Siblings of Pediatric Cancer Patients

Packman, Wendy; Greenhalgh, Jody; Chesterman, Beth; Shaffer, Tani Graham; Fine, Joselyn; VanZutphen, Kelly; Golan, Rama; Amylon, Michael D.

doi:10.1300/j077v23n01_06

Cited by 45 publications

(29 citation statements)

References 25 publications

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“…Even though this was the only subscale of the KIDSCREEN questionnaire showing group differences, well-being represents an essential part of siblings' psychological adjustment (positive emotions, satisfaction with life, and balanced emotionality). Positive effects on HRQoL were also found in two other studies [11,38]. Notably, in our study this result was not apparent from the mothers' reports of the child's HRQoL.…”

Section: Discussionsupporting

confidence: 81%

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A two-session psychological intervention for siblings of pediatric cancer patients: a randomized controlled pilot trial

Prchal

Graf

Bergstraesser

et al. 2012

Child Adolesc Psychiatry Ment Health

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BackgroundSince siblings of pediatric cancer patients are at risk for emotional, behavioral, and social problems, there is considerable interest in development of early psychological interventions. This paper aimed at evaluating the effectiveness of a two-session psychological intervention for siblings of newly diagnosed pediatric cancer patients.MethodsThirty siblings age 6-17 years were randomly assigned to an intervention group or an active control group with standard psychosocial care. The manualized intervention provided to siblings in the first 2 months after the cancer diagnosis of the ill child included medical information, promotion of coping skills, and a psychoeducational booklet for parents. At 4 to 6 weeks, 4 months, and 7 months after the diagnosis, all siblings and their parents completed measures (from standardized instruments) of social support, quality of life, medical knowledge, posttraumatic stress symptoms, and anxiety.ResultsAt follow-up siblings in the intervention group showed better psychological well-being, had better medical knowledge, and reported receiving social support from more people. However, the intervention had no effects on posttraumatic stress symptoms and anxiety.ConclusionsThe results of this pilot trial suggest that a two-session sibling intervention can improve siblings' adjustment, particularly psychological well-being, in the early stage after a cancer diagnosis.Trial RegistrationClinicalTrials.gov NCT00296907

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Section: Discussionsupporting

confidence: 81%

“…However, a significant subset of siblings suffers from cancer-related posttraumatic stress symptoms (PTSS) [1,7,8], and there is evidence of poorer health-related quality of life (HRQoL) in this population [9-11]. School and social functioning may be impaired in the first time period after diagnosis [12-14].…”

Section: Introductionmentioning

confidence: 99%

A two-session psychological intervention for siblings of pediatric cancer patients: a randomized controlled pilot trial

Prchal

Graf

Bergstraesser

et al. 2012

Child Adolesc Psychiatry Ment Health

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“…Multisite studies could also consider using multilevel modeling approaches to data analysis, which would allow one to account for the possibility that camp outcomes are likely more similar within camps and to account for this when examining predictors of differential camp outcomes. Future studies should also consider prospectively and longitudinally following children to document changes over time, such as precamp, postcamp, and at longer term follow-up (Bluebond-Langner et al, 1990; Packman et al, 2005). To continue building an empirically based literature that supports continued efforts to convene summer camps for children affected by cancer, future studies could assess the degree to which camp participation leads to other positive outcomes, such as decreased use of health-care services or reduced need for behavioral health services.…”

Section: Summary and Discussionmentioning

confidence: 99%

A multisite evaluation of summer camps for children with cancer and their siblings

McPhail

Mooney

et al. 2016

Journal of Psychosocial Oncology

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Summer camps for pediatric cancer patients and their families are ubiquitous. However, there is relatively little research, particularly studies including more than one camp, documenting outcomes associated with children’s participation in summer camp. The current cross-sectional study used a standardized measure to examine the role of demographic, illness, and camp factors in predicting children’s oncology camp-related outcomes. In total, 2,114 children at 19 camps participated. Campers were asked to complete the pediatric camp outcome measure, which assesses camp-specific self-esteem, emotional, physical, and social functioning. Campers reported high levels of emotional, physical, social, and self-esteem functioning. There were differences in functioning based on demographic and illness characteristics, including gender, whether campers/siblings were on or off active cancer treatment, age, and number of prior years attending camp. Results indicated that summer camps can be beneficial for pediatric oncology patients and their siblings, regardless of demographic factors (e.g., gender, treatment status) and camp factors (e.g., whether camp sessions included patients only, siblings only, or both). Future work could advance the oncology summer camp literature by examining other outcomes linked to summer camp attendance, using longitudinal designs, and including comparison groups.

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“…Along this line, and although friends are an essential source of support and distraction for the healthy siblings, there is a possibility that these relationships or friendships become affected by the illness of the sick sibling, resulting in a decrease of social activities [7].…”

Section: Siblings Facing Illnessmentioning

confidence: 99%

Siblings of a Child with a Serious Disease: Educational Family Guidelines for Developing the Emotional Health of This Minority Group

Lizasoáin¹

2015

JSS

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Diagnosis of a serious disease in childhood is a traumatic experience, not only for the sick child but also for those living in the same environment. The family life changes drastically, and the family members go through a period of time which is both hard and full of the unknown. Fear, confusion, anger and sadness will be the principal feelings present in each one of the family members. The sick child becomes the central focus of attention at the expense of the other children in the family, children who now take a secondary role, shifting into the background. Therefore, it is very important to offer support and give special care to these other children, not excluding them from everything that is occurring in the family. This article focuses on the feelings experienced by these group of siblings. The adaptation process when facing this difficult situation will be analyzed and educational guidelines which can help the family manage the emotional impact made by the serious disease will be offered, putting special emphasis on communication.

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Siblings of Pediatric Cancer Patients

Cited by 45 publications

References 25 publications

A two-session psychological intervention for siblings of pediatric cancer patients: a randomized controlled pilot trial

A two-session psychological intervention for siblings of pediatric cancer patients: a randomized controlled pilot trial

A multisite evaluation of summer camps for children with cancer and their siblings

Siblings of a Child with a Serious Disease: Educational Family Guidelines for Developing the Emotional Health of This Minority Group

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