Social adjustment experiences of adolescents with Tourette syndrome

Lee, Mei-Yin; Wang, Huei-Shyong; Chen, Chen-Jung; Lee, Mei-Hua

doi:10.1111/jocn.14564

Cited by 19 publications

(56 citation statements)

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“…This study is based on a rigorous process of scale development, which includes sufficient sample size, acceptable content validity, construct validity, discriminant validity, internal consistency, and test-retest reliability. In the first phase, the items in SASATS were developed based on the social adjustment experience of adolescents with TS (Lee et al, 2019). Phenomenological studies differ from other qualitative studies because of their focus on the subject's life experience and use of bracketing strategies to discover the essence of a phenomenon (Giorgi, 2009).…”

Section: Discussionmentioning

confidence: 99%

“…Phase 1: Item generation and scale development The initial definitions and item construction of the SASATS were based on our prior, qualitative study (Lee et al, 2019) and a literature review (Cavell, 1990;John et al, 1987;Weissman, 1975;Weissman et al, 1980). A phenomenological approach was applied to explore the social adjustment experience of sixteen adolescents with TS.…”

Section: Methodsmentioning

confidence: 99%

“…When the adolescents were interacting with others, they realized that their self-image were different from others and that the general public could not accept or understand them. As the adolescents grew toward autonomy, they were able to adjust and develop socially acceptable body images, and gradually learned to coexist with TS (Lee et al, 2019). Twenty-six items were initially generated for the scale in this study, and each item was included in the instrument randomly.…”

Section: Methodsmentioning

confidence: 99%

“…Parenting stress negatively impacts on parent-child relationships (Lee, Chen, Wang, & Chen, 2007). Moreover, most adolescents with TS report encountering tic-related problems with peers in school such as teasing, imitation, peer rejection, and a fear of interacting with others (Wadman et al ,2016;Lee et al, 2016;Lee, Wang, Chen, & Lee, 2019). At present, common treatments for TS include psychoeducation, behavioral therapy, pharmacotherapy and, relatively rarely, neurosurgery (Robertson et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

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Development and Validation of the Social Adjustment Scale for Adolescents with Tourette Syndrome in Taiwan

Lee

Wang

Chen

2020

Journal of Pediatric Nursing

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The aim of this study developed the psychometric properties of the social adjustment scale for adolescents with Tourette syndrome (SASATS). Design and methods: A cross-sectional study design was conducted. 346 adolescents with Tourette syndrome (TS) were purposively sampled from pediatric outpatient departments at two hospitals in Taiwan. The scale was developed through a phenomenological study of adolescents with TS and by reviewing the literature. The reliability analysis of the SASATS was performed using the corrected item-total correlations coefficients, Cronbach alpha coefficients, and test-retest correlations. An exploratory factor analysis and confirmatory factor analysis were used to examine the construct validity. Results: The content validity index of 0.89 was obtained, and acceptable model fit was achieved according to the explanatory factor analysis and confirmatory factor analysis. The final scale had 17-items and four factors: relationship between self and TS, academic performance, family relationship, and peer interaction. Acceptable values of 0.81 and 0.87 were obtained for the test-retest and internal consistency reliabilities, respectively. Conclusions: The SASATS is a reliable and valid instrument for evaluating social adjustment status in TS adolescents. Practice implications: The SASATS is easy to use and offers an effective scale for nurses and healthcare providers in clinical and academic settings. It can quickly measure and detect the psychological functioning of the social adjustment of adolescents with TS during interpersonal interactions. Moreover, interventions can be provided to improve adolescents' social adjustment and promote their mental health.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Development and Validation of the Social Adjustment Scale for Adolescents with Tourette Syndrome in Taiwan

Lee

Wang

Chen

2020

Journal of Pediatric Nursing

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“…Los adolescentes con ST normalmente se encuentran preocupados porque sus compañeros sin ST no comprendan que sus ataques de tics son involuntarios. Estos mismos batallan para integrarse a la sociedad y por lo tanto, intentan desesperadamente esconder sus síntomas y tratan de vivir imitando según lo que la sociedad plantea como adecuado 15 .…”

Section: Socialización En Los Pacientes Con Síndrome De Touretteunclassified

El primero de la clase (2008): un reto de aceptación social

Alcocer

Aguilar

Rubio

et al. 2019

rmc

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Recibido el 22 de octubre de 2018; aceptado el 4 de diciembre de 2018. RMCOriginal JMM Los autores declaran que el artículo es original y que no ha sido publicado previamente. 95 Rev Med Cine 2019; 15(2): 95-100 Ediciones Universidad de Salamanca / CC BY NC ND J Med Mov 2019; 15(2): 95-100 ResumenLa película El primero de la clase (2008) de Peter Werner, se encuentra basada en la vida de Brad Cohen, quien a partir de los 6 años empiezó a presentar manifestaciones clínicas del síndrome de Tourette. La trama se desarrolla entorno a como Brad vive su día a día con su enfermedad y cómo este logra enfrentar los diversos obstáculos que la sociedad le presenta para lograr su más grande sueño: ser profesor de escuela primaria. Brad es continuamente burlado por parte de sus compañeros, convive con profesores intolerantes e incluso tiene un padre muy poco comprensivo, esto debido a que se desconocía que era un portador de Síndrome de Tourette (ST), lo cual generó que en un principio se aislara de los demás y no quisiera interactuar con otras personas. Durante el filme observamos como continuamente Brad es víctima del estigma social al no poder comportarse como los demás a causa del ST, impidiéndole en un principio tener amigos y posteriormente conseguir trabajo. En el presente artículo, ofreceremos una revisión del padecimiento, para comprender sus manifestaciones y el modo en el que afectaron la vida de Brad.Palabras clave: síndrome de Tourette, signos y síntomas, enfermedad del sistema nervioso. SummaryThe film Front of the class (2008) by Peter Werner, is based on the life of Brad Cohen, from the age of 6 presented clinical manifestations of Tourette syndrome. The plot describes how Brad lived his day to day with his illness and how he managed with the various obstacles that society presented to achieve his greatest dream: to be an elementary school teacher. Brad was continuously bullied by his peers, he had intolerant teachers and even a very unsympathetic father, perhaps because his father did not know that he was a carrier of Tourette syndrome (TS), a disease that involves social isolation from the others and aversion to interact with other people. During the film we observe how Brad is a victim of social stigma by not being able to behave like this peers because of the TS, preventing him in the beginning to have friends and then and then, to get a job. In this article, we will offer a review of the Tourette´s Syndrome to understand its manifestations and the way in which Brad's life was affected. Front of the Class (2008): A challenge of Social AcceptanceCómo citar este artículo: Novelo Alcocer V, Janssen Aguilar R, Lizama Rubio MA, Méndez Domínguez NI. El primero de la clase (2008): un reto de aceptación social. Rev Med Cine [Internet] 2019;15(2): 95-100. Color: color. Duración: 95 minutos. Género: drama, discapacidad, educación, enfermedad, película de televisión. Sinopsis: "Siendo retado desde muy joven por el síndrome de Tourette, Brad Cohen desafía todas las posibilidades para convertirse en un maestro talentos...

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How does Tourette syndrome impact adolescents’ daily living? A text mining study

Atkinson-Clément

Duflot

Lastennet

et al. 2022

Eur Child Adolesc Psychiatry

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Tourette syndrome is a neurodevelopmental disease in which clinical manifestations are essentially present during childhood and adolescence, corresponding to one of the critical development phases. However, its consequences on the daily lives of young patients have been insufficiently investigated. Here, we aimed to investigate this using a statistical text mining approach, allowing for the analysis of a large volume of free textual data. Sixty-two adolescents with Tourette syndrome participated in an interview in which they discussed their daily life (i) in school, (ii) at home, and (iii) with strangers, (iv) the aspect of Tourette syndrome which caused the most difficulty, and (v) their thoughts regarding their future as adults. Following data pre-processing, these corpora were analyzed separately using the IRAMUTEQ software through factorial correspondence analysis to identify the most commonly recurring topics of each corpus, and their relations with clinical features. The main difficulty corpus was directly related to comorbidities of Tourette syndrome. Daily life at home was correlated with executive functioning. Difficulties at school were related to a higher severity of tics. Thoughts regarding future daily life were worst for the youngest patients and were correlated with executive functioning and a higher depression score. Taken altogether, our results highlighted that social stigma was a pervasive topic among our corpora. From a clinical standpoint, tic severity was especially related to difficulties at school, while comorbidities had a high impact on social daily living and cost for managing both tics and symptoms of comorbidities. Trial registration clinicaltrials.gov/ct2/show/NCT04179435.

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Social adjustment experiences of adolescents with Tourette syndrome

Abstract: The experiences and feelings highlighted in this study can bring awareness to nurses and healthcare professionals for developing interventions that promote healthy social adjustment and mental health for adolescents with Tourette syndrome.

Cited by 19 publications

References 38 publications

Development and Validation of the Social Adjustment Scale for Adolescents with Tourette Syndrome in Taiwan

Development and Validation of the Social Adjustment Scale for Adolescents with Tourette Syndrome in Taiwan

El primero de la clase (2008): un reto de aceptación social

How does Tourette syndrome impact adolescents’ daily living? A text mining study

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