Singapore's health outcomes after critical illness in kids: A study protocol exploring health outcomes of families 6 months after critical illness

Poh, Pei-Fen; Lee, Jan Hau; Manning, Joseph C; Carey, Matthew C.; Sultana, Rehena; Latour, Jos M.

doi:10.1111/jan.14911

Cited by 5 publications

(3 citation statements)

References 56 publications

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“…In the United Kingdom, the Outcomes of ChildrEn and fAmilies in the first year after paediatric Intensive Care (OCEANIC) study explores the long-term health outcomes of families and PICU survivors up to 1-year postdischarge (37). In Singapore, the Singapore's Health outcomes After Critical illness in Kids study is underway to explore the association between post-intensive care health outcomes and ethnicity (38).…”

Section: Discussionmentioning

confidence: 99%

Pediatric Critical Care Nursing Research Priorities in Asia: An eDelphi Study*

Poh

Sng

Latour³

et al. 2022

Pediatric Critical Care Medicine

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To identify nursing research priorities in pediatric critical care in Asia. DESIGN:We conducted a modified three-round eDelphi survey with pediatric critical care nurses in Asia. The eDelphi technique has been extensively used within health research to achieve a common viewpoint from experts using questionnaires to gather research priorities. In round 1, participants were asked to list three to five research topics that they deemed important. These topics were thematically analyzed and categorized into a questionnaire. Participants rated the research topics in round 2 on a 6-point scale (1 = not important to 6 = extremely important). In round 3, the same questionnaire was used with addition of the calculated mean scores from round 2 for each topic. Research topics ranked among the top 10 were considered extremely important. SETTINGS:Twenty-two PICUs in eight Asian countries.

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Section: Discussionmentioning

confidence: 99%

Pediatric Critical Care Nursing Research Priorities in Asia: An eDelphi Study*

Poh

Sng

Latour³

et al. 2022

Pediatric Critical Care Medicine

Self Cite

View full text Add to dashboard Cite

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“…While enrolment is limited to families in the USA who speak English or Spanish, we will evaluate for differences in recruitment, retention and outcomes by race, ethnicity, language, social influencers of health and geography to understand how these factors may influence generalisability across populations. Data from PICS-p will allow for cross-national comparison to other ongoing studies in the field 85–87…”

Section: Methods and Analysismentioning

confidence: 99%

“…Data from PICS-p will allow for cross-national comparison to other ongoing studies in the field. [85][86][87] Research is urgently needed to better understand morbidity among survivors of paediatric critical illness and identify strategies to optimise long-term outcomes. [88][89][90] The PICS-p Longitudinal Cohort Study will systematically and comprehensively determine the physical, cognitive, emotional and social health outcomes experienced following paediatric critical illness, identify periods of vulnerability in each health domain over 2 years following PICU discharge and inform interventions to reduce morbidity and optimise recovery among children surviving critical illness and their families.…”

Section: Disseminationmentioning

confidence: 99%

Design and rationale of the Post-Intensive Care Syndrome – paediatrics (PICS-p) Longitudinal Cohort Study

Curley,

Watson,

Killien

et al. 2024

BMJ Open

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IntroductionAs paediatric intensive care unit (PICU) mortality declines, there is growing recognition of the morbidity experienced by children surviving critical illness and their families. A comprehensive understanding of the adverse physical, cognitive, emotional and social sequelae common to PICU survivors is limited, however, and the trajectory of recovery and risk factors for morbidity remain unknown.Methods and analysisThe Post-Intensive Care Syndrome–paediatrics Longitudinal Cohort Study will evaluate child and family outcomes over 2 years following PICU discharge and identify child and clinical factors associated with impaired outcomes. We will enrol 750 children from 30 US PICUs during their first PICU hospitalisation, including 500 case participants experiencing ≥3 days of intensive care that include critical care therapies (eg, mechanical ventilation, vasoactive infusions) and 250 age-matched, sex-matched and medical complexity-matched control participants experiencing a single night in the PICU with no intensive care therapies. Children, parents and siblings will complete surveys about health-related quality of life, physical function, cognitive status, emotional health and peer and family relationships at multiple time points from baseline recall through 2 years post-PICU discharge. We will compare outcomes and recovery trajectories of case participants to control participants, identify risk factors associated with poor outcomes and determine the emotional and social health consequences of paediatric critical illness on parents and siblings.Ethics and disseminationThis study has received ethical approval from the University of Pennsylvania Institutional Review Board (protocol #843844). Our overall objective is to characterise the ongoing impact of paediatric critical illness to guide development of interventions that optimise outcomes among children surviving critical illness and their families. Findings will be presented at key disciplinary meetings and in peer-reviewed publications at fixed data points. Published manuscripts will be added to our public study website to ensure findings are available to families, clinicians and researchers.Trials registration numberNCT04967365.

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Parental emotional, social and transitional health in the first 6 months after childhood critical illness: A longitudinal qualitative study

Poh,

Carey,

Manning

et al. 2024

Journal of Advanced Nursing

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AimTo explore the experiences and support needs of parents in the first 6 months after paediatric critical care.DesignLongitudinal qualitative design.MethodsSequential semi‐structured qualitative interviews were conducted with a sample of 28 parents in succession at 1 month and at 6 months (n = 22) after their child's discharge from paediatric critical care using purposive sampling. Data were analysed using the adapted five‐stage framework analysis.ResultsData were developed into eight synthesized themes, three domains and an overarching theme: Regaining Normalcy. Families of children requiring medical treatment at 6 months showed signs of adaption to daily care routines. The two domains were Parental Emotional Health and Parental Social Health. Parental Transitional Health, a third domain, was added to the Post Intensive Care Syndrome‐paediatric framework. Parents were forward‐looking and discussed emotional health, relating to current caregiving issues. Emotional attention was related to present challenges and concerns about current health and possible readmission to the hospital. In terms of Parental Social Health, families isolated themselves for infection control while remaining connected with families using chat applications. Parents were selective to whom they allowed access to their lives. The impact of parental transitional health was evident and emphasized the daily challenges associated with integration back to home life. Flexible work arrangements allowed working parents to support caregiving needs in the first 6 months after discharge.ConclusionIn the first 6 months after paediatric critical illness, most families reported having moved past the experiences while having provoking memories of the admission period. Parents viewed the point of normalcy as child returned to school or when all medications were discontinued. Extension of transitional support can facilitate discharge experiences between paediatric critical care and normalcy. The findings highlight the importance of understanding the medium‐ and longer‐term impact of paediatric critical care.Impact What problem did the study address? Limited understanding of long‐term parental experiences and support needs after PICU discharge. What were the main findings? Most families regained normalcy when child returns to school or when medications were discontinued. Some families continued to show signs of adaptations at 6 months after PICU discharge. Where and on whom did the research have an impact? The research has an impact on improving the understanding of long‐term parental experiences and support needs after PICU discharge, informing clinical practice, guiding policy development and shaping parental support programs. Reporting MethodWe reported this study using the COREQ guidelines.Patient or Public ContributionPrior to confirming the interview guide, three parents of critically ill children actively participated by reviewing and providing feedback on its content. They provided suggestions to refine the wording and ensure clarity to enhance the participants' understanding. By including the perspectives of these parents, we aimed to improve the overall quality and relevance of the interview guide.

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Singapore's health outcomes after critical illness in kids: A study protocol exploring health outcomes of families 6 months after critical illness

Cited by 5 publications

References 56 publications

Pediatric Critical Care Nursing Research Priorities in Asia: An eDelphi Study*

Pediatric Critical Care Nursing Research Priorities in Asia: An eDelphi Study*

Design and rationale of the Post-Intensive Care Syndrome – paediatrics (PICS-p) Longitudinal Cohort Study

Parental emotional, social and transitional health in the first 6 months after childhood critical illness: A longitudinal qualitative study

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