs, vaccine and device development. These laboratories in developing countries seem not to fully use technology arising from the Fourth Industrial Revolution (4IR) to enhance their competitiveness and, consequently, market share. Research purpose:The purpose was to explore how a clinical laboratory in a developing country may become more competitive by implementing strategies in support of 4IR advancements.Motivation for the study: This study attempted to reflect literature on the topics of 4IR and competitiveness and also to acquire an understanding of how a clinical laboratory in a developing country can use 4IR technology to improve its competitiveness.Research design, approach and method: This study followed an interpretive paradigm and a qualitative enquiry, supported by a case study strategy. Data were collected by means of semistructured interviews with 20 purposively selected stakeholders from the clinical laboratory. Conventional content analysis was applied to create codes, groups and themes.Main findings: It was found that a clinical laboratory in a developing country can be competitive within the 4IR environment, and a link was established between strategy, 4IR and the improvement of competitiveness of the clinical laboratory. Practical/managerial implications:The clinical laboratory has to build a strategy around the latest technology to ensure competitiveness and growth in its operations. The 4IR will also require continuous upgrades of new technology, and staff should be made part of this process. Contribution/value-add:The developing world has to catch up with the advanced economies. To assist in this, this study concludes that strategies supporting 4IR technology advancements can improve the competitiveness and sustainable growth of a clinical laboratory.

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Section: Discussion Of the Findingssupporting

confidence: 81%

Section: Discussion Of the Findingssupporting

confidence: 72%

Competitiveness of a clinical laboratory within the Fourth Industrial Revolution

Kadira,

Rossouw

2023

Acta Commercii

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“…Other factors may more substantially contribute to ACP engagement in HD. Previous studies in other serious illnesses suggest coping behaviors, 32 personalities, self-esteem, illness-specific factors (e.g., stage, age), care partner involvement, behavioral change knowledge, prognostic awareness, readiness to talk about the future, and the attitudes of health care professionals. 13 …”

Section: Discussionmentioning

confidence: 98%

Advance Care Planning and Health-Related Quality of Life in Huntington Disease: Results from a Multicenter National Study

Sokol

Troost

Bega

et al. 2023

Palliative Medicine Reports

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Objective: With Huntington disease (HD), a fatal neurodegenerative disease where the prevalence of suicidal thoughts and behavior (STB) remains elevated as compared to other neurological disorders, it is unknown whether STB and health-related quality of life (HRQoL) affect plans for the end of life or more broadly, advance care planning (ACP). Conversely, it is unknown whether ACP would provoke future changes to STB and HRQoL. Therefore, we sought to evaluate whether STB and HRQoL patient-reported outcomes (PROs) contribute to ACP and whether ACP relates to changes in STB and HRQoL at 24 months. Methods: HD-validated clinician- and patient-assessments (i.e., HRQoL PROs) were obtained at baseline enrollment, 12 and 24 months through our multi-center study (HDQLIFE™) throughout the United States among people with premanifest, early-stage, and late-stage manifest HD. We used linear mixed-effects models to determine the relationships between STB and HRQoL at baseline and HDQLIFE End of Life Planning at follow-up. Separate linear mixed-effects models were used to assess the relationship between HDQLIFE End of Life Planning at baseline, and HRQoL and STB at 12 and 24 months. False discovery rate adjustments were used to account for multiple comparisons. Results: At baseline enrollment, STB and HRQoL were not related to HDQLIFE End of Life Planning at 12 or 24 months. Similarly, at baseline, HDQLIFE End of Life Planning demonstrated no association with STB or HRQoL at 12 or 24 months. Interpretation: STB and HRQoL PROs do not significantly affect patient engagement with ACP. Most importantly, engaging in ACP does not cause untoward effects on HRQoL or STB for this rare neurodegenerative disease where the lifetime prevalence of STB approaches 30%.

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“…Which pathway is most potent, and might a sense of meaning and purpose mediate these effects? Utilizing existing models from psycho-oncology and assessing their generalizability and limitations to HD, while adding other legacy-making/coping patterns, 40 religious, spiritual, and personality measurements into the model would be a sensible future direction to capture the entirety of other characteristics that could be exploited during intervention refinement.…”

Section: Discussionmentioning

confidence: 99%

Death Anxiety in Huntington Disease: Longitudinal Heath-Related Quality-of-Life Outcomes

Sokol

Troost

Bega

et al. 2023

Journal of Palliative Medicine

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Objective: Death anxiety, represented by the HDQLIFEÔ Concern with Death and Dying (CwDD) patientreported outcome (PRO) questionnaire, captures a person's worry about the death and dying process. Previous work suggests that death anxiety remains an unremitting burden throughout all stages of Huntington disease (HD). Although palliative interventions have lessened death anxiety among people with advanced cancer, none has yet to undergo testing in the HD population. An account of how death anxiety is associated with longitudinal changes to aspects of health-related quality of life (HRQoL) would help optimize neuropalliative interventions for people with HD. Methods: HDQLIFE collected PROs concerning physical, mental, social, and cognitive HRQoL domains and clinician-rated assessments from people with HD at baseline and 12 and 24 months. Linear mixed-effects models were created to determine how baseline death anxiety was associated with follow-up changes in HRQoL PROs after controlling for baseline death anxiety and other disease and sociodemographic covariates. Results: Higher baseline HDQLIFE CwDD is associated with 12-and 24-month declines in HDQLIFE Speech Difficulties, neurology quality of life (NeuroQoL) Depression, Suicidality, HDQLIFE Meaning and Purpose, and NeuroQoL Positive Affect and Well-being. Interpretation: Death anxiety may be a risk factor for worsening mental health and speech difficulty. A further prospective study is required to evaluate whether interventions on death anxiety or mental health generally can reduce declines in HRQoL for people with HD over time.

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Social Media Perceptions of Legacy-Making: A Qualitative Analysis

Cited by 3 publications

References 18 publications

Competitiveness of a clinical laboratory within the Fourth Industrial Revolution

Competitiveness of a clinical laboratory within the Fourth Industrial Revolution

Advance Care Planning and Health-Related Quality of Life in Huntington Disease: Results from a Multicenter National Study

Death Anxiety in Huntington Disease: Longitudinal Heath-Related Quality-of-Life Outcomes

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