Social Care Interface in Early-Stage Dementia

Carpentier, Normand; Pomey, Marie-Pascal; Contreras, Ricardo; Olazabal, Ignace

doi:10.1177/0898264308321025

Cited by 16 publications

(8 citation statements)

References 50 publications

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“…Another topic of research focuses on the collaboration between caregivers and professionals. Studies show that caregivers are not always satisfied with their collaboration with professionals (Carpentier, Pomey, Contreras, & Olazabal, 2008;McPherson, Kayes, Moloczij, & Cummins, 2013;Ward-Griffin & McKeever, 2000;Zwart-Olde, Jacobs, Broese van Groenou, & van Wieringen, 2013). Having a shared meaning of the relationship and the situation is important in order to achieve a good collaboration.…”

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confidence: 99%

Informal caregivers’ views on the division of responsibilities between themselves and professionals: A scoping review

Wittenberg

Kwekkeboom

Staaks

et al. 2017

Health Soc Care Community

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This scoping review focuses on the views of informal caregivers regarding the division of care responsibilities between citizens, governments and professionals and the question of to what extent professionals take these views into account during collaboration with them. In Europe, the normative discourse on informal care has changed. Retreating governments and decreasing residential care increase the need to enhance the collaboration between informal caregivers and professionals. Professionals are assumed to adequately address the needs and wishes of informal caregivers, but little is known about informal caregivers' views on the division of care responsibilities. We performed a scoping review and searched for relevant studies published between 2000 and September 1, 2016 in seven databases. Thirteen papers were included, all published in Western countries. Most included papers described research with a qualitative research design. Based on the opinion of informal caregivers, we conclude that professionals do not seem to explicitly take into account the views of informal caregivers about the division of responsibilities during their collaboration with them. Roles of the informal caregivers and professionals are not always discussed and the division of responsibilities sometimes seems unclear. Acknowledging the role and expertise of informal caregivers seems to facilitate good collaboration, as well as attitudes such as professionals being open and honest, proactive and compassionate. Inflexible structures and services hinder good collaboration. Asking informal caregivers what their opinion is about the division of responsibilities could improve clarity about the care that is given by both informal caregivers and professionals and could improve their collaboration. Educational programs in social work, health and allied health professions should put more emphasis on this specific characteristic of collaboration.

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confidence: 99%

Informal caregivers’ views on the division of responsibilities between themselves and professionals: A scoping review

Wittenberg

Kwekkeboom

Staaks

et al. 2017

Health Soc Care Community

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“…A detailed description of the relevant studies is summarized in Table 3. One strength of the 6 studies reviewed above was that 4 of these studies were based on theoretical models [26, 28-30]. Further, all of the selected studies reported statistically significant results, revealing significant associations between “social networks” or “social interaction” and QoL, meaning, and positive interactions among PWD and their caregivers.…”

Section: Resultsmentioning

confidence: 99%

“…Carpentier et al [26] highlighted the importance of professionals and informal caregivers considering service integration. If there is a lack of coordination between institutions and family caregivers, the quality of care delivered to PWD may be compromised [47].…”

Section: Resultsmentioning

confidence: 99%

“…The quality the selected articles was assessed according to the 2011 guidelines of Melnyk and Fineout-Overholt. Two of these studies were Level I; one was a randomized control trial [15] and one was a Level I study with a mixed-methods approach [30], whilst the remaining were Level III cross-sectional studies [13-21, 26, 28, 29]. One was a comparative case study [21], 8 were descriptive cross-sectional studies [13-20], 2 were qualitative studies which used focus groups [22, 23], one study adopted the double hermeneutic methodology [24], 2 were exploratory studies, [26, 29] one descriptive cross-sectional [25], one longitudinal [28], and one pretest/posttest [27].…”

Section: Methodsmentioning

confidence: 99%

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Factors Associated with Home Care Outcomes among Community-Dwelling Older Adult Patients with Dementia

Ghassani

Rababa²

2021

Dement Geriatr Cogn Disord Extra

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Background: With the increase in the proportion of people with dementia (PWD), it is necessary to address dementia-related issues among older adults who live at home; however, there is no integrative review on this issue. Objectives: To describe and analyze quantitative and qualitative studies from primary sources in order to identify the factors which impact home care outcomes among PWD. Methods: A computer search of PsycINFO, MEDLINE (PubMed), and the Cumulative Index of Nursing and Allied Health Literature (CINAHL) was performed. This study was guided by Whittemore and Knafl’s integrative review method. Results: This review of the literature identified 3 main factors related to home care outcomes among PWD. These factors are environmental factors, caregiver-related factors, and social network factors. Conclusions: Further research is required to investigate the impacts of multiple social and environmental factors on home care outcomes among PWD; which can eventually be used by nurses and family caregivers when providing care for older adult PWD.

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“…In their analysis of the "interface" between formal and informal service networks in earlystage dementia care, Carpentier et al (2008) adopt a "multilevel network model", which considers "family systems and community groups as well as professional establishments". Pickens (2003) uses the same interface in relation to care for women with serious mental illness, yielding the recommendation that each client's context be recognized "apart from his or her illness", and that it is important to capitalize on positive factors within the client's life as means to foster network building.…”

Section: Weak Formal Networkmentioning

confidence: 99%

Networks, case managers, and the job‐search experiences of unemployed people

et al. 2020

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Social Care Interface in Early-Stage Dementia

Abstract: The problematic interface between formal and informal service networks could be improved by a greater understanding of microsocial- and organizational-level interactions and implementing a social model of care.

Cited by 16 publications

References 50 publications

Informal caregivers’ views on the division of responsibilities between themselves and professionals: A scoping review

Informal caregivers’ views on the division of responsibilities between themselves and professionals: A scoping review

Factors Associated with Home Care Outcomes among Community-Dwelling Older Adult Patients with Dementia

Networks, case managers, and the job‐search experiences of unemployed people

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