Silent no more! The lived experiences of women with lichen sclerosis

Wehbe‐Alamah, Hiba; Kornblau, Barbara; Haderer, JoAnn; Erickson, Janetlynne

doi:10.1111/j.1745-7599.2012.00715.x

Cited by 30 publications

(53 citation statements)

References 22 publications

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“…These women are severely affected; studies indicates that the disease has a large effect on quality of life and many suffer from sexual dysfunction as well [5,[10][11][12]. Even a small improvement will make a difference for the women and therefore we do think that patch testing these patients is important.…”

Section: Discussionmentioning

confidence: 99%

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Contact Allergy and Vulvar Lichen Sclerosus et Atrophicus

Björk¹,

Svedman²,

Asplund

et al. 2014

Immunome Res

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Section: Discussionmentioning

confidence: 99%

“…Pruritus, pain and dyspareunia are common symptoms and as a result there may be a complete preclusion of sexual intercourse. Women and young girls with the disease describe restrictions in their lifestyle and a reduced quality of life [5,[10][11][12].…”

Section: Introductionmentioning

confidence: 99%

Contact Allergy and Vulvar Lichen Sclerosus et Atrophicus

Björk¹,

Svedman²,

Asplund

et al. 2014

Immunome Res

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“…Patients may feel uncomfortable with their complaints and the disfiguring changes that may occur, which might result in avoiding sexual intimacy. Studies show that the majority of patients report an impact on QoL, especially with sexual functioning which causes significant sexual distress [76,77]. Furthermore, women experience delayed diagnosis, seek variety of alternative treatments and Review rely on finding online support and information; the use of social media may improve patient care and should be explored [76].…”

Section: Impact Of Vulvar Ls and (Pre)malignanciesmentioning

confidence: 99%

Prevention, identification and treatment of vulvar squamous (pre)malignancies: a review focusing on quality of care

Einden¹,

Avoort

Hullu

2013

Expert Review of Anticancer Therapy

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Vulvar squamous cell carcinoma, its precursor lesions (usual and differentiated vulvar intraepithelial neoplasia) and lichen sclerosus are rare diseases that may have a large impact on the lives of affected women and their partners. Proper identification is vital, but the lesions are sometimes difficult to diagnose because of their rarity and variety of symptoms. High quality of care and proper treatment is important in order to minimize the morbidity and mortality caused by these lesions. This review gives an outline of the latest insights regarding the current evidence in this area and unresolved issues. Additionally, it highlights the improvements that should be made in order to optimize prevention and identification of (pre-)malignant vulvar lesions and to increase the quality of care for these patients.

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“…Health topics including allied health education (Wright & Lundy, 2012) and credibility of online health information (Hu & Sundar, 2010). Among the studies focusing on women, health issues discussed related to weight and healthy eating (Lynch, 2010(Lynch, , 2012, urinary incontinence (Saiki & Cloyes, 2014), lichen sclerosis (Wehbe-Alamah, Kornblau, Haderer, & Erickson, 2012), pregnancy (Ho, 2011), cancer (KeimMalpass et al, 2013, and women's health (McCarroll et al, 2013).…”

Section: Sampling Categoriesmentioning

confidence: 99%

Using Blogs as a Qualitative Health Research Tool

Wilson

Kenny

Dickson‐Swift

2015

International Journal of Qualitative Methods

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The global increase in and prevalence of social media is stimulating interest in the utilisation of blogs for research purposes. There is, however, a significant lack of information about the manner and scope of blog use in health research. In this scoping review, we aimed to identify how blogs are being used in health research to date and whether blogging has potential as a useful qualitative tool for data collection. Our purpose was to summarize the extent, range, and nature of research activity using blogs. In our scoping review key search terms were developed and applied to selected databases with 44 relevant studies identified. Studies were examined for the inclusion of blog use in their methods and descriptions of the manner in which they were used. While blogs were used in a variety of ways, the majority of identified studies used blogs for data collection, mostly as one method within a set of data collection methods and primarily for gathering information about experiences, perceptions, and feelings. We identified themes related to the blog's function, the health issue or topic focus, and sampling categories. Our review demonstrated that blogs have potential as a qualitative health research tool for a range of purposes, including data collection. Blogs have particular application for researchers accessing populations beyond their physical reach. Given the global commitment to research for improvements to health and health equity, this review is an essential first step to embark on future qualitative health research using blogs. Keywords blogs, health research, qualitative research, qualitative methods, data collectionThis article reports on a scoping review of peer-reviewed literature that describes the use of blogs in health research. As the use of social media becomes commonplace, interest in the utilization of blogs for research is growing. The extent to which blogs are being used as a research tool by health researchers is, however, unclear. Our interest is in understanding how blogs are being used in health research and whether blogging has potential as a useful qualitative tool for data collection. By summarizing the extent, range, and nature of research activity using blogs, our aim is to identify what is known about the use of blogs in qualitative health research. This review is an essential first step from which to embark on future qualitative health research using blogs.

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Silent no more! The lived experiences of women with lichen sclerosis

Cited by 30 publications

References 22 publications

Contact Allergy and Vulvar Lichen Sclerosus et Atrophicus

Contact Allergy and Vulvar Lichen Sclerosus et Atrophicus

Prevention, identification and treatment of vulvar squamous (pre)malignancies: a review focusing on quality of care

Using Blogs as a Qualitative Health Research Tool

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