Social Capital and the Reciprocal Nature of Family Relationships: The Perspective of Individuals With Mild Intellectual Disability

Giesbers, Sanne A. H.; Hendriks, A.H.C.; Hastings, Richard P.; Jahoda, Andrew; Tournier, Tess; Embregts, P.J.C.M.

doi:10.1352/1944-7558-125.3.170

Cited by 17 publications

(19 citation statements)

References 48 publications

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“…2019; Giesbers et al . 2020). Free recall techniques of network data have generally shown good scores of reliability and validity (Ferligoj and Hlebec 1999), and the original FNM has demonstrated test–retest reliability (Monney 2007).…”

Section: Discussionmentioning

confidence: 99%

“…Ethical approval was obtained from the Ethical Review Board of Tilburg University (EC‐2015.46) The 53 participants with mild intellectual disability were part of a larger sample of 150 individuals with mild intellectual disability aged 18–40 years (Giesbers et al . 2020). For the current study, they were selected from the larger sample based on the criterion that they were aged between 18 and 25 years as a match with the student sample in the emerging adulthood period.…”

Section: Methodsmentioning

confidence: 99%

“…2017) but also emotional support (Giesbers et al . 2020). As such, for emerging adults with intellectual disability, it may be difficult to attain adult roles within their family (Walmsley 1996; Mill et al .…”

Section: Introductionmentioning

confidence: 99%

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Family‐based social capital of emerging adults with and without mild intellectual disability

Giesbers

Hendriks

Hastings

et al. 2020

J intellect Disabil Res

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Background Family is recognised as an important context for the self‐development of young adults in emerging adulthood, although very little research has addressed the perspective of young people with intellectual disability about their families by using self‐report. This study examined how emerging adults with mild intellectual disability define their family support networks, compared with definitions of students without intellectual disability, within a social capital theoretical framework. Methods Fifty‐three participants with mild intellectual disability and 53 students without intellectual disability were interviewed individually using the Family Network Method – Intellectual Disability (FNM‐ID). Data from the FNM‐ID relate to key social network measures on how individuals define their family groups, and how they perceive existing supportive relationships within their families. Participants with mild intellectual disability and students were compared on the FNM‐ID social network measures. Results Participants with mild intellectual disability reported fewer family members who they considered significant to them than students without intellectual disability. They were less likely to include peers (i.e. friends and partners) and siblings in their significant family networks, had fewer relationships with family members in which they received or gave support, had fewer reciprocal support relationships and had a less central position in their family network. Discussion The family‐based social capital of emerging adults with mild intellectual disability differed from that of students without intellectual disability. They may remain more dependent on their natural family for emotional support as their supportive networks have not necessarily made the transition to networks with emotionally close peer relationships.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Family‐based social capital of emerging adults with and without mild intellectual disability

Giesbers

Hendriks

Hastings

et al. 2020

J intellect Disabil Res

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“…Our explorative studies provide valuable insights into the experiences and needs of people with an intellectual disability, their mothers, and care professionals during the COVID-19 pandemic in the Netherlands and relate to the key role of social supportive networks in the lives of people with an intellectual disability. Earlier research found social supportive networks of people with intellectual disabilities to be relatively small (e.g., van Asselt-Goverts et al 2013), and families, and especially parents, often proved to be the main provider of informal support to people with an intellectual disability (e.g., Giesbers et al 2020). Professionals also play a key role in the support of people with intellectual disabilities, which is not only the case for people with intellectual disabilities living in more segregated residential facilities but also for those receiving community-based residential support or living independently in the community.…”

Section: Supportive Relationshipsmentioning

confidence: 99%

Experiences of People with an Intellectual Disability, Their Relatives, and Support Staff with COVID-19: The Value of Vital Supportive Relationships

Embregts

2021

The New Common

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The major impact of the COVID-19 pandemic and subsequent measures on the lives of people with an intellectual disability, their relatives, care professionals in general, and supportive networks in particular is beyond doubt. Due to their cognitive impairment, people with an intellectual disability rely on relatives and care professionals for lifelong and life-wide care and support. Various COVID-19 measures had profound implications for collaborations within these necessary supportive relationships, such as prohibitions in receiving visiting relatives and the closure of work and day-care activities of people with an intellectual disability. However, the current crisis boosts creativity with respect to the development and valorization of knowledge towards a new common, in which vulnerable people, such as persons with an intellectual disability, will be empowered in such way they attain full societal participation.

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“…Initial results using the FNM-ID showed that there is likely to be considerable variation in the perceived family networks of people with intellectual disabilities, in terms of size and (reciprocal) emotional support (Giesbers et al, 2020). Examining family typologies can have practical implications, as different types of families might require different professional support.…”

mentioning

confidence: 99%

Family network typologies of adults with intellectual disability: Associations with psychological outcomes

Tournier

Hendriks

Jahoda

et al. 2020

Research Intellect Disabil

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Supportive social relationships, including those of family, may have a positive influence on health and well-being of people with and without intellectual disabilities (Antonucci, 2001; Scott & Havercamp, 2018). Relationships serve many functions, including providing an outlet for frustrations and fears and giving assistance and encouragement in times of difficulty (Scott & Havercamp, 2014). In the field of intellectual disability, researchers have examined the association between various outcomes and social networks, mainly analysing the effects of particular aspects of a social network such as total network size (Lippold & Burns, 2009) and the amount of perceived support (Forrester-Jones et al., 2006). However, the structures in which these social relationships are embedded matters (Faber & Wasserman, 2002). The degree to which an individual is integrated into a broad social network is directly linked with well-being and mental health (Cohen & Wills, 1985; Sapin, Widmer, & Iglesias, 2016). As such, social networks are a significant source of social capital (Furstenberg & Kaplan, 2004). Social capital theory describes the possession of a durable social network as a source of socially supportive relationships (Bourdieu, 1986). Based on this theory, treating network characteristics as individual dimensions (e.g. size of a network) will fail to capture the multi-dimensional nature

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Social Capital and the Reciprocal Nature of Family Relationships: The Perspective of Individuals With Mild Intellectual Disability

Cited by 17 publications

References 48 publications

Family‐based social capital of emerging adults with and without mild intellectual disability

Family‐based social capital of emerging adults with and without mild intellectual disability

Experiences of People with an Intellectual Disability, Their Relatives, and Support Staff with COVID-19: The Value of Vital Supportive Relationships

Family network typologies of adults with intellectual disability: Associations with psychological outcomes

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