Sleep loss and its effects on health of family caregivers of individuals with primary malignant brain tumors

Pawl, Jean D.; Lee, Shih‐Yu; Clark, Patricia C.; Sherwood, Paula R.

doi:10.1002/nur.21545

Cited by 34 publications

(41 citation statements)

References 67 publications

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“…These factors appeared to be interrelated. Previous studies have shown that fatigue can have deleterious effects on the immune system by placing people at cardiovascular risk and altering the management of their emotions [ 40 , 41 ]. Family support has been documented in the literature.…”

Section: Discussionmentioning

confidence: 99%

Health capability of family caregivers: how different factors interrelate and their respective contributions using a Bayesian approach

Bucki¹,

Spitz²,

Étienne³

et al. 2016

BMC Public Health

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BackgroundThe lifestyles of family caregivers pose risks to their physical, mental and social health. The capability to stay healthy may be protective in the context of poor socioeconomic conditions and risk behaviours, but the interrelations between its aspects and their respective influences remain unclear. The aim of this study was to evaluate the interrelations between the factors comprising health capability of family caregivers (HCFC) and the respective contributions of its components.MethodsAll stroke patients admitted to all hospitals in Luxembourg were identified by the ‘Inspection Générale de la Sécurité Sociale’ using the national database system for care expenditure reimbursement, and asked to designate the main person caring for them. Sixty-two caregivers (mean age 59.3 years; 40 women and 22 men) responded face to face, to a questionnaire including 20 items measuring eight aspects of health capability (physical functioning, psychological functioning, lifestyle value, self-efficacy towards the use of health services, family support, social capital, material conditions/sense of security, and satisfaction with the interactions with health services). Using a Bayesian approach, significance values were estimated by comparing the test values to the posterior distribution of the parameters. Structural equation modelling with standard deviations was applied.ResultsFemale family caregivers had lower scores than men in physical and psychological functioning. Family caregivers with the lowest incomes had the least lifestyle value, social capital and material conditions/security. Self-efficacy towards health services increased with age. The material conditions/sense of security factor was positively correlated with almost all the others. The items that impacted health capability factors the most were - for physical functioning – fatigue, and - for family support - feeling abandoned by the family.ConclusionsDuring the chronic phase, relationships between risk behaviours can help guide social and health decision-makers to determine their priorities in improving the lives of family caregivers. Enhancing health capability involves implementing programs that relieve family caregivers physically, and foster family networking around the person being cared for. Special attention should also be paid to the socially disadvantaged in order to fight inequalities in health capability.Electronic supplementary materialThe online version of this article (doi:10.1186/s12889-016-3027-8) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Health capability of family caregivers: how different factors interrelate and their respective contributions using a Bayesian approach

Bucki¹,

Spitz²,

Étienne³

et al. 2016

BMC Public Health

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“…In contrast, another study found that the quantity of care provided (e.g., hours spent providing care and frequency of providing different types of care) was not significantly related to overall SWB among cancer caregivers . Perceptions of greater social support, however, have been correlated with better overall SWB among cancer caregivers . Theory suggests that low levels of social support may negatively impact caregivers' SWB, as caregivers have fewer opportunities to engage in meaning‐making with important others .…”

Section: Introductionmentioning

confidence: 94%

“…Although the cancer caregiving literature on SWB is limited [16,18,[20][21][22], a number of studies have examined relationships between specific aspects of SWB and mental health in cancer patients [23]. These studies have found that higher levels of meaning and peace are consistently related to better mental health outcomes [13,16,24,25].…”

Section: Spiritual Well-being Of Family Caregiversmentioning

confidence: 99%

Caregiving experiences predict changes in spiritual well-being among family caregivers of cancer patients

et al. 2014

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Objective Although enhanced spiritual well-being has been linked to positive mental health outcomes among family caregivers of cancer patients, little is known regarding predictors of spiritual well-being in this population. The current study aimed to examine caregiving experiences as predictors of change in family caregivers’ spiritual well-being during the initial months following the patient’s cancer diagnosis. Methods Seventy family caregivers of newly diagnosed cancer patients (74% female, mean age = 59 years) participated in this longitudinal survey. Caregivers completed baseline questionnaires shortly before staying with the patient at an American Cancer Society (ACS) Hope Lodge. Baseline questionnaires assessed caregiving experiences (i.e., self-esteem related to caregiving, family support for providing care, impact of caregiving on finances, and impact of caregiving on one’s schedule). In addition, caregivers’ spiritual well-being (i.e., meaning in life, peace, and faith) was assessed at baseline and 4-month follow-up. Results In univariate analyses, all caregiving experiences studied were associated with one or more aspects of spiritual well-being at 4-month follow-up. However, in the multivariate analysis, the only caregiving experience associated with aspects of spiritual well-being at 4-month follow-up was caregivers’ perceptions of family support. Specifically, lack of family support was associated with lower levels of meaning and peace. Conclusions Findings point to the importance of family support in facilitating the search for meaning and peace shortly after a loved one’s cancer diagnosis and suggest that interventions targeting caregivers’ support system may enhance their spiritual well-being.

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“…However, there are inconsistencies in the operational definitions or tools used in nursing studies. In addition, more than one instrument is mainly used in the same nursing study to measure health (Doumit, Nasser, & Hanna, ; Pawl, Lee, Clark, & Sherwood, ). Examples of applications and instruments used in nursing research are included in Table .…”

Section: Resultsmentioning

confidence: 99%

Health: A Developing Concept in Nursing

Alslman

Ahmad

Hani

et al. 2015

Int J of Nursing Knowl

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Sleep loss and its effects on health of family caregivers of individuals with primary malignant brain tumors

Cited by 34 publications

References 67 publications

Health capability of family caregivers: how different factors interrelate and their respective contributions using a Bayesian approach

Health capability of family caregivers: how different factors interrelate and their respective contributions using a Bayesian approach

Caregiving experiences predict changes in spiritual well-being among family caregivers of cancer patients

Health: A Developing Concept in Nursing

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