Social media and colorectal cancer: A systematic review of available resources

Pellino, Gianluca; Simillis, Constantinos; Qiu, Shihui; Mills, Sarah; Warren, Oliver; Kontovounisios, Christos; Tekkis, Paris

doi:10.1371/journal.pone.0183031

Cited by 46 publications

(36 citation statements)

References 26 publications

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“…As a trusted and recommended source of information, healthcare workers need to share information clearly and understandably, taking into account several issues such as culture, language, and others (van Mossel et al, 2014). Using social media to share information may give survivors more opportunity to communicate, increase understanding of their conditions (Pellino et al, 2017), and enhancing their health literacy (Aoki, Inoue, 2017). On the other hand, information from social media often lacks validation (Sajid, Shakir, Baig, 2011).…”

Section: Discussionmentioning

confidence: 99%

Perspectives of adult survivors of colorectal cancer with an ostomy on their needs: synthesis of qualitative research studies

Tiranda¹,

Siripul²,

Sangchart³

et al. 2019

Cent Eur J Nurs Midw

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Aim: Colorectal cancer survivors must address the challenges of living with their condition, while their primary needs change over time. The extent to which the needs of survivors are fulfilled is one of the key indicators of success throughout the illness. This study aimed to explore and expand understanding of the needs of adult survivors of CRC with ostomy, according to their own views and experiences. Design: A synthesis of qualitative research studies. Methods: Four electronic databases were used: Scopus, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Proquest, and Science Direct, published 2000-2016, and using PRISMA guidelines as search strategies. The Critical Appraisal Skills Programme qualitative research checklist was used to ensure the quality of the articles. A three-point system was used to estimate the average score for all articles. Results: Initial codes were employed by coding the primary study line-by-line. The codes were then structured into eight descriptive themes, and, finally, three new analytical themes were established, including information needs, experiences of having stoma, and surviving for a better life. Conclusion: Information related to the illness is pivotal for CRC survivors in dealing with their current and future conditions. In addition, support from those closest to them, family, and healthcare workers has a positive impact on the acceptance of the illness and the will to survive. Determining the subjective needs of adult CRC survivors with ostomies is crucial if they are to be helped to adapt successfully to conditions and to continue living normal lives.

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Section: Discussionmentioning

confidence: 99%

Perspectives of adult survivors of colorectal cancer with an ostomy on their needs: synthesis of qualitative research studies

Tiranda¹,

Siripul²,

Sangchart³

et al. 2019

Cent Eur J Nurs Midw

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“…We administered the survey internationally as a reflection of growing exchange of information and support between individuals with CRC from different countries, largely due to rising popularity online communities and use of social media (e.g. Facebook groups, Instagram) [ 14 – 16 ]. Participants were eligible for the study if they: 1) were 18 years of age or older; 2) received a diagnosis of CRC; and 3) were able to complete the online health survey in English, French, Spanish, or Mandarin.…”

Section: Methodsmentioning

confidence: 99%

Assessing how health information needs of individuals with colorectal cancer are met across the care continuum: an international cross-sectional survey

et al. 2020

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Background Studies evaluating health information needs in colorectal cancer (CRC) lack specificity in terms of study samples involving patients. We assessed how health information needs of individuals with CRC are met across the care continuum. Methods We administered an international, online based survey. Participants were eligible for the study if they: 1) were 18 years of age or older; 2) received a diagnosis of CRC; and 3) were able to complete the online health survey in English, French, Spanish, or Mandarin. We grouped participants according to treatment status. The survey comprised sections: 1) demographic and cancer characteristics; 2) health information needs; and 3) health status and quality of life. We used multivariable regression models to identify factors associated with having health information needs met and evaluated impacts on health-related outcomes. Results We analyzed survey responses from 1041 participants including 258 who were currently undergoing treatment and 783 who had completed treatment. Findings suggest that information needs regarding CRC treatments were largely met. However, we found unmet information needs regarding psychosocial impacts of CRC. This includes work/employment, mental health, sexual activity, and nutrition and diet. We did not identify significant predictors of having met health information needs, however, among participants undergoing treatment, those with colon cancer were more likely to have met health information needs regarding their treatments as compared to those with rectal cancer (0.125, 95% CI, 0.00 to 0.25, p-value = 0.051). Conclusions Our study provides a comprehensive assessment of health information needs among individuals with CRC across the care continuum.

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“…(4)(5)(6) The most common social media platforms that feature in health are Facebook and Twitter (6) . These applications provide a platform for creating (7)(8)(9)(10) and engaging different communities (11,12) , improving information exchange and communication (13)(14)(15)(16)(17)(18)(19)(20) and educating a wide-range of users. (9,(21)(22)(23)(24)(25) Twitter is a microblogging platform that helps capture and share bite-sized pieces of information.…”

Section: Introductionmentioning

confidence: 99%

Look who’s talking now: Cancer in primary care on Twitter. An observational study

et al. 2020

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Twitter is a microblogging platform that helps share information. It is a dynamic tool that has been embraced by many user types including consumers and health care professionals. Currently, there are no data on how cancer in primary care features on Twitter. To explore the type of users and information shared about cancer in primary care on Twitter. Descriptive exploratory study of publicly available Twitter data. Tweets were searched between July 2015 and June 2017 for ‘GP’, ‘general practice’, ‘primary care’, or ‘general practitioner’ in conjunction with ‘cancer’. A 20% random sample was coded for geographic location, user type, type of tweet and theme. Tweet sentiment was analysed using R package sentimentr. Content which gained traction was compared by combining original tweets, retweets, favourites and duration. 3,413 tweets from 1,611 users in 44 countries. Consumers were the largest user group followed by health organisations, healthcare professionals and the media. The most common theme across user types was diagnostic delay. Other themes that emerged included cancer screening, symptom awareness and early diagnosis. Consumers published more negative tweets, particularly in relation to diagnostic delay. Health organisations focused on symptom awareness and screening. Over half of media tweets were stories which featured delayed diagnosis or screening. A broad range of users engage with Twitter to share information about cancer in primary care. Content is different between user groups, but diagnostic delay and symptom awareness are common themes. Healthcare and professional organisations may need to consider approaches to counter negative messages about diagnostic delay.

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Social media and colorectal cancer: A systematic review of available resources

Cited by 46 publications

References 26 publications

Perspectives of adult survivors of colorectal cancer with an ostomy on their needs: synthesis of qualitative research studies

Perspectives of adult survivors of colorectal cancer with an ostomy on their needs: synthesis of qualitative research studies

Assessing how health information needs of individuals with colorectal cancer are met across the care continuum: an international cross-sectional survey

Look who’s talking now: Cancer in primary care on Twitter. An observational study

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