Siblings of children with disabilities: challenges and opportunities

Dyke, Paula; Mulroy, Seonaid; Leonard, Helen

doi:10.1111/j.1651-2227.2008.01168.x

Cited by 48 publications

(47 citation statements)

References 12 publications

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“…Similarmente, um estudo desenvolvido na Índia demonstrou que a qualidade de vida de irmãos de pacientes com doenças neurológicas crônicas era comprometida, com prejuízo nas atividades cotidianas relacionadas ao trabalho e estudo, e descontentamento com o padrão de sono 31 . Efeitos positivos para os irmãos de deficientes também já foram relatados e incluem desenvolvimento de características de personalidade, como compaixão, tolerância e consciência da diferença 32 . É importante considerar as implicações desses resultados no papel de cuidador do indivíduo com deficiência intelectual que os irmãos poderão exercer no futuro.…”

Section: Discussionunclassified

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

et al. 2017

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Este estudo clínico-qualitativo investigou o impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar. Os dados foram coletados por meio de entrevistas individuais com 15 mães de deficientes, escolhidas por conveniência, e examinados pela técnica de análise de conteúdo categorial temática. Os resultados foram discutidos usando-se abordagem compreensiva e interpretativa. Da análise das entrevistas apreendeu-se que o cuidado do filho deficiente é centrado na mãe, o que contribuiu para a modificação das relações familiares. O enfrentamento religioso apareceu como estratégia comum de ajuste. Os filhos deficientes tiveram acesso a menos serviços e suportes do que necessitavam, nas áreas de saúde, educação e lazer. Restrições financeiras e dificuldades no convívio comunitário impactaram negativamente na qualidade de vida familiar. Apoio emocional e psicológico para todos os membros da família, e apoio prático e social, incluindo distribuição de renda e acesso a serviços adequados, mostraram-se essenciais para o bem-estar do deficiente e de sua família.

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Section: Discussionunclassified

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

et al. 2017

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“…We focus on the developmental outcomes of siblings in the cognitive, social, psychological, and emotional realms. Because having a B/S with DDs can be associated with both positive and negative outcomes for siblings (Dyke, Mulroy, & Leonard, ), we consider variation in outcomes associated with having a B/S with DDs and the personal and contextual factors that contribute to and detract from siblings' positive development. We use the newer version of the bioecological framework, known as the Person‐Process‐Context‐Time Model (Bronfenbrenner, ).…”

Section: The Need For An Organizing Theoretical Frameworkmentioning

confidence: 99%

“…If siblings and sibling relationships are celebrated in families with typically developing children, they might be even more so when one of the children has a DD. Nevertheless, research on the impact of DDs on siblings and sibling relationships reveals mixed findings (Dyke et al, ). Some researchers have reported that siblings of individuals with DDs provide the same or better relationship support as siblings of typically developing children (Brody, Stoneman, Davis, & Crapps, ; Cuskelly & Gunn, ; Doody, Hastings, O'Neill, & Grey, ; Rivers & Stoneman, ).…”

Section: Siblings Of Individuals With Disabilitiesmentioning

confidence: 99%

Siblings of Individuals With Disabilities: Reframing the Literature Through a Bioecological Lens

Saxena

Adamsons

2013

J of Family Theo & Revie

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In the United States alone, there are almost 300,000 individuals with developmental disabilities. Researchers have focused primarily on such individuals and their parents; however, the developmental outcomes of such individuals' siblings have been understudied. Research on siblings frequently is atheoretical, which makes it difficult to organize findings in ways that enhance understanding of the multiple influences on sibling development and to predict and promote siblings' outcomes. Application of a theoretical framework is crucial, as it has implications for supports available to siblings and families, as well as for research, programs, and policy. Here, a bioecological framework is used to organize existing research about siblings of individuals with disabilities and the factors that help or hinder their development and to highlight areas needing further study.

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“…This is surprising given that siblings, much like their parents, face a number of challenges associated with having a brother/sister with a DD. For example, to alleviate some of the burden on their parents, siblings often take on additional household chores and responsibilities (Dyke Mulroy, & Leonard, 2009), thus limiting opportunities for social and peer interaction, and extracurricular activities (Barak-Levy, Goldstein, & Weinstock, 2010;Moyson & Roeyers, 2012). In addition, parents, who are overburdened by their caregiving role, have been found to be less physically and emotionally available for their other children (Macks & Reeve, 2007).…”

Section: Introductionmentioning

confidence: 99%

The psychophysiological impact of childhood autism spectrum disorder on siblings

Lovell

Wetherell

2016

Research in Developmental Disabilities

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Objective: The negative impact of caring for a child with autism spectrum disorder (ASD) on parents' psychophysiological functioning has been widely evidenced. However, siblings, who also face emotional, social and physical challenges associated with having a brother/sister with ASD, have been less widely studied. This study examined the psychophysiological impact of childhood ASD on Siblings of children with ASD experience greater emotional problems and overall depressive symptoms compared with a control group. Interventions that enhance social support, as well as helping siblings better understand the behaviour problems of their brother/sister with ASD, might be effective for alleviating depressive symptoms.

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Siblings of children with disabilities: challenges and opportunities

Cited by 48 publications

References 12 publications

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

Impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar: um estudo clínico-qualitativo

Siblings of Individuals With Disabilities: Reframing the Literature Through a Bioecological Lens

The psychophysiological impact of childhood autism spectrum disorder on siblings

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