Social Desirability Response Bias and Other Factors That May Influence Self-Reports of Substance Use and HIV Risk Behaviors: A Qualitative Study of Drug Users in Vietnam

Latkin, Carl A.; Mai, Nguyen Vu Tuyet; Ha, Tran Viet; Sripaipan, Teerada; Zelaya, Carla; Minh, Nguyen Le; Morales, Giuliana J; Go, Vivian F.

doi:10.1521/aeap.2016.28.5.417

Cited by 54 publications

(41 citation statements)

References 25 publications

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“…This study had numerous limitations. To mitigate the effects of potential social desirability bias, 74,75 we attempted to create a comfortable and private setting, 74 ensured confidentiality, 75,76 and used indirect questioning techniques. 77 Regardless, participants may have overstated agreement with interpretability and actionability of designs.…”

Section: Discussionmentioning

confidence: 99%

Developing Infographics to Facilitate HIV-Related Patient–Provider Communication in a Limited-Resource Setting

Stonbraker

Halpern²,

Bakken

et al. 2019

Appl Clin Inform

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Background Productive patient–provider communication is a recognized component of high-quality health care that leads to better health outcomes. Well-designed infographics can facilitate effective communication, especially when culture, language, or literacy differences are present. Objectives This study aimed to rigorously develop infographics to improve human immunodeficiency virus (HIV)-related patient–provider communication in a limited-resource setting. A secondary purpose was to establish through participant feedback that infographics convey intended meaning in this clinical and cultural context. Methods We adapted a participatory design methodology, developed in a high-resource setting, for use in the Dominican Republic. Initially, content to include was established using a data-triangulation method. Then, infographics were iteratively generated and refined during five phases of design sessions with three stakeholder groups: (1) 25 persons living with HIV, (2) 8 health care providers, and (3) 5 domain experts. Suggestions for improvement were incorporated between design sessions and questions to confirm interpretability of infographics were included at the end of each session. Results Each participant group focused on different aspects of infographic designs. Providers drew on past experiences with patients and offered clinically and contextually relevant recommendations of symbols and images to include. Domain experts focused on technical design considerations and interpretations of infographics. While it was difficult for patient participants to provide concrete suggestions, they provided feedback on the meaning of infographics and responded clearly to direct questions regarding possible changes. Fifteen final infographics were developed and all participant groups qualitatively confirmed that they displayed the intended content in a culturally appropriate and clinically meaningful way. Conclusion Incorporating perspectives from various stakeholders led to the evolution of designs over time and generated design recommendations that will be useful to others creating infographics for use in similar populations. Next steps are to assess the feasibility of using infographics to improve clinical communication and patient outcomes.

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Section: Discussionmentioning

confidence: 99%

Developing Infographics to Facilitate HIV-Related Patient–Provider Communication in a Limited-Resource Setting

Stonbraker

Halpern²,

Bakken

et al. 2019

Appl Clin Inform

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“…Misreporting of HIV status by PWID was reported previously [24]. In Vietnam, a qualitative study investigated the cognitive and motivational biases of HIV risk behaviors among drug users [25], but did not address HIV testing self-report. Recently, studies evaluated the level of such discrepancies among HIV-positive adults not using drugs in South Africa.…”

Section: Discussionmentioning

confidence: 99%

An improved HIV care cascade to assess HIV control programs among people who inject drugs.

Molès

Peries

Huong

et al. 2019

Preprint

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Background Achievement of HIV control among key populations through universal access to antiretroviral treatment (ART) requires a precise evaluation of the cascade of care. One of the main difficulties in obtaining an accurate community-based cascade of care is misreporting, which could represent one of the most important bias for people suffering from stigma. The primary objective was to estimate the added value of plasma antiretroviral concentration to improve the estimation of HIV cascade of careMethods We constructed the cascade of HIV care among persons who inject drugs (PWID) living in Hai Phong, Vietnam, using a community-based survey. First and second line HIV treatment contained fixed dose of lamivudine. Misreporting of HIV status and ART were identified by plasma lamivudine detection. We then compared the two methods for estimating the cascade of HIV careResults The proportion of misreporting was estimated at 30% among PWID. No specific PWID profile could be identified as associated with misreporting.Conclusions Adding plasma ARV detection to the routine data collection strongly improved the accuracy of the HIV cascade of care.

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“…Interventions that are not acceptable to the population or feasible in the local context will likely result in poor adherence and drop-out of participants, affecting both the magnitude of the effect and representativeness of the final sample in an RCT. Tailoring the intervention to increase its acceptability can also be challenging due to a reluctance of participants to share relevant information, social desirability bias [52] and power-dynamics between researchers and participants [53]. An effective means of accessing crucial qualitative data on the acceptability and feasibility of an intervention mentioned by interviewees is diary methods:…”

Section: ) Intervention Design and Compliancementioning

confidence: 99%

Beyond interviews and focus groups: a framework for integrating innovative qualitative methods into randomised controlled trials of complex public health interventions

Davis

Minckas

Bond

et al. 2019

Preprint

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Background: Randomised controlled trials (RCTs) are widely used for establishing evidence of the effectiveness of interventions, yet public health interventions are often complex, posing specific challenges for RCTs. While there is increasing recognition that qualitative methods can and should be integrated into RCTs, few frameworks and practical guidance highlight which qualitative methods should be integrated and for what purposes. As a result, qualitative methods are often poorly or haphazardly integrated into existing trials, and researchers rely heavily on interviews and focus group discussions. To improve current practice, we propose a framework for innovative qualitative research methods that can help address the challenges of RCTs for complex public health interventions. Methods: We used a stepped approach to develop a practical framework for researchers. This included: (1) a systematic review of the innovative qualitative methods mentioned in the health literature; (2) in-depth interviews with 23 academics from different methodological backgrounds working on RCTs of public health interventions in 11 different countries; and (3) a framework development and group consensus-building process. Results: The findings are presented according to the CONSORT Statement categories for ease of use. We identify the main challenges of RCTs for public health interventions alongside each of the CONSORT categories and potential innovative qualitative methods that overcome each challenge are listed as part of a Framework for the Integration of Innovative Qualitative Methods into RCTs of Complex Health Interventions. Innovative qualitative methods described in the interviews include: rapid ethnographic appraisals, document analysis, diary methods, interactive voice responses and SMS, community mapping, spiral walks, pair interviews and visual participatory analysis. Conclusions: The findings of this study point to the usefulness of observational and participatory methods for trials of complex public health interventions, offering a novel contribution to the broader literature about the need for mixed methods approaches. Integrating a diverse toolkit of qualitative methods can enable appropriate adjustments to the intervention and/ or process of data collection during RCTs, which in turn can create more sustainable and effective interventions. However, such integration will require a cultural shift towards the adoption of method-neutral research approaches, transdisciplinary collaborations, and publishing regimes.

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Social Desirability Response Bias and Other Factors That May Influence Self-Reports of Substance Use and HIV Risk Behaviors: A Qualitative Study of Drug Users in Vietnam

Cited by 54 publications

References 25 publications

Developing Infographics to Facilitate HIV-Related Patient–Provider Communication in a Limited-Resource Setting

Developing Infographics to Facilitate HIV-Related Patient–Provider Communication in a Limited-Resource Setting

An improved HIV care cascade to assess HIV control programs among people who inject drugs.

Beyond interviews and focus groups: a framework for integrating innovative qualitative methods into randomised controlled trials of complex public health interventions

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