Side effects of radiotherapy in breast cancer patients

Käsmann, Lukas; Fahlbusch, Fabian; Rades, Dirk; Vordermark, Dirk

doi:10.1007/s00066-017-1197-7

Cited by 21 publications

(11 citation statements)

References 26 publications

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“…Among 138 full-text tools screened, 96 were excluded based on publication type (51) or date (11), they could not be located (15), lacked any DCIS content (14), were not freely available (9) or were developed by a for-profit organization (3), leaving 39 tools eligible for review (Supplementary File 1). Extracted data are included in Supplementary File 2 [39–80].…”

Section: Resultsmentioning

confidence: 99%

“…Self-report questionnaire data from 27,491 breast cancer patients between 2007 and 2013 also showed increasing use of the Internet as a source of information, particularly among those younger than 70 years of age, with 10 or more years of formal education, and lower cancer stage [79]. Assessment of 30 English- and 30 German-language web sites on side effects of radiotherapy for breast cancer with DISCERN found that most were poor quality [80]. While Lo et al [37] identified questions important to women with DCIS, we found no prior published studies that developed or evaluated DCIS information tools.…”

Section: Discussionmentioning

confidence: 99%

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Quality of DCIS information on the internet: a content analysis

Blackwood

Wright

Hong

et al. 2019

Breast Cancer Res Treat

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Purpose Women with ductal carcinoma in situ (DCIS) experience lingering confusion and anxiety, and may use the Internet for supplemental information. This study assessed the content and quality of DCIS information on the Internet. Methods We searched Google for English-language, publicly available DCIS information tools published from 2010 to current by non-profit organizations. We summarized tool characteristics, DCIS labels, and information important to women with DCIS corresponding to domains of a patient-centred care (PCC) framework. Tool quality was appraised with the DISCERN instrument. Results Of 39 tools included, most were plain language summaries published since 2016. Tools employed a median of 2.0 labels (range 1.0 to 5.0) for DCIS, most frequently non-invasive breast cancer (29, 74.4%), abnormal cells (14, 35.9%), pre-cancer (14, 35.9%), and early form of breast cancer (13, 33.3%). Tools addressed a median of 4.0 (range 2.0 to 5.0) PCC domains. Few tools contained content in the domains of fostering the relationship (30.8%), addressing emotions (41.0%), or follow-up (41.0%); 74.4% noted the risk of progression or recurrence but provided vague details. Tools were assessed as high (25.6%), moderate (48.7%), and low (25.6%) quality. Conclusions Few DCIS information tools available to women on the Internet meet quality criteria for consumer health information or address concerns of importance to women with DCIS. By identifying a range of poorly defined terms used to label DCIS, and specific content domains that were lacking, this study identified how existing tools could be improved, and identified higher-quality tools that clinicians can use when discussing DCIS with patients. Electronic supplementary material The online version of this article (10.1007/s10549-019-05315-8) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Quality of DCIS information on the internet: a content analysis

Blackwood

Wright

Hong

et al. 2019

Breast Cancer Res Treat

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“…On 1 March 2020 and 13 July 2020, from a Spanish IP address, two Google searches were performed with the terms "Prevencion COVID-19" and "Prevencion Coronavirus". Like in other studies, the first 30 weblinks in Spanish were selected for each search, excluding advertisements [26][27][28]. While using Google, the author was not logged in as a Google user.…”

Section: Methodsmentioning

confidence: 99%

Information in Spanish on the Internet about the Prevention of COVID-19

Hernández-García

Giménez-Júlvez

2020

IJERPH

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Objective. Our objective was to analyze the evolution of the information in Spanish online about the prevention of the coronavirus disease 2019 (COVID-19). Methods. On 1 March and 13 July 2020, two searches were conducted on Google with the terms “Prevencion COVID-19” and “Prevencion Coronavirus”. In each stage, a univariate analysis was performed to study the association of the authorship and country of origin with the basic recommendations to avoid COVID-19 provided by the World Health Organization (WHO). Results. A total of 120 weblinks were evaluated. The recommendation found most frequently in both stages was “wash your hands frequently” (93.3% in March vs. 90.0% in July). There was a significant increase in the detection of the following recommendations: “avoid touching your face” (56.7% vs. 80.0%) and “stay at home if you feel unwell” (28.3% vs. 63.3%). Weblinks of official public health organizations more frequently provided the advice to “seek medical advice if you develop a fever/cough or have difficulty breathing”. Furthermore, in July, such weblinks provided recommendations to “avoid touching your face” and “maintain a distance of one meter” more frequently than the mass media (OR = 11.5 and 10.5, respectively). In March, the recommendation to “maintain a distance of at least 1 m” was associated with the weblinks from countries with local transmission/imported cases (OR = 8.1). Different/ambiguous information regarding the WHO recommendations was detected in four weblinks. Conclusion. The availability of information in Spanish online on basic prevention measures has improved over time, although there is still room for improvement. It is necessary to promote the use of the websites of official public health organizations among Spanish-speaking users.

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“…Internett brukes også for å finne ut mer om egen eller andre sin sykdom (Fox & Duggan, 2013). Det finnes mange forskjellige nettsider av varierende kvalitet, der mangel på regulering og fagfellevurdering øker sannsynligheten for å få informasjon av dårlig kvalitet (Smart & Burling, 2001;Janssen et al, 2018). Det legges vekt på viktigheten for kreftpasienter å ta kontakt med onkologen på sykehuset for å kunne diskutere og integrere informasjon de finner på nettet (Janssen et al, 2018).…”

Section: Informasjonskilderunclassified

“…Det finnes mange forskjellige nettsider av varierende kvalitet, der mangel på regulering og fagfellevurdering øker sannsynligheten for å få informasjon av dårlig kvalitet (Smart & Burling, 2001;Janssen et al, 2018). Det legges vekt på viktigheten for kreftpasienter å ta kontakt med onkologen på sykehuset for å kunne diskutere og integrere informasjon de finner på nettet (Janssen et al, 2018). I studien av Pahade et al (2018) ble det sett en sammenheng mellom foretrukket informasjonsplattform og utdanningsnivå.…”

Section: Informasjonskilderunclassified

Pasienters evaluering av informasjonsskrivet til CT abdomen

Abrahamsen¹,

Lanuza²,

Poplonska³

2020

RadOpen

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SammendragInnledning: Flere pasienter møter opp til CT-time uten å ha fått med seg tilstrekkeliginformasjon om undersøkelsen de skal gjennomføre, informasjon som skal være gitt dem iinformasjonsskrivet i forkant av undersøkelsen.Målsetning: Målet med denne studien var å avdekke om informasjonsskrivet bidro tiltilstrekkelig kunnskap om CT-undersøkelsen. I tillegg ønsket vi å kartlegge om det var behovfor forbedring av informasjonsskrivet, eventuelt avdekke pasientens syn på hva som kunneforbedres.Metode: I denne studien ble det benyttet et spørreskjema i papirform somdatainnsamlingsmetode. Spørreskjema ble gitt ut til pasienter som fikk innkallingsbrev oggjennomførte en av de utvalgte CT-undersøkelser på St. Olavs Hospital.Resultat: Det totale antallet respondenter var 25. De fleste var fornøyde medinformasjonsskrivet både med tanke på innhold og utseende, og de følte at skrivet inneholdtall informasjon som var nødvendig for å bli forberedt til CT-undersøkelsen. Allerespondentene svarte at innholdet i informasjonsskrivet var lett å forstå. Respondenter medhelsefaglig bakgrunn var mer kritiske til innholdet av informasjonsskrivet enn de utenarbeidserfaring fra helsevesenet. Et fåtall respondenter ønsket mer informasjon om bl.a.kontrastmiddel.Konklusjon: Selv om pasientene i denne undersøkelsen stort sett var fornøyde med dagensinformasjonsskriv, er er det likevel rom for forbedring med tanke på innholdet.

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Side effects of radiotherapy in breast cancer patients

Cited by 21 publications

References 26 publications

Quality of DCIS information on the internet: a content analysis

Quality of DCIS information on the internet: a content analysis

Information in Spanish on the Internet about the Prevention of COVID-19

Pasienters evaluering av informasjonsskrivet til CT abdomen

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