Sleeping is a nightmare: A qualitative study on the experience and management of poor sleep quality in women with fibromyalgia

Climent‐Sanz, Carolina; Gea-Sánchez, Montserrat; Fernández‐Lago, Helena; Mateos, José Tomás; Rubí-Carnacea, Francesc; Briones-Vozmediano, Érica

doi:10.1111/jan.14977

Cited by 3 publications

(1 citation statement)

References 71 publications

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“…According to the qualitative literature, the most frequent themes on patients’ accounts related to their living experience with FMS are poor functional performance, distress, lack of credibility, uncertainty, pain acceptance, poor sleep, and social stigma (Climent-Sanz et al, 2021 ; Johnson et al, 2006 ; LaChapelle et al, 2008 ; Quintner, 2020 ; Sim & Madden, 2008 ; Taylor et al, 2016 )…”

Section: Introductionmentioning

confidence: 99%

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Arfuch

Gonçalves

Angelats

et al. 2021

International Journal of Qualitative Studies on Health and Well

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Purpose To assess fibromyalgia patients’ experiences and appraisals about a multidisciplinary intervention programme, in Catalonia’s primary care, regarding its format and contents, benefits, and health impact in the short and long term. Method Qualitative interpretative research design through hermeneutic phenomenology perspective. Two focus groups discussions were conducted in February and July 2020. The purposive heterogeneous sample included 19 fibromyalgia patients who attended a multicomponent programme. In addition, thematic analysis on the verbatims was performed. Results Findings were organized into five main domains with an explanatory theme each. Overall, the informants valued the programme as a positive experience due to its holistic approach, health benefits, suffering relief, group effect, and fibromyalgia legitimacy promotion. Detected improvable aspects focused on extending the timeframe, including family members as beneficiaries, deepening the thematic contents, and getting regular access to this healthcare service. Furthermore, the intervention was considered feasible to be incorporated into usual clinical care. Conclusion the programme fulfilled users’ expectations about results and procedure and showed promise as a treatment strategy to reinforce the usual practice. Our findings suggest a broad perspective on fibromyalgia patients’ suffering, which urges us to adjust the intervention programme to their real health needs.

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