Social Adaptation in Chronic Illness: A Study of Hemophilia

Katz, Alfred H.

doi:10.2105/ajph.53.10.1666

Cited by 36 publications

(11 citation statements)

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“…Clients were asked whether they participated in 16 common community activities during the prior two weeks producing a scale from 0–16 (33). …”

Section: Methodsmentioning

confidence: 99%

Factors Affecting Emergency Department Use by a Chronically Homeless Population

Moore¹,

Rosenheck²

2016

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Objective Homeless adults make extensive use of emergency department (ED) services. This study examined factors associated with moderate and high ED use in a cohort of chronically homeless individuals. Methods A cross-sectional analysis identified factors related to ED use in a cohort of 755 individuals at 11 sites at entry into in the Collaborative Initiative to Help End Chronic Homelessness (CICH). Bivariate analyses identified sociodemographic, housing status, health status, and service-related factors associated with moderate and high ED use. Independent risk factors were then identified using a multivariate multinomial model. Hierarchical regression was used to compare the strengths of association between ED use and blocks of factors composed of sociodemographic, housing, health, and service-related characteristics. Results In a 3-month period, 30% of participants visited the ED 1 or 2 times (moderate ED use) and 12% used the ED 3 or more times (high-ED use). ED use was most strongly associated with poor health status and utilization of other non-ED services, and to a lesser extent with housing status. Conclusions Increased ED utilization was associated with both medical and psychiatric morbidity and greater use of non-ED services. ED use is thus related to high need and acuity and is not ameliorated by use of other services. Housing instability and homelessness contribute less robustly to increased ED use. More coordinated services may better address the complex medical, housing, and psychosocial needs of chronically homeless individuals.

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“…Clients were asked whether they participated in 16 common community activities during the prior two weeks producing a scale from 0–16 (33). …”

Section: Methodsmentioning

confidence: 99%

Factors Affecting Emergency Department Use by a Chronically Homeless Population

Moore¹,

Rosenheck²

2016

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“…Functional limitations were measured with an activities of daily living (ADL) scale, based on the work of Katz (1963) and modified to encompass both the degree of difficulty and the need for assistance in performing 13 specific tasks. Pain was assessed by the sum of three separate questions.…”

Section: Measurementmentioning

confidence: 99%

Physical Disability and Depression: A Longitudinal Analysis

Turner¹,

Noh²

1988

Journal of Health and Social Behavior

471

313

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“…Equally relevant is the fact pointed out by the adolescents in this study that they depend on the family to bring them to the service, especially in acute cases of hemorrhage and in the presence of much pain. In periods of hemorrhage, the hemophiliac often needs to rest and carry out the injection of anti-hemophilic factor and so, being alone brings physical adjustment problems and harms their safety in cases of difficulties (17) , which has been advised already for few decades.…”

Section: Discussionmentioning

confidence: 99%

“…In particular, they feel stigmatized and discriminated against at work and experience significantly higher unemployment than people with normal health, because of the fact that employers take into consideration the need for frequent absences, because if they have a hemorrhage they may stay out for days , weeks and even months (17) . There is also an important association between the frequency of bleeding episodes and absences for academic activities in adolescents with severe hemophilia (18) , since the chronic disease leads to difficulties in school related to transport, to the presence of accessibility, inclusion, to absences resulting from the crises of acute pain and the need for visits to treatment centers and hospitalization (16) .…”

Section: Discussionmentioning

confidence: 99%

Dificuldades para enfrentar sozinho as demandas do tratamento: vivências do adolescente hemofílico

Vrabic¹,

Ribeiro

Ohara

et al. 2012

Acta paul. enferm.

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Objective: To understand the reasons why the adolescent hemophiliac does not adhere to hemophilia treatment. Methods: A qualitative study, conducted with seven adolescents, whose data were collected through semistructured interviews, using symbolic interactionism as the theoretical reference and interpretive interactionism as the methodology. Results: Adolescents can not meet the demands and diffi culties of the recommended treatment alone, they do not assume responsibilities inherent in this, and at the same time, judge what is appropriate treatment, while not valuing as essential the preventive aspects and feeling disbelief of its effectiveness against complications, as well as being dissatisfi ed with the care received in the service. Conclusions: The results reinforced the importance of family support to guarantee continuity of treatment for the adolescent hemophiliac and to provide additional subsidies to rethink care provided to them in specialized services, in order to facilitate the delivery of assistance geared to the demands of this population. Keywords: Hemophilia A; Adolescent health; Adolescent health services; Patient dropout; Pediatric nursing. RESUMOObjetivo: Compreender as razões pelas quais o adolescente hemofílico não adere ao tratamento de hemofi lia. Métodos: Estudo qualitativo, realizado com sete adolescentes, cujos dados foram coletados por entrevistas semiestruturadas, sendo o Interacionismo Simbólico o referencial teórico e o Interacionismo Interpretativo, o metodológico. Resultados: os adolescentes não conseguem enfrentar sozinhos as demandas e difi culdades do tratamento preconizado, por não assumirem as responsabilidades inerentes ao mesmo, além de julgarem que fazem o tratamento adequado, mesmo não valorizando os aspectos preventivos essenciais e perceberem-se descrentes de sua efetividade contra as complicações além de insatisfeitos com o atendimento recebido no serviço. Conclusões: os resultados reforçaram a importância de apoio da família para garantir a continuidade do tratamento ao adolescente hemofílico e oferecem subsídios para repensar a assistência prestada a eles nos serviços especializados, no sentido de favorecer a condução de um atendimento voltado às demandas dessa população. Descritores: Hemofi lia A; Saúde do adolescente; Serviços de saúde para adolescentes; Pacientes desistentes do tratamento; Enfermagem pediátrica RESUMEN Objetivo: Comprender las razones por las cuales el adolescente hemofílico no se adhiere al tratamiento de hemofi lia. Métodos: Estudio cualitativo, realizado con siete adolescentes, cuyos datos fueron recolectados por entrevistas semiestructuradas, siendo y Interaccionismo Simbólico el referencial teórico y el Interaccionismo Interpretativo, el metodológico. Resultados: los adolescentes no consiguen enfrentar solos las demandas y difi cultades del tratamiento preconizado, por no asumir las responsabilidades inherentes al mismo, además de juzgar que hacen el tratamiento adecuado, aunque no valorizando los aspectos preventivos esenciales y pe...

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Social Adaptation in Chronic Illness: A Study of Hemophilia

Cited by 36 publications

References 0 publications

Factors Affecting Emergency Department Use by a Chronically Homeless Population

Factors Affecting Emergency Department Use by a Chronically Homeless Population

Physical Disability and Depression: A Longitudinal Analysis

Dificuldades para enfrentar sozinho as demandas do tratamento: vivências do adolescente hemofílico

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