Social Media in Minimally Invasive Gynecologic Surgery: What Is #Trending on Instagram?

Sinha, Risha; Shibata, Renae; Patel, Amitkumar; Sternchos, J.

doi:10.1016/j.jmig.2021.02.011

Cited by 13 publications

(5 citation statements)

References 8 publications

(11 reference statements)

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“…Infertility has become a hot topic on the Internet, and a systematic review showed that infertile women tend to access the Internet to satisfy their information needs, and to find psychological support and medical assistance [ 23 ]. These data were confirmed by a retrospective analysis that found that most posts related to minimally invasive gynaecological surgery on Instagram were about endometriosis and infertility [ 24 ].…”

Section: Discussionmentioning

confidence: 74%

Endometriosis in the time of internet: how web navigation affects women with endometriosis

et al. 2023

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Objectives Patients often search for health-related information on the internet allthough this trend may have some benefits, it also has some risks, such as misinformation. The aim of this study is to evaluate how Internet information seeking affect the level of anxiety in patients with endometriosis. Materials and methods This prospective observational study was conducted at our outpatient clinic between March 2019 and December 2020. We enrolled We enrolled all patients with a confirmed sonographic diagnosis of endometriosis who had sought information about the disease prior to our visit. We divided them into two groups based on the source of information (Internet only vs multiple sources). Before the visit, we asked women to fill-in validated questionnaires about anxiety, such as the Generalized Anxiety Disorder-7 (GAD) and the Spielberg State Trait Anxiety Inventory (STAI- Y6) and the Endometriosis Health Profile (EHP) − 5. After the visit, the STAI-Y6 was resubmitted to each woman. Results We enrolled 200 women who filled-in the questionnaires: 46 reported the Internet as the only source of information, 52 sought information also from medically qualified sources, 74 consulted only healthcare professionals, and 28 resorted to medical journals. Women who used the Internet as their exclusive source of information were younger on average and their STAI-Y6 score after the visit was significantly lower compared to other group (34.1 ± 11.5 vs 42.1 ± 14.7, p = .001). Moreover, the difference between the STAI-Y6 scores before and after our assessment was higher in these women (-18.3 ± 14.7 vs −10.3 ± 16.5, p = .003). Conclusions Women who sought information online were younger, had lower levels of state trait anxiety after our medical evaluation, and a had a greater reduction in anxiety levels after our examination compared to women who consulted other sources to learn more about endometriosis. KEY MESSAGES Women using only Internet are younger than those who use other sources of information. Women who researched symptoms online showed higher pre-examination anxiety levels. Patients with severe pain symptoms consulted both the internet and professionals.

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Section: Discussionmentioning

confidence: 74%

Endometriosis in the time of internet: how web navigation affects women with endometriosis

et al. 2023

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“…In this study, the most common uploaders were doctors, which were about 29.9%, whereas a study by Sinha showed 97.3% of videos uploaded by healthcare authors. 13 The fewest videos uploaded in our study were by the patients, which was about 7.5%. News channels and hospitals were other important contributors, contributing 20.9% and 16.4%, respectively.…”

Section: Resultsmentioning

confidence: 88%

A cross-sectional study to evaluate uploader-based quality and reliability of content on YouTube about endometriosis

Clarke,

Ghotra,

Kuruvila

et al. 2024

Int J Reprod Contracept Obstet Gynecol

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Background: Endometriosis is characterized by the development and presence of endometrial glands and stroma outside of the uterine cavity. Reflux of endometrial tissue fragments, cells, and protein-rich fluid into the pelvis during menstruation is considered the most important mechanism for the development of endometriosis, which is termed reflux menstruation. This study aims to assess quality and reliability of information on YouTube related to endometriosis. Methods: A cross-sectional observational study of YouTube videos was conducted in April 2023. Videos related to endometriosis were searched by six authors, easy using one search term. Relevant videos in English or Hindi language of duration 1-20 minutes were included in the study. These were evaluated for type of uploader, popularity, type of content and lastly quality and reliability using global quality score (GQS) and DISCERN scores respectively. Results: The 67 relevant videos conveying Endometriosis related information had 21,620,808 views, 120,830 likes and 11,655 comments. Around 31 (46.3%) of videos uploaded were by doctors and health care organizations, outnumbering those uploaded by news channels 14 (20.9%), patients 5 (7.5%), and others 17 (25.4%). 59 (88.06%) of these videos described symptoms of endometriosis, and 67.1% presented the cause or etiology. A total of 47 (70.1%) of videos discussed information regarding treatment options. Conclusions: YouTube videos have a wide reach among audience. In this study it was found that there was no significant difference in the quality, reliability or video power index (VPI) of videos uploaded by different types of uploaders. It is important to ensure that content with high quality and reliability is available from qualified medical professionals and organizations; for viewers to understand their disease and take treatment decisions.

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“…In addition, the overall search volume for endometriosis on websites is gradually increasing [ 27 ], and up to 76% of patients with endometriosis use social media for health information [ 8 ]. Moreover, endometriosis is the most popular minimally invasive gynecologic surgery topic on Instagram, with most authors being patients [ 28 ], and videos on TikTok primarily discussing personal experiences with endometriosis garner millions of views and likes [ 29 ].…”

Section: Discussionmentioning

confidence: 99%

“…There were also posts demanding professional advice (“Question for Healthcare Providers! [not personal medical advice]”); however, obtaining such advice can be complicated, as a study based on Instagram posts found that self-identified health care providers accounted for <3% of authors [ 28 ]. Similarly, the study by Blakemore et al [ 35 ] found that most Twitter and Instagram accounts on fertility-related social media were owned by patients, and these accounts were more influential than the physician, academic society, and fertility clinic accounts.…”

Section: Discussionmentioning

confidence: 99%

“…Researchers use social media to promote original research articles published in academic journals and disseminate the research output in various areas among the general public [ 39 ]. However, for example, there are very few posts by health care providers and physicians on Instagram [ 28 ]. In contrast, a study on Facebook pages showed that educational posts, particularly about the epidemiology and pathophysiology of endometriosis, are also popular, and most of the posts’ content was found to be evidence based [ 10 ].…”

Section: Discussionmentioning

confidence: 99%

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Users’ Concerns About Endometriosis on Social Media: Sentiment Analysis and Topic Modeling Study

et al. 2023

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Background Endometriosis is a debilitating and difficult-to-diagnose gynecological disease. Owing to limited information and awareness, women often rely on social media platforms as a support system to engage in discussions regarding their disease-related concerns. Objective This study aimed to apply computational techniques to social media posts to identify discussion topics about endometriosis and to identify themes that require more attention from health care professionals and researchers. We also aimed to explore whether, amid the challenging nature of the disease, there are themes within the endometriosis community that gather posts with positive sentiments. Methods We retrospectively extracted posts from the subreddits r/Endo and r/endometriosis from January 2011 to April 2022. We analyzed 45,693 Reddit posts using sentiment analysis and topic modeling–based methods in machine learning. Results Since 2011, the number of posts and comments has increased steadily. The posts were categorized into 11 categories, and the highest number of posts were related to either asking for information (Question); sharing the experiences (Rant/Vent); or diagnosing and treating endometriosis, especially surgery (Surgery related). Sentiment analysis revealed that 92.09% (42,077/45,693) of posts were associated with negative sentiments, only 2.3% (1053/45,693) expressed positive feelings, and there were no categories with more positive than negative posts. Topic modeling revealed 27 major topics, and the most popular topics were Surgery, Questions/Advice, Diagnosis, and Pain. The Survey/Research topic, which brought together most research-related posts, was the last in terms of posts. Conclusions Our study shows that posts on social media platforms can provide insights into the concerns of women with endometriosis symptoms. The analysis of the posts confirmed that women with endometriosis have to face negative emotions and pain daily. The large number of posts related to asking questions shows that women do not receive sufficient information from physicians and need community support to cope with the disease. Health care professionals should pay more attention to the symptoms and diagnosis of endometriosis, discuss these topics with patients to reduce their dissatisfaction with doctors, and contribute more to the overall well-being of women with endometriosis. Researchers should also become more involved in social media and share new science-based knowledge regarding endometriosis.

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Social Media in Minimally Invasive Gynecologic Surgery: What Is #Trending on Instagram?

Cited by 13 publications

References 8 publications

Endometriosis in the time of internet: how web navigation affects women with endometriosis

Endometriosis in the time of internet: how web navigation affects women with endometriosis

A cross-sectional study to evaluate uploader-based quality and reliability of content on YouTube about endometriosis

Users’ Concerns About Endometriosis on Social Media: Sentiment Analysis and Topic Modeling Study

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